University of Humanistic Studies OAI Repository
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Better spiritual support for people living with early stage dementia: Developing the diamond conversation model
This dataset is for replication and follow-up research purposes. It consists of all key documents from data collection to data analysis of the research project. See the readme document for the relevant procedure and document description
Lesson plan social inclusion and the UN Convention and people with mild to severe intellectual disabilities
Een Wereld van Verschil: Instellingsterreinen en het Goede Leven voor Mensen met een Verstandelijke Beperking
Brief Eclectic Psychotherapy for Prolonged and Traumatic Grief Following Drug-Related Death
The loss of a loved one due to drug-related death may have emotional and sociocultural implications that influence meaning attribution to the loss, thereby complicating the grief process and increasing the risk of prolonged grief disorder (PGD). Brief Eclectic Psychotherapy for Prolonged and Traumatic Grief (BEPPTG) can be tailored to the needs of individuals facing complex meaning attribution following drug-related death bereavement. BEPPTG consists of information and motivation, grief-focused exposure, symbolic interactions, and meaning attribution and activation. A case description shows the application of BEPPTG for the treatment of PGD and post-traumatic stress disorder (PTSD) following drug-related death bereavement. Through cognitive, behavioural, and experiential techniques, BEPPTG enables the patient to deal with traumatic and ambiguous aspects of drug-related death and to involve the patient’s social, cultural, and spiritual context to support adaptive meaning attribution and to reshape the relationship with the deceased
Fostering a Trusting Relationship With Family in Dementia Special Care Units:A Participatory Action Research Project
Aim: To explore experiences of nursing home staff in implementing self-designed interventions to foster trusting relationships with family in practice. Design: This qualitative study used a Participatory Action Research approach. Methods: Data collection included focus groups (n = 15), interviews (n = 28) and observations (n = 5). A holistic narrative approach was used for data analysis, resulting in co-constructed narratives representing experiences of nursing home staff in implementing four different interventions in five Dutch dementia special care units in nursing homes. The data collection period began in August 2021 and ended in April 2022. Results: Nursing home staff implemented self-designed interventions to foster trusting relationships with family, including initiating informal conversations, sharing residents’ ‘happy’ moments, discussing mutual expectations, and being more aware of families’ emotional burdens. Identified facilitators emphasise the importance of reciprocity, familiarity, transparency, realistic goal setting and empathy. Identified barriers are related to moral uncertainty in balancing competing demands, conflicting social norms, prioritising hands-on care tasks over family contact and lack of courage to act. Conclusion: Nursing home staff conclude that their interventions contribute positively to building and maintaining a trusting relationship with families. Implications for the Profession and/or Patient Care: Sharing the narratives of nursing home staff with peers would support them in implementing interventions to foster trust. Regular Moral Case Deliberations can be used to address moral uncertainty. Collective dialogue among nursing home staff can be useful in establishing new social norms that prioritise family involvement. Conversation skills training can empower nursing home staff. Impact: Trust between nursing home staff and families can be improved by implementing the conducted interventions. Reporting Method: This report adheres to the standards for reporting qualitative research (COREQ). Patient or Public Contribution: No patient or public contribution
Collaboration with patients' family members and representatives:legal perspective and barriers in clinical practice
BACKGROUND: In the Compulsory Mental Health Care Act (Wvggz) family members and representatives have a more central position. However, in clinical practice there is a lack of collaboration.AIM: Giving an overview of the relevant legal texts and analyzing possible reasons for the lack of collaboration.METHOD: Discussion of relevant legal texts and publications.RESULTS: The aim of the Compulsory Mental Health Care Act is to enhance the patients' rights and rights of their family. In clinical practice it is difficult to find a good collaboration. One problem is that patients' competence may fluctuate over time. And also confidentiality is seen as an important barrier. Family members also experience tension by fulfilling different roles, especially when they are representative.CONCLUSION: Although the Compulsory Mental Health Care Act gives a clear framework for collaboration with family members, the application is complex in clinical practice. The formal possibilities can only be applied, when relations with both patients and their family members are built in trust.</p
Gerotranscendence as a new perspective on life?:A qualitative study among the oldest elderly in a nursing home
In de gerontologie bestaan meerdere theorieën over goed ouder worden. Eén daarvan heet gerotranscendentie. Op latere leeftijd kan een verandering in levensvisie optreden, waarbij een transcendente en kosmische kijk op het leven ontstaat, en daarbij meer levensvoldoening. In dit empirische onderzoek onder twintig bewoners van een verpleeghuis (77 - 105 jaar) is gekeken of zij kenmerken hiervan bij zichzelf herkennen