University of Humanistic Studies OAI Repository
Not a member yet
11294 research outputs found
Sort by
In the pursuit of social inclusion:Social workers fostering social inclusion of people with mild intellectual disabilities
Get PDFDemonstreren kun je leren. Zo doen ze het in Servië
No full textHaar generatie weet zich niet goed raad met demonstraties zoals komende zaterdag in Amsterdam tegen fascisme en racisme, schrijft Niké Wentholt. Haar advies: kijk eens over de grens, naar de recordbetoging in Servië afgelopen weekeinde
Recreating Habitat:A study into the lived experiences of parents caring for children with profound intellectual and multiple disabilities in the Netherlands
Get PDF
Moral distress among healthcare professionals in long-term care settings:a scoping review
No full textAIM: To explore the body of knowledge available regarding the moral distress of healthcare professionals in long-term care settings, focusing on influencing factors and strategies to cope with moral distress.DESIGN: Scoping review.METHODS: This scoping review follows the guidelines of the PRISMA-ScR protocol (Tricco et al. 2018) Searches were done using a strategy that included MeSH terms and free text terms.DATA SOURCES: Data sources were PubMed, CINAHL, Psychinfo and Embase. Searches were done in October 2023 without any date restrictions.RESULTS: Eight articles were included in this review. Moral distress can impact the wellbeing of healthcare professionals. Influencing factors of moral distress of health care professionals appeared to be lack of resources, lack of communication and incongruence with colleagues. Strategies to cope with moral distress were talking about ethical issues with others, receiving support from colleagues and managers, and seeking support from outside the team or organization. Individual healthcare professionals relied on their personal characteristics or their professional identity and used rationalization, distancing themselves or acceptance of the situation to cope with their moral distress.CONCLUSION: Moral distress of healthcare professionals in long-term care settings appears not differently experienced than moral distress among healthcare professionals in other healthcare settings. This can be beneficial in learning from each other, but also raises the question whether moral distress is too broadly defined.IMPACT: This review addressed the scope and experiences of moral distress in long-term care settings. Future research can contribute to further insight into if and how specific features of long-term care are of influence on moral distress and formulate tailored strategies to lessen moral distress.REPORTING METHOD: PRISMA-ScR.</p
Bridging Knowledge Gaps: Advancing Cybersecurity Education via Absorptive Capacity & Collaboration
No full textThis work, based on my dissertation (Esmaili, 2024), investigates the growing knowledge gap between vocational cybersecurity education and the cybersecurity industry, driven by rapid technological advancements and the increasing demand for skilled professionals. This gap challenges educators’ ability to deliver current and relevant training, limiting their capacity to prepare students for the dynamic and evolving needs of the cybersecurity field (Yusuf, 2024). Absorptive capacity (ACAP)—the ability to recognize, assimilate, and apply external knowledge—serves as the conceptual framework to address this challenge.By integrating perspectives on absorptive capacity, knowledge creation, and collaboration, this study examines mechanisms that enhance effective learning within partnerships between vocational education programs and the cybersecurity industry. This research employs an action research methodology, structured across four iterative cycles: i) establishing partnerships, ii) implementing collaborative learning environments, iii) engaging educators as active learners, and iv) developing an innovation lab for knowledge co-creation. Data were collected through semi-structured interviews with educators, students, and cybersecurity professionals, and analyzed using open and axial coding to identify key themes and mechanisms.The findings show that trust-building, participatory decision-making, informal communication, and cross-functional activities are essential for strengthening educators’ ability to integrate new knowledge. Educators’ active involvement as learners proved crucial in bridging the knowledge gap and aligning curricula with the practical demands of the cybersecurity industry. The innovation lab emerged as a platform for knowledge co-creation, fostering meaningful collaboration between students, educators, and professionals.This research contributes to the literature by addressing gaps in ACAP implementation and emphasizing collaborative approaches to industry-education alignment. Key recommendations include promoting continuous professional development for educators, implementing co-creative learning models, and aligning cybersecurity education with industry needs to ensure future-proof training programs
Feasibility, Acceptability and Clinical Utility of the Bereavement and Grief Cultural Formulation Interview for Prolonged Grief Disorder
No full textProlonged grief disorder (PGD) is a new diagnostic category included in global diagnostic classification systems for mental disorders. However, PGD can only be diagnosed if the severity and duration exceed socio-cultural norms. Here, we present a new supplementary module to the DSM-5 Cultural Formulation Interview: the Bereavement and Grief Cultural Formulation Interview (BG-CFI). The BG-CFI was developed to help clinicians provide a culturally informed diagnosis and guide treatment planning.We investigated the feasibility, acceptability, and clinical utility of the BG-CFI. Two participant groups (11 refugees, asylum seekers or migrants experiencing bereavement and 3 clinicians) took part in the study and were interviewed using open-ended questions on measures of feasibility, acceptability, and clinical utility. A step-by-step procedure was followed: (1) Clinicians and/or researchers conducted the BG-CFI with participants; (2) Debriefing interviews were conducted separately with clinicians and with bereaved participants.The BG-CFI was found to be a feasible, acceptable, and clinically useful tool for both bereaved participants and clinicians. Where clinicians found the interview difficult to conduct (i.e. lack of conceptual clarity or triggering emotional distress) specific changes were made to the interview format such as prompts for further questioning or recommendations for withholding or adapting questions. The BG-CFI would offer a useful complement for a reliable assessment of PGD in clinical settings working with cultural incongruity.</p
Development of the Dutch Chaplaincy Outcome Measure
No full textOutcome research is becoming increasingly important in chaplaincy. However, current outcome measures rarely reflect outcomes reflecting chaplaincy goals. This limits the understanding of the effect of chaplaincy care. Therefore, we have developed the Dutch Chaplaincy Outcome Measure (NUGV). It uses a Q-methodology, comprising a two-step sorting task of 25 statements and a brief post-sorting interview. The statements relate to four goals of chaplaincy: worldview development, coping with life events and circumstances, relational affirmation, and transcendence and connectedness. The statements were derived from a literature review, interviews with 24 clients of chaplaincy in primary, outpatient, or community care, and eight focus groups with clients, chaplaincy, and other professionals in primary, outpatient, or community care. Acceptability, clarity, and (face) validity were examined with a client council, in a workshop, and through two pilot studies. They were found to be satisfactory. Thus, the NUGV seems to be a promising instrument for outcome assessment in chaplaincy. More research is needed on the construct validity and specificity of the outcomes, as well as the use of the instrument in inpatient settings and among people with lower language and cognitive capabilities. We recommend that researchers administer the NUGV in person, to enable more support during the sorting task and to facilitate richer data in the post-sorting interview
Navigating life when a loved one's (euthanasia) death is near:A narrative interview study from the Netherlands
No full textIn this article, we describe our empirical research that started out as an exploration of "family involvement" in the Dutch practice of euthanasia, in the broader context of end-of-life decision-making and care under guidance of GPs in the home-setting. Informed by care-ethical insights and narrative approaches to qualitative research, we performed an in-depth interview study with 18 close relatives of people with incurable metastasized cancer (9 prospective, 9 retrospective). We came to understand how relatives' involvement-not only in euthanasia but in any mode of dying-cannot be separated from relatives' efforts to navigate through many dimensions of life when the death of loved one is near. Relatives have to navigate different spaces, decision-dynamics and the unfolding of professional care, strong emotional experiences, and intimate relationships ("the I-you-we"). This study brought to the fore that relatives and patients first and foremost accompany each other on this journey. The role of the GP can be valuable but vulnerable, and relatives' broader social network and other professionals can be of enormous importance. The results of this study invited us to shift our perspective: it is not family members who get involved in euthanasia as a primarily medical affair. Instead, medical professionals are taking part in the profoundly social-relational experience of death and dying within families, whether that entails euthanasia or not. With this shift of perspective, specific practical and ethical questions start to receive more attention, for example questions about the available support for both patients and relatives regardless of the mode of dying.</p
Unveiling life stories about social justice for individuals with intellectual disabilities:A case study of Nazi’s eugenic practices
No full textThis paper unveils the story of Wilhelm, an individual with intellectual and physical disabilities in the context of eugenics practices during the Nazi regime. The findings of the singular case study are presented in a storytelling format, for contextual understanding, and to help everyone better comprehend the challenges faced by individuals with intellectual disabilities. Wilhelm’s story has been discussed through the lens of social justice shaping his world into one in which violence was justifiable. Lessons have been drawn to advocate for ongoing evaluation of social justice concepts, guided by criteria that reflect the realities and voices of the individuals involved. Additionally, we seek to enhance possibilities to unveil stories and honor the memory of individuals with intellectual disabilities who endured the atrocities of the Nazi era