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Dealing with uncertainty: a care-ethical, phenomenological study of people with relapsing-remitting Multiple Sclerosis (2021-2024)
No full textThis dataverse includes the data collected for the study "Dealing with uncertainty: a care-ethical, phenomenological study of people with relapsing-remitting Multiple Sclerosis". The aim of the study was to understand how people with relapsing-remitting Multiple Sclerosis (RRMS) experience uncertainty and how the phenomenon of uncertainty appears in Dutch healthcare practice surrounding the care for people with RRMS. 17 people with a recent diagnosis of RRMS were interviewed about their experiences with uncertainty (2021-2022). 15 of them were prospectively followed and observed during hospital appointments (2021-2024). At this point, the anonymized interview transcripts are available and can be accessed upon request
Revisiting the Formosan Encounter:how the Dutch-Formosan religious imagination informs contemporary Taiwanese citizenship
No full textThe Dutch East India Company encountered in 17th Century "Formosa" (Taiwan) an indigenous population whose religious practices were not yet influenced by either Christianity or Buddhism. In this paper, I will explore how the encounter between Dutch protestant missionaries and local indigenous religious practices shaped the foundation for a hybrid Dutch-indigenous Taiwanese culture and its influence on contemporary citizenship. I will do this by reviewing the literature of the "Formosan Encounter", reports of Dutch missionaries and East India Company personnel on indigenous Formosan religious practices. Secondly, I provide some case studies from fieldwork in Taiwan on the legacy of Dutch colonialism in indigenous Taiwanese folklore
Afsluiten achterdeur in thuissituatie
No full textIn dit artikel wordt ingegaan op de casus van meneer De Vries, 87 jaar. Meneer De Vries woont thuis en krijgt hulp van een thuiszorgmedewerker. Hij wil graag dat de medewerker de achterdeur op slot draait bij vertrek en de sleutel in het sleutelkastje opbergt. De thuiszorgmedewerker doet dit niet, omdat dit volgens haar niet zomaar mag. Hoe zit dit precies en wat zegt de Wet zorg en dwang hierover
The role of senior researchers in promoting good science: Obstacles and enablers. :[version 2]
No full textThis essay examines senior researchers’ professional responsibilities in fostering ethical research practices within their teams, as outlined in the ALLEA European Code of Conduct for Research Integrity. Senior researchers have an important role in preventing research misconduct and promoting a supportive academic environment. However, pressures within academia - particularly the ‘publish or perish’ culture - can lead to stress and potentially unethical practices, including power misuse, exploitation, and neglect of supervisory responsibilities. This essay explores the challenges senior researchers face in fulfilling their responsibilities and highlights a ‘slow science’ approach and targeted training to prioritize quality over quantity and to promote better supervision practices
Whose Gold is This?:Challenging Exclusion in Restitution, Towards a Social Analysis of Provenance
No full textThe restitution of material objects has become central for engaging with past injustices in post-conflict situations. Thereby, restitution is increasingly attributed a transformative potential to enable dialogues between different victim and perpetrator groups in the aftermath of mass violence. In both, National Socialist and colonial contexts, most objects that are returned are considered ‘valuable’ or ‘meaningful’ in dominant financial, artistic or cultural terms. Historically, these ‘valuable’ objects have left more archival traces leading to memorialization and restitution requests. Conversely, objects of alternative value, belonging to marginalized groups or appreciated in different value regimes (for instance economic objects, everyday objects, mineralogical samples) have left less extensive archival records, are less vividly remembered and are often overlooked for restitution. This focus on objects of a dominant value poses a fundamental challenge to restitution: how do the objects that are returned shape our social understandings of victim groups? How can marginalized groups become part of the dialogues that restitution envisions? We devote attention to these questions from a ‘social provenance research’ perspective to contemplate challenges of exclusion and different value systems for restitution processes and researchers. We explore a more socially differentiated understanding of restitution as a justice mechanism that not only shapes present perceptions of historical injustices but is itself also influenced by processes of selection and exclusion
Does Dyadic Gratitude Make Sense? The Lived Experience and Conceptual Delineation of Gratitude in Absence of a Benefactor
No full textIn this paper we defend the idea that dyadic gratitude — i.e. gratitude in absence of a benefactor — is a coherent concept. Some authors claim that ‘gratitude’ is by definition a triadic concept involving a beneficiary who is grateful for a benefit to a benefactor. These authors state that people who use the term gratitude in absence of a benefactor do so inappropriately, e.g. by using it as an interchangeable term for ‘appreciation’ or ‘being glad’. We believe that the conceptual analyses which underlie such statements are too strongly focused on language and pay insufficient attention to the lived experience of gratitude. Thus, we have conducted a phenomenological analysis of several experiences in which people report feeling gratitude in absence of a benefactor. Informed by our phenomenological findings, we argue that dyadic gratitude is a coherent concept that shares certain core experiential elements with triadic gratitude. Gratitude is an appreciative response that construes its object as a gratuitous good and as a (metaphorical) gift; it is characterised by a receptive-appreciative attitude, an awareness that we are in some sense dependent on something other than ourselves, and a motivational impetus to promote, celebrate and/or radiate goodness. Finally, we argue that dyadic gratitude is a useful concept because it enables us to think and communicate effectively about a set of experiences. Moreover, it is also a scientifically and philosophically relevant concept, since it seems to be associated with various positive psychosocial effects and might even be developed as a virtuous disposition
Does Dyadic Gratitude Make Sense? The Lived Experience and Conceptual Delineation of Gratitude in Absence of a Benefactor
Get PDFIn this paper we defend the idea that dyadic gratitude — i.e. gratitude in absence of a benefactor — is a coherent concept. Some authors claim that ‘gratitude’ is by definition a triadic concept involving a beneficiary who is grateful for a benefit to a benefactor. These authors state that people who use the term gratitude in absence of a benefactor do so inappropriately, e.g. by using it as an interchangeable term for ‘appreciation’ or ‘being glad’. We believe that the conceptual analyses which underlie such statements are too strongly focused on language and pay insufficient attention to the lived experience of gratitude. Thus, we have conducted a phenomenological analysis of several experiences in which people report feeling gratitude in absence of a benefactor. Informed by our phenomenological findings, we argue that dyadic gratitude is a coherent concept that shares certain core experiential elements with triadic gratitude. Gratitude is an appreciative response that construes its object as a gratuitous good and as a (metaphorical) gift; it is characterised by a receptive-appreciative attitude, an awareness that we are in some sense dependent on something other than ourselves, and a motivational impetus to promote, celebrate and/or radiate goodness. Finally, we argue that dyadic gratitude is a useful concept because it enables us to think and communicate effectively about a set of experiences. Moreover, it is also a scientifically and philosophically relevant concept, since it seems to be associated with various positive psychosocial effects and might even be developed as a virtuous disposition
