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Experiences of Treatment-Seeking Children and Young People Following Parental Intimate Partner Homicide
No full textThe Impact of Relocations Within Nursing Home Care on Long-Term Care Residents According to Stakeholders:A Qualitative Study
No full textINTRODUCTION: Nursing home residents can be faced with relocations within nursing home care for various reasons, whether individual or per group. We aimed to collect a broad stakeholder overview of observed and experienced impacts on residents and aspects that influence the impact.METHODS: We conducted a qualitative study using semistructured interviews followed by one focus group. We recruited participants from various stakeholder perspectives based on differences in roles while having an interest or involvement in relocations, and experience with relocations. The interviews and focus group were audiorecorded, transcribed verbatim and analysed using responsive and thematic analysis.RESULTS: In 17 interviews including one duo interview, participants described the impact on residents varying from very positive to very negative. In addition, stakeholders addressed differences in impact related to the relocation phase (before, during, after). Aspects influencing the impact of relocations were (1) mental resilience of residents, (2) organisation of relocations, (3) social connections of residents, and (4) the new (care) environment. The focus group with six participants added further insights in the subtheme 'organisation of relocations', emphasising the importance of clear and timely communication with residents and relatives and recognizability of (personal) items and professional caregivers from the former nursing home.CONCLUSION: Stakeholders described the impact of relocations within nursing homes to vary between and within nursing home residents. Aspects they identified to influence this impact provide incentives to reduce the negative impact on residents and foster positive impact. Further research needs to zoom-in on the perceived impact of relocations within nursing homes of residents themselves.</p
The spiritual care intervention “In dialogue with your life story”: Results of a longitudinal study on palliative clients’ spiritual wellbeing
No full textBackground: Spiritual care is important for palliative care, but the evidence base for spiritual care provision is low.Aim:To investigate the course over time of clients’ spiritual wellbeing who participated in the spiritual care intervention “In dialogue with your life story.”Design: The intervention consisted of six individual sessions between client and chaplain of various faiths. A longitudinal study was conducted pre- and post-intervention, and a follow-up approximately 10 weeks after post-intervention. Spiritual wellbeing was measured using the EORTC QLQ-SWB32 and NEIS, and symptoms of anxiety and depression as secondary outcome measure using the HADS. Latent growth modeling was used to investigate changes in outcome measures over time.Setting/Participants: Adult clients receiving home-based, palliative care were eligible to participate in this study.Results: A total of 75 clients and 33 chaplains participated. On the four EORTC QLQ-SWQ32-subscales, a significant increase was found over time on “relationship with self,” “relationship with others,” and ‘“existential wellbeing” (linear trends). “Relationship with someone or something greater” significantly increased over time but decreased 10 weeks post-intervention (quadratic trend). On the two NEIS-subscales, ego-integrity significantly increased over time (linear trend), while despair significantly decreased (quadratic trend). On the two HADS-subscales, symptoms of anxiety significantly decreased over time (linear trend). No significant change was found for depressive symptoms.Conclusions: We provided first empirical evidence for an increase in clients’ spiritual wellbeing after enrollment in the spiritual care intervention “In dialogue with your life story.” Future research using control conditions is needed to investigate its causal effect
Gender Equality and Life Satisfaction:A Mediation Model with Individual Autonomy, Income Per Capita and Trust
No full textGender equality has been found to positively affect life satisfaction. However, the reason why gender equality affects life satisfaction remains relatively unexplored. In this paper, we hypothesize three mediators for this relationship: individual autonomy, income per capita, and generalized trust. All three variables have been found to positively affect life satisfaction. We argue that each mediator may, in turn, depend positively on gender equality, suggesting that individual autonomy, income per capita, and generalized trust positively mediate the relationship between gender equality and life satisfaction. Using a sample of 81 countries from 1990 to 2020, we find that individual autonomy and income per capita are important channels that together explain 98% of the total relationship between gender equality and life satisfaction. While the mediation effect of individual autonomy is robust, the significance of income per capita is less consistent when using alternative estimation techniques. For generalized trust we do not find evidence of mediation
Finding the Truth but Ending the Conversation?:How the Dutch Court Cases on the Srebrenica Genocide Shaped the Space for Reparation
No full textDue to the presence of Dutchbat troops in July 1995, when over 8000 Bosniaks were killed, the Srebrenica genocide became a shared Bosnian-Dutch history. This chapter explores how civil court cases (Nuhanović; Mustafić; Mothers of Srebrenica) by survivors and relatives shaped the space for reparation in the Netherlands. Departing from a sociological definition of genocide, this chapter arrives at a similarly broad and transformative conceptualisation of reparation as a spectrum (based on Lisa Laplante (Laplante, Cornell International Law Journal 48:513–578, 2015)). While court cases themselves can only be expected to address the narrow, left side of the reparation spectrum, their contributions to fact-finding and the conversation on responsibility can form the basis for a larger, politics- and society-driven reparation process. The chapter thus starts by studying plaintiffs’ lived experiences of the court procedures vis-à-vis their needs and aims. While recognizing several instances of delay and denial, we acknowledge that the legal narratives and outcomes held significant reparation potential. However, studying the political and societal responses to the court cases, the chapter argues that this potential did not materialize. Most importantly, the political and societal emphasis is still on Dutchbat rather than on the Bosniak stories, thus blocking restorative and civic reparation. Therefore, we present initiatives by the Bosnian-Dutch community as ‘interventions’ in this stalling process. These initiatives re-imagine what reparation can be. We conclude that, through them, Dutch politics and society are given another chance to contribute to inclusive and transformative reparation for the shared history of the Srebrenica genocide
Lived Experiences of Public Disability Representations: AScoping Review
No full textResearch has largely focussed on public perceptions of people with disabilities, particularly in the media. However, there is a lack of studies exploring how individuals with disabilities themselves experience public disability representation. This scoping review examines the lived experiences of individuals with disabilities regarding such representations. Eligible studies were peer-reviewed, published between January 1948 and July 2024, and presented qualitative findings on experienced public disability representation. A systematic search was conducted across PubMed, Scopus, ProQuest, OVID, EBSCO, and Webof Science using variations of the terms ’representation’ and ‘disability’, yielding 32 relevant studies. Data were analysed using both deductive and inductive methods. Deductive thematic analysis aligned the findings with two established media disability representation typologies: traditional and contemporary. Inductive thematic analysis identified three key themes—ignorance, incapability, and otherness—that illustrate how individuals with disabilities experience public representations. Overall, the review found that despite the absence of comparative studies, individuals with diverse disabilities report similar, predominantly negative experiences of public disability representation. Future studies should adopt an intersectional, cross-disability framework to better capture the experiences of people with disabilities, including those with intellectual disabilities.Research has largely focussed on public perceptions of people with disabilities, particularly in the media. However, there is a lack of studies exploring how individuals with disabilities themselves experience public disability representation. This scoping review examines the lived experiences of individuals with disabilities regarding such representations. Eligible studies were peer-reviewed, published between January 1948 and July 2024, and presented qualitative findings on experienced public disability representation. A systematic search was conducted across PubMed, Scopus, ProQuest, OVID, EBSCO, and Web of Science using variations of the terms ’representation’ and ‘disability’, yielding 32 relevant studies. Data were analysed using both deductive and inductive methods. Deductive thematic analysis aligned the findings with two established media disability representation typologies: traditional and contemporary. Inductive thematic analysis identified three key themes—ignorance, incapability, and otherness—that illustrate how individuals with disabilities experience public representations. Overall, the review found that despite the absence of comparative studies, individuals with diverse disabilities report similar, predominantly negative experiences of public disability representation. Future studies should adopt an intersectional, cross-disability framework to better capture the experiences of people with disabilities, including those with intellectual disabilities
Validating the socio-spiritual items of the Utrecht Symptom Diary-4 Dimensional:Content and construct validity
No full textBACKGROUND: The Utrecht Symptom Diary-4 Dimensional (USD-4D) is a multidimensional Patient-Reported Outcome Measure to monitor symptoms and needs and increase patients' self-efficacy. Assessing the content and construct validity of the USD-4D ensures it accurately measures the intended construct and is contextually relevant.AIMS: This study aimed to assess the content and construct validity of the socio-spiritual items of the USD-4D in a population of Dutch patients in the palliative phase of their illness.DESIGN: A multiple method study was performed consisting of a cross-sectional survey and an observational cohort study.PARTICIPANTS: The study population consisted of (a) healthcare providers working with patients in the palliative phase and (b) a cohort of patients with a life limiting illness in all settings supplemented by a cohort of hospice patients.RESULTS: At least 80% of participants positively assessed the items comprehensibility and relevance. About half of the respondents indicated that certain items are missing from the USD-4D. A qualitative analysis of missing topics revealed either topics for monitoring over time or topics underlying the constructs included. For every item, at least 75% of hypotheses were confirmed. One hypothesis for the item "I can let my loved ones go" was rejected.CONCLUSIONS: This study confirmed the content and construct validity on the socio-spiritual items of the USD-4D. Hence, the USD-4D is a validated PROM suitable to be structurally used in clinical palliative care to signal, monitor and to go into dialogue about social and spiritual aspects of patients' values, wishes, and needs.</p
