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Feasibility, Acceptability and Clinical Utility of the Bereavement and Grief Cultural Formulation Interview for Prolonged Grief Disorder
No full textProlonged grief disorder (PGD) is a new diagnostic category included in global diagnostic classification systems for mental disorders. However, PGD can only be diagnosed if the severity and duration exceed socio-cultural norms. Here, we present a new supplementary module to the DSM-5 Cultural Formulation Interview: the Bereavement and Grief Cultural Formulation Interview (BG-CFI). The BG-CFI was developed to help clinicians provide a culturally informed diagnosis and guide treatment planning.We investigated the feasibility, acceptability, and clinical utility of the BG-CFI. Two participant groups (11 refugees, asylum seekers or migrants experiencing bereavement and 3 clinicians) took part in the study and were interviewed using open-ended questions on measures of feasibility, acceptability, and clinical utility. A step-by-step procedure was followed: (1) Clinicians and/or researchers conducted the BG-CFI with participants; (2) Debriefing interviews were conducted separately with clinicians and with bereaved participants.The BG-CFI was found to be a feasible, acceptable, and clinically useful tool for both bereaved participants and clinicians. Where clinicians found the interview difficult to conduct (i.e. lack of conceptual clarity or triggering emotional distress) specific changes were made to the interview format such as prompts for further questioning or recommendations for withholding or adapting questions. The BG-CFI would offer a useful complement for a reliable assessment of PGD in clinical settings working with cultural incongruity.</p
Piet & Soya: A Queer Interspecies Encounter
No full textPiet & Soya harnesses the power of queer imagination to reveal something profoundly real about the world we share. This collaborative project brings together human and nonhuman actors—Soya the Cow (Daniel), an intersex bull (Piet), a cow linguist (Leonie), and a queer theorist (Louis)—to tell a story of resistance, fluidity, and multispecies kinship. Through this lens, the film challenges gender norms and extractive human-cow relations, reimagining intimacy and care beyond fixed human binaries and oppressive hierarchies
Restitution as Restoration and Transformation
No full textThis entry explores restitution as a dual concept that is both past-oriented and restorative, as well as future-oriented and transformative. It connects restitution to restorative and transformative paradigms of transitional justice–the movement that studies the long-term effects of past injustices and the instruments addressing them. Connecting the duality of restitution to transitional justice paradigms helps to better understand restitution as a complex concept that is not only defined by injustices in the past but by socio-political structures in the present.The entry begins with studying how restorative and transformative notions are entangled in restitution contexts of both the Second World War and colonialism. Restitution as restoration here means the attempt to reconstruct pre-loot realities; restitution as transformation means a focus on the enduring legacies of mass violence today and the establishment of new relations. Then, the entry connects these perceptions of restitution with restorative and transformative paradigms in transitional justice. Finally, the entry reflects on how a transitional justice perspective on restitution can help to enhance understandings of the everchanging meanings of the past in the present
Lived Experiences of Public Disability Representations: AScoping Review
No full textResearch has largely focussed on public perceptions of people with disabilities, particularly in the media. However, there is a lack of studies exploring how individuals with disabilities themselves experience public disability representation. This scoping review examines the lived experiences of individuals with disabilities regarding such representations. Eligible studies were peer-reviewed, published between January 1948 and July 2024, and presented qualitative findings on experienced public disability representation. A systematic search was conducted across PubMed, Scopus, ProQuest, OVID, EBSCO, and Webof Science using variations of the terms ’representation’ and ‘disability’, yielding 32 relevant studies. Data were analysed using both deductive and inductive methods. Deductive thematic analysis aligned the findings with two established media disability representation typologies: traditional and contemporary. Inductive thematic analysis identified three key themes—ignorance, incapability, and otherness—that illustrate how individuals with disabilities experience public representations. Overall, the review found that despite the absence of comparative studies, individuals with diverse disabilities report similar, predominantly negative experiences of public disability representation. Future studies should adopt an intersectional, cross-disability framework to better capture the experiences of people with disabilities, including those with intellectual disabilities.Research has largely focussed on public perceptions of people with disabilities, particularly in the media. However, there is a lack of studies exploring how individuals with disabilities themselves experience public disability representation. This scoping review examines the lived experiences of individuals with disabilities regarding such representations. Eligible studies were peer-reviewed, published between January 1948 and July 2024, and presented qualitative findings on experienced public disability representation. A systematic search was conducted across PubMed, Scopus, ProQuest, OVID, EBSCO, and Web of Science using variations of the terms ’representation’ and ‘disability’, yielding 32 relevant studies. Data were analysed using both deductive and inductive methods. Deductive thematic analysis aligned the findings with two established media disability representation typologies: traditional and contemporary. Inductive thematic analysis identified three key themes—ignorance, incapability, and otherness—that illustrate how individuals with disabilities experience public representations. Overall, the review found that despite the absence of comparative studies, individuals with diverse disabilities report similar, predominantly negative experiences of public disability representation. Future studies should adopt an intersectional, cross-disability framework to better capture the experiences of people with disabilities, including those with intellectual disabilities
Development of the Dutch Chaplaincy Outcome Measure
No full textOutcome research is becoming increasingly important in chaplaincy. However, current outcome measures rarely reflect outcomes reflecting chaplaincy goals. This limits the understanding of the effect of chaplaincy care. Therefore, we have developed the Dutch Chaplaincy Outcome Measure (NUGV). It uses a Q-methodology, comprising a two-step sorting task of 25 statements and a brief post-sorting interview. The statements relate to four goals of chaplaincy: worldview development, coping with life events and circumstances, relational affirmation, and transcendence and connectedness. The statements were derived from a literature review, interviews with 24 clients of chaplaincy in primary, outpatient, or community care, and eight focus groups with clients, chaplaincy, and other professionals in primary, outpatient, or community care. Acceptability, clarity, and (face) validity were examined with a client council, in a workshop, and through two pilot studies. They were found to be satisfactory. Thus, the NUGV seems to be a promising instrument for outcome assessment in chaplaincy. More research is needed on the construct validity and specificity of the outcomes, as well as the use of the instrument in inpatient settings and among people with lower language and cognitive capabilities. We recommend that researchers administer the NUGV in person, to enable more support during the sorting task and to facilitate richer data in the post-sorting interview
“Ze is nooit weg uit mijn leven, ook al is ze er niet meer”:Een persoonlijk verhaal over partnerverlies en veerkracht als proces
No full textGoede zorg aan vrouwen met migratieachtergrond:Dilemma's rondom vrijheidsinperking, gender en cultuur
No full textVrouwen met een niet-westerse migratieachtergrond kunnen in Nederland door hun omgeving ernstig worden ingeperkt in hun vrijheid. Sommigen krijgen bijvoorbeeld te maken met huwelijksdwang of huiselijk en eergerelateerd geweld. Ze kunnen er aanhoudende fysieke en psychische klachten door ontwikkelen. Hoe geef je als hulp- of zorgverlener goede zorg aan deze vrouwen?Goede zorg aan vrouwen met migratieachtergrond helpt je een open blik te ontwikkelen op situaties van vrijheidsinperking en dwang, en leert je hoe je de autonomie van je patiënt of cliënt kunt ondersteunen door samen nieuwe mogelijkheden te onderzoeken. We bespreken niet alleen casussen uit de beroepspraktijk, maar ook de verhalen van vrouwen zelf over hoe zij leven met vrijheidsinperking, gender en cultuur. Pas als je hun geleefde ervaringen, dilemma’s en leefwereld kent, kan je samen het gesprek en handelen goed vormgeven. In dit boek ontdek je gaandeweg dat verbeeldingskracht, zowel van professionals als van vrouwen, een sleutel kan zijn waarmee vrouwen meer zeggenschap krijgen over hun leven.Dit boek is bedoeld voor (aankomende) hulp- en zorgverleners zoals sociaal werkers, huisartsen, psychologen en schooldecanen die met deze problematiek te maken krijgen of er meer over willen leren. Maar het zal ook anderen die geïnteresseerd zijn in vraagstukken rond autonomie, vrijheidsinperking en dwang aanspreken
