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Cross-national analysis of the prevalence of prolonged grief disorder
No full textBackground: Prolonged grief disorder (PGD) is now included as a diagnosis in international classification systems. Most research on PGD is based on Western populations, but first data from non-Western countries have recently become available. Little is still known about country-related effects on PGD's prevalence. Objective: Determining possible causes of variations in the prevalence of PGD as defined by DSM-5-TR and ICD-11 within and between countries. Methods: We retrieved data from 24 prevalence studies, the World Bank and the 2022 World Risk Report. Negative binomial regressions were used to explore methodological, loss-related and country context characteristics as predictors of PGD. The average rate of PGD was calculated using random effects models. Results: The included studies comprised 34 samples from 16 countries (20,347 participants). Non-probability sampling and older mean age of the sample as well as lower country vulnerability were associated with higher PGD rates. The average PGD prevalence was 13 % (95 % CI [11, 22]), varying from 5 % (95 % CI [3, 11]) in probability to 16 % (95 % CI [13, 25]) in non-probability samples. Limitations: Samples from Europe and North America were overrepresented. For about half of the countries, data were available from only one sample. Conclusions: While confirming the importance of studies' methodological quality, the results show that PGD is of public health relevance around the world, but especially common in less vulnerabled countries with better access to daily necessities and healthcare services, highlighting sociocultural impacts on grief processing. Further investigations of cross-national differences are needed
Gathering data on meaning-in-life among older people:Two explorative approaches
No full textWander van der Vaart and Pien Bos conclude this volume with a methodological reflection on research into meaningful aging. Using Derkx’s seven needs framework, they explore two methodological approaches toward collecting data on “meaning in life”: a sociological, semi-structured, basically deductive approach and an anthropological, unstructured, inductive approach. The first approach involved semi-structured (focus group) interviews with residents, health care staff, and clients’/residents’ councils of two long-term care organizations for older adults. The second approach involved analyzing life histories that were collected among religious, rural community dwellers. Van der Vaart and Bos discuss possible explanations of the contradictory outcomes, focusing on study design and population differences. Lessons are drawn about tailoring methods to vulnerable, older people aiming to obtain valid data on their perceptions and experiences of meaning in life. They describe the advantages and disadvantages of the two approaches and conclude that, even when tailoring data collection to a particular population or setting, each approach defines what may count as valid data on meaning in life
“That We Get More Trust, We Just Want So Much More”:Professional Attitudes and Children’s Practices Enhancing Risky Play: Towards a Model of Influencing Factors
Get PDFGerotranscendence as a Life Perspective Among Nursing Home Residents:A Qualitative Study Into Positive Ageing While Dependent on 24/7 Care
No full textAimsTo examine whether and how older nursing home residents recognise characteristics of gerotranscendence, and to contribute to a critical and comprehensive view of gerotranscendence in this particular group.BackgroundGerotranscendence is a psychosocial, spiritual development theory within the field of positive ageing that represents: a shift in meta-perspective, from a materialistic and rational vision to a cosmic and transcendent life perspective, followed by an increase in life satisfaction.DesignA qualitative study using a narrative hermeneutical approach.MethodsParticipants were 20 residents of a nursing home in the Netherlands, aged 77 to 105 (mean age: 90). The semi-structured interviews, conducted in April 2023, were based on Tornstam's 10-item Gerotranscendence Scale. Special attention was paid to the technique of interviewing these frail, older adults, some of them diagnosed with dementia.FindingsAll respondents recognised several characteristics of gerotranscendence, or signs of it emerged from the research data. There is a larger middle group with respondents who call themselves ‘down-to-earth’. They mainly recognise the relational characteristics. Another group appears to be more contemplative and shows more affinity with the abstract, cosmic characteristics. They have developed a gerotranscendent wisdom: there is insight, contextualism and relativism, peace of mind, room for life's paradoxes, a high degree of (self-)acceptance and an ability to ‘let go’. The data show considerable heterogeneity in thoughts, perspectives and degrees of gerotranscendence.DiscussionRespondents found some questions difficult to answer, resulting in a critical assessment of how to understand the responses given. This puts pressure on data quality for this current study and for critical gerotranscendence research in general. Furthermore, interviewing older nursing home residents requires a custom setting and possibly a new interview methodology
D2.2. Report on the results of the BEYOND public consultation.
No full textTo explore and integrate public and stakeholder views on research ethics, research integrity and research misconduct, BEYOND organised a bottom-up and solution-oriented public consultation on research ethics/ research integrity needs, knowledge, perspectives and real-life experiences of research misconduct and on the efficacy of RE/RI interventions. The results of the public consultation will be used for co-creation of a best practice manual, guidelines to supplement standard operating procedures, and roadmap to 2030
"I have some wishes, which are actually demands.”:A qualitative mixed methods study on the impact of consumerism on the therapeutic relationship in mental healthcare
No full textIntroduction: Alongside the logic of care, many Western welfare states have introduced market elements or a logic of choice in their healthcare systems, which has led to consumerist behavior in patients. For the medical field, it is well documented how consumerism creates complex ethical dilemmas and undermines ways of thinking and acting crucial to healthcare. Little is known about these dynamics in mental healthcare.Methods: This study used a qualitative mixed methods design, combining 180 online patient narratives (blogs) with 25 interviews with therapists in a grounded theory approach.Results: Findings show that articulate behavior can be divided into two categories: assertive and adamant. While assertive behavior is understood as an integral, reciprocal part of therapy and is stimulated by therapists, adamant or consumerist behavior is experienced as damaging the relationship—the “commodity” the patient is seeking to obtain, as the single most important predictor of treatment success. Findings also show that articulate behavior in both varieties takes a different shape over time during the course of treatment.Discussion: Adamant behavior clashes with the internal logic of care, which is especially problematic in mental healthcare where the relationship with one's therapist is key to successful treatment. Therefore, patients should be taught and helped to display assertive behavior without resorting to adamancy. Individual therapists cannot achieve this alone; this endeavour should be supported by their organizations, societal beliefs about therapy and policy choices
Social workers and generative practices for the inclusion of people with intellectual disabilities
No full textSummaryIncited by the United Nations adoption and ratification of the UN Convention on the Rights of Persons with Disabilities, social workers are prompted to increasingly pursue an inclusion-focused approach. Our research was carried out in the Netherlands and sought to identify social work practices conducive to fostering social inclusion, in this case with respect to adults with mild intellectual disabilities. For 2½ years, a responsive methodology was employed in a combined action and social design research. Sixteen social workers and five people with intellectual disabilities were involved. The study was conducted in three different settings across the Netherlands, both rural and urban.FindingsThree social work practices were captured that generate social inclusion: agency, advocacy, and intrapreneurship.ApplicationsIdentification of generative practices provides guidance to social workers in shaping the promotion of social inclusion. It provides guidance in reflecting on past and current inclusion-focused social work performance, it may encourage social workers to adopt inclusion-focused pathways inspired by agency, advocacy and intrapreneurship, and knowledge of generative practices toward social inclusion can help to specify social workers’ competencies
Distress among healthcare providers who provided end-of-life care during the COVID-19 pandemic:a longitudinal survey study (the CO-LIVE study)
No full textIntroductionThe COVID-19 pandemic had a significant impact on care at the end-of-life due to restrictions and other circumstances such as high workload and uncertainty about the disease. The objective of this study is to describe the degree of various signs experienced by healthcare providers throughout the first 18 months of the pandemic and to assess what provider’s characteristics and care circumstances related to COVID-19 are associated with distress.MethodsA longitudinal survey study among healthcare providers from different healthcare settings who provided end-of-life care during the pandemic’s first 18 months. Data of four time periods were analyzed using descriptive statistics, logistic regression analysis and Generalized Estimating Equation.ResultsOf the respondents (n=302) the majority had a nursing background (71.8%) and most worked in a hospital (30.3%). Although reported distress was highest in the first period, during the first wave of COVID-19 pandemic, healthcare providers reported signs of distress in all four time periods. Being more stressed than usual and being regularly exhausted were the most common signs of distress. Healthcare providers working in nursing homes and hospitals were more likely to experience signs of distress, compared to healthcare providers working in hospice facilities, during the whole period of 1.5 years. When HCPs were restricted in providing post-death care, they were more likely to feel more stressed than usual and find their work more often emotionally demanding.ConclusionA substantial amount of healthcare providers reported signs of distress during the first 1.5 years of the COVID-19 pandemic. A cause of distress appears to be that healthcare providers cannot provide the care they desire due the pandemic. Even though the pandemic is over, this remains an important and relevant finding, as high workload can sometimes force healthcare providers to make choices about how they provide care. Given that this can cause prolonged stress and this can lead to burnout (and HCPs leaving their current positions), it is now especially important to continue observing the long term developments of the well-being of our healthcare providers in palliative care and provide timely and adequate support where needed
“I like it when you feel you can discuss things”::A qualitative study on sharing medical care for children with profound intellectual and multiple disabilities.
No full textIn the Netherlands, many parents of children with profound intellectual and multiple disabilities care for their children at home. Little is known about how parents and involved healthcare professionals share and align medical care for these children. This study aims to contribute to a better understanding of the dimensions that affect how medical care is shared and how healthcare professionals can align care with family needs. The study design was inspired by grounded theory. We analyzed in-depth interviews with 25 Dutch parents. The analysis identified five dimensions affecting how parents and professionals shared and aligned medical care: fragility, planned care, irregularities, interactions with providers, and parents’ choices. We recognized three distinctive ways these dimensions interplayed, characterizing scenarios of sharing care: dependent care, dialogical care, and autonomous care. The findings illuminated that parental distress decreased when parents could communicate about what they considered important for their child and family and its implications for sharing care. Parents developed their capacity to manage medical care and often evolved in their thinking about the quality of care and life. Sometimes this evolution was due to struggles with the care provided by professionals. Therefore, healthcare professionals may need to broaden the relational work of shared decision-making to include the sharing of medical care. Arrangements need to be continually reassessed as changes in the child’s and family’s situation trigger changes in preferred patterns of sharing care. Commitment to parents’ autonomy implies that healthcare professionals should be attentive to the parents’ emotional and relational needs
"Educating children to follow the voice of their conscience" - a comparative study of the Dutch educationalists Philipp Abraham Kohnstamm (1875-1951) and Martinus Jan Langeveld (1905-1989) within the context of early twentieth-century Europe
No full textTwo of the greatest Dutch educationalists of the twentieth century, Philipp Abraham Kohnstamm (1875–1951) and Martinus Jan Langeveld (1905–1989), believed that education meant, above all, the formation of a conscience. They developed their ideas in a time full of developments within Europe: the rise of fascism, two world wars, and pioneering theories on human development by Charles Darwin (1809–1882) and Sigmund Freud (1856–1939), among others. Kohnstamm’s and Langeveld’s educational theories were also influenced, to a greater or lesser extent, by optimistic ideas about the spontaneous development of the child and the unique personality of humankind, as expressed in movements such as New Education, New Psychology, and the philosophy of Henri Bergson (1859–1941). This article aims to compare these two Dutch educationalists on conscience formation to contextualise their differences and similarities and subsequently understand them within European developments, such as New Psychology, and specifically the Dutch context of the twentieth century