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Distress among healthcare providers who provided end-of-life care during the COVID-19 pandemic:a longitudinal survey study (the CO-LIVE study)
No full textIntroductionThe COVID-19 pandemic had a significant impact on care at the end-of-life due to restrictions and other circumstances such as high workload and uncertainty about the disease. The objective of this study is to describe the degree of various signs experienced by healthcare providers throughout the first 18 months of the pandemic and to assess what provider’s characteristics and care circumstances related to COVID-19 are associated with distress.MethodsA longitudinal survey study among healthcare providers from different healthcare settings who provided end-of-life care during the pandemic’s first 18 months. Data of four time periods were analyzed using descriptive statistics, logistic regression analysis and Generalized Estimating Equation.ResultsOf the respondents (n=302) the majority had a nursing background (71.8%) and most worked in a hospital (30.3%). Although reported distress was highest in the first period, during the first wave of COVID-19 pandemic, healthcare providers reported signs of distress in all four time periods. Being more stressed than usual and being regularly exhausted were the most common signs of distress. Healthcare providers working in nursing homes and hospitals were more likely to experience signs of distress, compared to healthcare providers working in hospice facilities, during the whole period of 1.5 years. When HCPs were restricted in providing post-death care, they were more likely to feel more stressed than usual and find their work more often emotionally demanding.ConclusionA substantial amount of healthcare providers reported signs of distress during the first 1.5 years of the COVID-19 pandemic. A cause of distress appears to be that healthcare providers cannot provide the care they desire due the pandemic. Even though the pandemic is over, this remains an important and relevant finding, as high workload can sometimes force healthcare providers to make choices about how they provide care. Given that this can cause prolonged stress and this can lead to burnout (and HCPs leaving their current positions), it is now especially important to continue observing the long term developments of the well-being of our healthcare providers in palliative care and provide timely and adequate support where needed
Discussing Humanism Part 2
No full textThis is the editorial text of an issue on humanism in Journal of Humanistic Studies Waardenwer
On the Spheres of Resonance
No full textThis text is a critical analysis of Rosa's theory of spheres of resonance. Resonance takes place when we are confronted with a higher value that transfigures our experience. It makes an experience of dignity possible
Degrowth and Humanism:A Comparison of the Principles
No full textIn this aricle the worldview issues of Degrowth philosophy play a central role. These worldview points are compared with traditional humanism, using the work of Serge Latouche and Jason Hickel.It is shown how both worldviews can be mediated by ecohumanist philosoph
Shaping hopeful resistance in trust-eroding societies
No full textIn the Netherlands, once predicated as a high trust society, citizens’ trust in institutions and decision-makers has declined significantly. The massive childcare benefits scandal deserves special mention as it exhibits a structural type of distrustful policy and state sponsored violence against its marginalized citizens that has to this day not yet been properly dealt with. It targeted mainly non-Dutch origin households of lower socioeconomic status, a demographic well known to youth work. Internationally, multiple analyses have juxtaposed (adult) democratic values of trust, peace and social freedoms with (youthful) street cultures characterized by negative peer-pressure, poor social development and violence. However, prominent political leaders from the United States to Europe, Turkey and elsewhere have systematically undermined democratic legacy. Demonizing entire people groups at home, supporting brutish wars abroad, and criminalizing major as well as minor forms of dissidence, are but a few examples. In these bleak circumstances, we ask: what emerging forms of hopeful resistance can we detect in societies where trust as a public value has eroded? We investigate youth work settings and programs for possible answers to this question. We employ a micro-interactional and emotion-focused sociology to trace different constructive interaction rituals. These contain cognitively and emotionally restorative effects, providing a counterweight to young people’s debilitating and discouraging experiences. We demonstrate how youth workers and their participants harness these experiences, inviting and challenging (local) politicians and other power-brokers into joint interaction rituals. These micro-dynamics can positively feed into higher-level public social processes geared toward rebuilding trust.<br/
‘How the self as a whole relates to the cosmos as a whole’
No full textPsychiater, psychotherapeut en theoloog Piet Verhagen is een evenwichtskunstenaar. Al decennia overbrugt hij op allerlei manieren de afstand tussen psychiatrie en religie. Dat wil zeggen tussen – enerzijds - het wetenschappelijk vakdomein van de psychiatrie en psychotherapie en - anderzijds - de wetenschappelijke reflectie op levensbeschouwing en met name de persoonlijke beleving daarvan. Hij benut daarbij al het wetenschappelijk materiaal dat hij maar tegenkomt: theologen en filosofen van weleer, de overvloed aan empirisch onderzoek, nationale en internationale discussiefora van vakgenoten, visiedocumenten, en filosofen van vandaag de dag. Piet houdt goed contact met de tijdgeest. Zodra Piet leest en denkt slaat hij ook aan het schrijven. Zo is een heel vlechtwerk ontstaan van lijnen die hij trekt tussen de twee domeinen. Voor het ‘religiedomein’ gebruikt hij ook termen als spiritualiteit en zingeving. In zijn recentere werk ijvert hij ook voor het eigene van religie voor ieder mens: het daadwerkelijk spirituele, hoe dat voor iemand telt en hoe dat blijkt in het dagelijks leven. Lived religion. Deze lived religion schakelt hij aan het onderkennen van diversiteit en daarmee aan het uitstellen van het oordeel van – bijvoorbeeld – hulpverleners. Dit lijkt makkelijker gezegd dan gedaan. In het huidige tijdsgewricht is tolerantie naar andersdenkenden immers geen vanzelfsprekendheid. Ik vind het knap dat Piet in zijn enorme vlechtwerk arriveert bij een dergelijke kernachtig aanbeveling voor ggz-werknemers: pas op met je oordeel over levensbeschouwing. In deze bijdrage sta ik eerst stil bij een van mooiste definities die ik ken over spiritualiteit en die we aan Piet te danken hebben. Daarna bespreek ik enkele punten die mij opvielen bij nadere lezing van zijn artikel
Navigating uncertainty: taking methodological cues from relatives and care professionals for researching the perspectives of people with profound intellectual and multiple disabilities
No full textBackgroundResearching the perspectives of people with profound intellectual and multiple disabilities (PIMD) presents complexity and uncertainty. Traditional research often prioritises rational, objectivist methods, which may overlook this complexity.AimsThis study aimed to develop methodological cues for researchers studying the perspectives of people with PIMD by exploring how support workers and relatives deal with the uncertainty of uncovering these perspectives, drawing on Zinn’s typology of strategies for dealing with uncertainty: “rational,” “non-rational,” and “in-between”.MethodWe conducted interviews with support workers and relatives and observed interactions through shadowing.ResultsAll of Zinn’s strategies were observed, leading to six cues: (1) practicing an ethic of engagement; (2) valuing non-rational knowledge; (3) collaborating closely with caregivers; (4) acknowledging intertwined perspectives; (5) adopting phenomenological approaches; and (6) accepting uncertainty as inevitable.ConclusionThese cues promote an “anti-sceptical ethic of engagement” that encourages researchers to actively attune to the perspectives of people with PIMD