ResearchOnline@ND (University of Notre Dame)
Not a member yet
7734 research outputs found
Sort by
International Women\u27s Day 2024
No full textInternational Women\u27s Day 2024 campaign theme is \u27Inspire Inclusion\u27
The campaign theme for International Women\u27s Day 2024 is Inspire Inclusion.
When we inspire others to understand and value women\u27s inclusion, we forge a better world.
And when women themselves are inspired to be included, there\u27s a sense of belonging, relevance, and empowerment.
Collectively, let\u27s forge a more inclusive world for women
just need to find out if I had broken something or not.\u27 A qualitative descriptive study into patient decisions to present to an Emergency Department with a simple fracture
No full textBackground: To investigate what factors contribute to a working age adult with a simple fracture seeking care in an Australian metropolitan Emergency Department (ED) Methods In this Qualitative Descriptive study, we interviewed ED patients with simple fractures including 5th metacarpal, 5th metatarsal, toe, radial head and clavicle fractures. Results We interviewed 30 patients aged 18-65. Two thirds of participants were aware they might have a minor injury. Many were well informed health consumers and convenience was the most important decision-making factor. Participants focussed on organising imaging, diagnosis and immobilisation. This sequence of care was often perceived as more complex and inefficient in primary care. ED was trusted and preferred to urgent primary care with an unknown doctor. Some patients defaulted to attending ED without considering alternatives due to poor health system knowledge or from escalating anxiety. Conclusions ED is safe, free and equipped to manage simple and complex injuries. Patients would attend primary care if comprehensive fracture management was easily accessible from a trusted clinician. To effectively divert simple fracture presentations from ED, primary care requires collocated imaging, imaging interpretation, orthopaedic expertise, and fracture management resources. Services need to operate 7 days a week and must have accessible \u27urgent\u27 appointments
Power, capacity, disposition and categorical properties: A roughly Aristotelian proposal
Get PDFThis paper proposes a roughly Aristotelian account of powers ontology. In doing so, the paper uses the distinction found in Aristotle between four analogous senses of potency to explain causation and the existence-essence distinction in substances. On this basis, the paper offers some justification in support of the claims that powers and dispositions are the truth-makers of categorical properties and that categorical properties are ontologically dependent upon powers and dispositions
Hear our voice: Pediatric communication barriers from the perspectives of refugee mothers with limited English proficiency
No full textBackground: Adverse health outcomes are more common for health consumers with limited English proficiency (LEP). This study examines the consumer experience of refugee mothers with LEP when communicating with paediatric health services.
Method: A community-based participatory qualitative study engaging participants from refugee-like backgrounds. Focus groups and in-depth individual interviews (using professional interpreters) were conducted in community settings and analysed using Grounded Theory principles.
Results: Fifty ethnolinguistically diverse participants reported universal communication barriers; (i) “Negative health care experiences” (fear, helplessness, lack of safety, trust and dignity), (ii) “Ineffective health service communication and adverse outcomes”, (iii) “Logistical access barriers” and (iv) self-sourced solutions”. The “importance of professional interpreter utilisation” and subsequent “sense of empowerment” was unanimous.
Conclusions: This study highlights gaps in current health interactions which negatively impact care, inclusion, and culturally safe engagement. Recommendations include orgainzational reform enhancing language services, increased cultural competency, long term support, and research with LEP populations. J Pediatr Health Care. (2024) 38, 114−12
Neurodevelopmental outcomes in a cohort of Australian families with self-limited familial epilepsy of neonatal/infantile onset
No full textObjectives: To determine: i) seizure recurrence; ii) developmental disability; iii) co-morbidities and risk factors in self-limited familial neonatal and/or infantile epilepsy (SeLFE) in a multigenerational study.
Methods: Families were retrospectively recruited from epilepsy databases (2021-2022) in 2 paediatric hospitals, Sydney, Australia. Eligible families had 2 first degree relatives with seizures and underwent genetic testing. Demographics/clinical data were collected from interviews and medical records. Vineland Adaptive Behaviour Scales-Third Edition measured adaptive function.
Results: Fifteen families participated. Fourteen had a genetic diagnosis (93%): 11 pathogenic; PRRT2 (n=4), KCNQ2 (n=3), SCN2A (n=4), 3 likely pathogenic; KCNQ2 (n=1), SCN8A (n=2). Seizures affected 73 individuals (ages 1-76 years); 30 children and 20 adults had in-depth phenotyping. Ten of 50 individuals (20%) had seizure recurrence, aged 8-65 years. Median time from last neonatal/infantile seizure was 11.8/12.8 years. Predictors of recurrence were high seizure number (p=0.05) and longer treatment duration (p=0.03). Seven children had global developmental delay (GDD): mild (n=4), moderate (n=1) and severe (n=2). Vineland-3 identified 3 had low-average and 3 had mild-moderately impaired functioning. The majority (82%) were average. GDD was associated with older age at last seizure (p=0.03), longer epilepsy duration (p=0.02), and higher number of anti-seizure medications (p=0.05). Four children had speech delay, 5 (10%) had Autism Spectrum Disorder. Paroxysmal kinesiogenic dyskinesia (n=5) occurred in 4 families and hemiplegic migraine (n=8) in 3 families.
Conclusions: Individuals with SeLFE have a small risk of recurrent seizures (20%) and neurodevelopmental disability. Significant predictors are higher seizure number and longer epilepsy duration. Developmental surveillance is imperative