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Process of Maintaining Self in Individuals Living with Systemic Sclerosis: A Grounded Theory Study of American Women
Background: People with chronic illnesses may struggle to adapt psychologically to the illness experience and have feelings of identity loss, self-diminishment, and biographical disruption. This may limit people’s ability to engage in optimal selfmanagement. Systemic sclerosis is a debilitating, stigmatizing, and life-limiting progressive chronic illness with significant disfiguring effects. Little is known about the identity management process in people with disfiguring and debilitating conditions such as systemic sclerosis.
Purpose: The purpose of this study was to generate a grounded theory explicating the process of maintaining a sense of self in people living with systemic sclerosis.
Methods: Fifteen women with systemic sclerosis were recruited to ensure representation of a range of illness duration and progression. Semi-structured interviews were conducted, transcribed, and analyzed using open, selective, and theoretical coding.
Results: A basic social process of “maintaining self” was generated from the data that explained the women’s experience of living with systemic sclerosis and how they tried to hold on to their identity. Three core categories were identified. Adapting to changes are the behaviors that participants struggled through to carry on with their everyday lives. Dismantling of self was a distressing internal process where participants lost their sense of self and purpose. Restoring self was a transformative process that allowed participants to rewrite and rebuild their biographies.
Conclusions: Findings suggest that the management of identity was important for understanding how people adapt to life with systemic sclerosis. This study can help nurses better understand how to support patients holistically with the management of systemic sclerosis
Exploring the Denial of Institutional Racism: Impacts of Social Identity, Perceptions of Privilege, and Threat
This dissertation consists of one correlational and one experimental study grounded in Social Identity Theory, which posits that individuals derive a significant portion of their self- concept from their membership in social groups (Tajfel & Turner, 1986). One’s social identity plays a crucial role in how individuals interpret intergroup relations. Building on this understanding, I explored factors that may explain the denial of institutional racism among White individuals, focusing on the importance of their racial identity, attitudes towards White privilege, and the perception of social threat. In Study 1, which included 193 White participants, a weak positive correlation was found between racial identity centrality and denial of institutional racism; however, this relationship was not mediated by attitudes toward White privilege. In Study 2, which involved 203 White participants, individuals were exposed to a collective group threat through an article about changing racial demographics in the U.S., while the control group read a similar article about the changing demographics of dating app users. Results showed that collective group threat did not significantly affect racial identity, belief in White privilege, or denial of institutional racism. These findings suggest that while racial identity centrality may influence beliefs about institutional racism, other social identities and factors likely play critical roles in shaping White individuals\u27 beliefs. Additionally, social identity threats related to resources or national culture may not impact the denial of institutional racism; however, other social identity threats not evaluated in this study may be more relevant and impactful in this context. This research underscores the complexity of attitudes White Americans hold toward institutional racism and indicates directions for future studies to better understand and address its denial
Mark Zuckerberg On The Future of AI, His Programming Days, and Orion AR
https://epublications.marquette.edu/zuckerberg_files_videos/1453/thumbnail.jp