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    Comparative Sport Policy Analysis and Paralympic Sport

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    This chapter introduces the reader to discussions surrounding comparative sport policy literature and begins to reflect upon how comparative sport policy research might be informed by, and applied to, the Paralympic sporting context. In doing so, the chapter identifies a number of challenges in applying what have historically been able-bodied centric comparative models to examine the Paralympic sporting domain. The chapter argues that the adoption of comparative sport policy approaches have the potential to further develop our understanding of Paralympic sport; however, any attempts to do so should only be done cautiously and through acknowledging the philosophical and methodological complexities and challenges of comparative analysis as well as the importance of identifying and taking into consideration issues that are unique to the Paralympic context

    Hidden childhoods: the unseen challenges facing professionals in schools today

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    Chapter 9: Impact of Youth Work in Finland

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    Enterprise Education and Social Capital

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    Asthma patients are Still Fighting for Breath

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    Fighting for Breath, survey conducted by EFA in 2005, showed that high proportions of patients (pts) were living with uncontrolled severe asthma symptoms, with possible reasons for poor quality of life (QoL) as exposure to passive smoking, lack of treatment by specialist and absence of new treatments. A decade apart in 2016, we conducted Still Fighting for Breath (GfK on behalf of Novartis upon EFA’s invitation), an online survey in 1333 pts with severe persistent asthma (SPA) from 9 countries (Fig1a), aimed to assess impact of SPA on patients’ QoL. Here we compare the impact of severe persistent asthma on patient’s lives between the two surveys. Large discrepancy was seen between the proportion of pts who perceived their asthma to be well-controlled (42%) and the pts who were well-controlled as per GINA assessment (6%). Impact of asthma on psychological well-being and other activities is given in Fig1b. Though steps have been taken to improve the QoL of asthma pts (law banning smoking in public spaces, new treatments), in the last decade the QoL of severe asthmatic pts has not ameliorated significantly (Fig1c). There is a need for improved management (support and strategies) of pts with SPA and better coordination of efforts (enhancing asthma education, assessing perception of control, patient-physician interaction, guideline implementation, treatment compliance, involvement of pts organisations), which would enable these pts to achieve better disease control

    Trials and Tribulations

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    Appendix: Reflections on the Transformative Evaluation Methodology

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