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Picking up the tab : families discuss the financial impact of caregiving
Get PDFThis qualitative study analyzed the stories and circumstances of family caregivers to older adults with an emphasis on understanding the financial implications of caregiving. Themes included: the timing of the caregiving episode, planning for long-term care needs, relationships within the family, the process and effects of decisions and choices, legal issues, work issues, caregiving and non-caregiving expenses, and non-financial costs related to caregiving
The costs of triple jeopardy : aging, developmental disabilities, and Ohio's impending care shift
Get PDFState policy makers and legislators are paying attention to issues related to the aging of Ohio s population, namely, the impact of increasing longevity on the current older cohort, and the coming swell in the older population represented by the baby boom cohort. Less attention has been paid to aging families of baby boomers with MR/DD. This population is known as the Double Jeopardy population, as it refers to the need for care and support in two-generation households of frail older adults and their adult children with MR/DD. An entire generation of aging parents who have been the primary source of care and support for these children is entering high-risk years for morbidity and mortality. The loss of informal support represented by this change and a shift to formal support is inevitable and imminent. This support shift (called Care Shift) will produce a Cost Shift, a change from the use of family financial and/or labor resources to public resources. This project was designed to contribute to our understanding of the projected magnitude and impact of the shift from informal to formal care/support of Baby Boomers with MR/DD
The value of long-term care in Ohio : public dollars and private dedications
Get PDFThis report provides estimates of the number of older people in Ohio who received long-term care in 1999 and identifies:
1) Whether they are receiving formal care: a) in an institution; b) in the community; or c) receiving informal care from family, friends, and neighbors in the community.
2) The value of care provided in each setting; and
3) Who paid for the care?
In addition, this report discusses whether Ohio can continue with its present policies, given an expected and unprecedented increase in the number of older people as well as disabled, older people in the next 50 years
A ten year retrospective look at Ohio's long-term care system
Get PDFOver the past ten years the state has experienced a continued shift in the way older Ohioans receive long-term care. More older people are receiving long-term care in their own homes and in assisted living facilities. Ohio's home care program for older people, PASSPORT, increased from serving 6,000 individuals in 1992 to 24,500 in 2001. The number of residential care beds, driven by the expansion of assisted living, grew from 8,700 in 1993 to 34,000 in 2001. At the same time, despite an increase of 50,000 Ohioans age 85 and older, the average number of nursing home residents served in the past ten years has dropped by almost 5,700 per day, and the number of Medicaid supported residents has dropped by more than 2,700 per day.
These numbers indicate that Ohio has begun to change its approach to delivering long-term care. Although critics suggest that Ohio's expenditure ratio of nursing home to home care lags behind the majority of states, substantial changes have occurred in the system. As Ohio prepares for future population increases it will need to continue its efforts to provide a range of long-term care options for its citizens. Ohio simply cannot afford to expand the current long-term care system to meet the needs of our growing aging population
Implementation of the 2002 Ohio nursing home family satisfaction survey : final report
Get PDFIn 2002, the Scripps Gerontology Center conducted the second annual nursing home family satisfaction survey under a contract to the Ohio Dept. of Aging. Seven hundred thirty-six of the 902 nursing homes on the mailing list had at least one survey returned by a family member. Nearly half (48%) of nursing home resident families responded, for a total return of 16,955 family responses.
Refinements to the survey instrument showed continued high reliability of domain areas and the instrument as a whole. Changes in instructions to families, and a number of processes were changed this year that resulted in fewer family and facility calls requesting assistance from the toll-free hotline operated by the Margaret Blenkner Research Institute at Benjamin Rose.
Comparisons of 2001 and 2002 responses show some significant improvements statewide, with more items showing statewide averages of 90 and above. Among facilities that participated both years, a number of areas also showed statistically significant improvements.
The family satisfaction survey is one important component of the comprehensive nursing home information shown on the Ohio Long-Term Care Consumer Guide (www.ltcohio.org)
Ohio long-term care factbook
Get PDFThis publication describes the current state of long-term care in Ohio as well as projections of the state s future disability rates and LTC needs. It includes descriptions of the variety of settings in which LTC is provided (home and community-based as well as institutional), profiles of LTC residents, sources of LTC funding, and the types of services and forms of caregiving (both formal and informal) that occur in Ohio. A listing of further resources, including websites offering additional information is featured in this fact book
Long term care in Ohio : balancing the system
Get PDFThis report is designed to identify the challenges facing long-term care in Ohio, and to develop recommendations to help Ohio achieve an effective, efficient consumer responsive system of long-term care.
The Ohio long-term care system faces several serious challenges. First, public expenditures do not match consumer demand. Second, consumers want to be able to design and shape the type of the assistance to be received. Third, financial pressures are substantial and will increase dramatically. Fourth, despite an interest in expanding community-based services, Ohio has a shortage of care workers. Fifth, long-term care in Ohio is fragmented and information on long-term care is difficult to access. Sixth, future demand for long-term care services is inevitable given demographic projections. Finally, although there is considerable agreement that the long-term care system in Ohio is broken, there is not a consensus on how to fix it
Crossing the digital divide : family caregivers' acceptance of technology
Get PDFThe purpose of this pilot project was to collect data on how electronic technology might be used to assist family members who are caring for a relative with dementia at home. In Phase 1, we conducted five focus groups with 26 caregivers of relatives with dementia to document the specific challenges faced by caregivers and assess their access to, and familiarity with, electronic technology. In Phase 2, a technology-based solution B the Xanboo Smart House Management System B was identified. The System allows monitoring of a residence through placement and control of video cameras and other enabled devices, including sensors that detect motion, the presence of water, or noise. Sensors may be set to provide a caregiver or other interested party with immediate notification by e-mail, pager, or text messaging cell phone. In Phase 3, a household was outfitted with The System and two focus groups comprised of 8 caregivers to relatives with dementia were conducted to evaluate its utility. The report concludes with an annotated bibliography on technology and aging, with special focus on caring for a relative with dementia.
Key Findings:
Caregivers and the relatives for whom they provide care are in an evolving struggle to maintain continuity of roles, relationships, and lifestyles. Challenges include the safety of the individual with dementia and keeping geographically distant family members aware of their relative s condition.
Caregivers used a range of technologies in their day-to-day lives, including low- tech solutions to challenges in caregiving. Caregivers felt strongly that technological solutions were neither appropriate nor useful across all situations, and were cognizant of the inherent trade-off between safety on the one hand and dignity, respect, privacy, and desires for independence and autonomy on the other hand.
Caregivers do not aspire to become technology whizzes ; rather, they are interested in easily obtained, affordable, easy to use, solutions to some of the challenges they face.
An affordable, easy to use, off the shelf, monitoring system (The System) was identified.
Caregivers attitudes regarding The System were generally quite positive. When prompted to identify barriers to using The System, caregivers identified the need for a computer and Internet access, and cost.
Conclusions:
The results from this pilot project suggest that there are affordable technologies that can assist family members in their efforts to care for relatives with dementia at home, and that these caregivers were amenable to the use of these technologies. Future efforts should evaluate the installation, use, and impact of The System in the homes of family caregivers to relatives with dementia