Patient Experience Journal (PXJ, The Beryl Institute)
Not a member yet
638 research outputs found
Sort by
The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics
Get PDFInvolving Family Advisory Councils in decisions that impact pediatric healthcare demonstrates hospitals’ commitment to child- and family-centered care. Yet, reliance on advisors as the sole source of family input has several limitations: infrequent meetings impedes the council’s capacity to address emerging concerns in a timely manner; feedback obtained from a small number of highly-engaged family members may not represent the perspectives of “typical” patients and families; advisors provide feedback in a reactive manner and are generally not equitably involved in problem identification or the initial development of solutions. In recognition of the need to strengthen and advance family partnerships, the Children’s Hospital of Philadelphia made significant structural and operational changes to advance and expand the family centered care model. The Family Partners Program, a component of the broader family centered care portfolio, is a centralized institution-wide resource that enables practitioners, researchers, and healthcare leaders to collaborate with trained family representatives. This paper describes the Family Partner Program infrastructure; approaches to recruiting, onboarding, training, and mentoring parents and caregivers; and the many ways that Family Partners promote the core principles of child- and family-centeredness in clinical care, quality improve, and research contexts
Considering shared power and responsibility: Diabetic patients’ experience with the PCMH care model
Get PDFThe patient-centered medical home (PCMH), an innovative primary care model that fosters a stronger, more personal patient-doctor relationship than traditional health care models, should be particularly well suited for the treatment of chronic conditions such as diabetes that require ongoing management by both patients and providers. Despite growing research on the effectiveness of PCMHs in diabetes care, relatively little attention has been given to diabetic patients’ experiences. This qualitative study examines diabetic patients’ experiences at one PCMH setting, using in-depth interviews to understand patients’ perspectives of the shared power and responsibility between patient and provider in their diabetes care. Our results suggest that even when patients feel comfortable and cared for by the physician, they may choose to take a more passive role in discussions about their diabetes in the clinical encounter because 1) they may see diabetes as a secondary concern, or 2) they may be consciously differentiating between their physician’s responsibility over the physical domain of the illness and the patient’s responsibility over the lifestyle domain of the illness. Thus, in order to build a relationship that is characterized by shared power and responsibility between patient and provider, physicians should not only strive to create an atmosphere in which the patient feels both cared for and listened to, they also need to be aware of patient’s preconceptions about the clinical encounter. This awareness would allow physicians to encourage more active patient participation in the clinical encounter and support patients more effectively in their self-management journey
Measuring patient experience in a safety net setting: Lessons learned
Get PDFSafety net providers have faced barriers in administering patient experience surveys due to a lack of resources and survey expertise, but this problem has received little attention in the literature. In this manuscript, we offer lessons learned from the administration of a patient experience survey at a mid-size behavioral health care agency serving a safety net population. Specifically, we discuss resource needs, methods of increasing response rate among transient populations, methods for engaging stakeholders and clinical staff in quality improvement initiatives, and considerations for responding to setbacks and challenges dynamically. We also offer insight on the effective dissemination of results within safety net organizations and discuss the role of organizational culture
Bringing patient advisors to the bedside: a promising avenue for improving partnership between patients and their care team
Get PDFThis paper presents an innovative model of care, which brings patients who have already been through a similar experience of illness (patient advisors) directly to the bedside of patients, where they are viewed as full-fledged members of the clinical team. As part of a pilot project, three patient advisors were recruited and met with patients who had sustained a traumatic amputation and were admitted to the only center of expertise in replantation of the upper limb in Canada. Several individual interviews and focus groups with patients and patient advisors have revealed very promising results. Indeed, patients have expressed tremendous appreciation for their meetings and interactions with patient advisors. They have stated feeling less isolated, having a better morale and increased hopefulness regarding the outcome of the care pathway. Patient advisors also felt a positive impact of their involvement. A larger study needs to be conducted to determine the impact of this model of care on patient adherence to treatment and on members of the health care team
Randomized clinical trial comparing perioperative care for breast cancer patients at a patient hotel versus a general surgical ward
Get PDFBreast cancer is the most frequent cancer among women in Europe and the US. The aim of this study was to assess whether perioperative care, for breast cancer patients, provided at a patient hotel could be an alternative to the conventional care in an ordinary surgical ward. The study focuses solely on the patients’ experience of the provided care with a primary outcome that perioperative care at the patient hotel would be valued better than care in a general ward. Prospective, randomized single centre study. Between 2010 and 2012 a total of 151 patients \u3c 80 years and without severe comorbidities were included in the trial, whereof 76 patients were randomised to the ward group and 75 patients to the hotel group. Five patients were excluded from each group. The validated IN2005-E questionnaire was used to evaluate the patients’ experiences of the care. The response rate was high with 65 patients answering the IN2005-E in each group. No difference could be found between the two groups regarding patient characteristics, type of surgery or tumour characteristics. The patients generally perceived the quality of the provided care as high. However, in the hotel group there was a better experience of care regarding issues such as coordination, privacy, some aspects of medical information, availability and the courtesy of the nurses. For selected patients, perioperative care at a patient hotel is an appreciated alternative to care at a surgical ward
Weighting patient satisfaction factors to inform health care providers of the patient experience in the age of social media consumer sentiment
Get PDFThe researchers explored the possibility that patients would go beyond simple ranking and could give weight to previously validated and reliable patient satisfaction factors, while also describing their online habits related to the patient experience and health seeking information in order to inform medical providers on what patients say matters most when evaluating satisfaction with their provider. One thousand one hundred and sixty-four adults completed a 13- item web-based quantitative survey, developed by public health researchers, to weight patient satisfaction factors and describe online health seeking habits of patients across the United States. Proportional weights for each of the patient satisfaction factors were calculated for surgical and non-surgical providers based on participants\u27 allocation of 100 points. Weighted factors revealed that not all factors are weighted evenly and some matter more than others. For both non-surgical and surgical providers, thoroughness of the exam and a provider\u27s ability to answer questions ranked among the top factors. Bivariate analyses found statistically significant differences in proportional weights by gender, age, and writing/seeking provider information online. Patients weight some patient satisfaction factors as more important than others and some are more likely to post online than others. Physicians will be required to act and react quickly to address online patient sentiment and to pay special attention to what patients weigh as the most important. This study is a first step to utilize previously validated and reliable factors to help weight the factors in light of online health seeking and rating behavior
Cancer patients’ experiences of error and consequences during diagnosis and treatment
Get PDFThe study objective was to investigate patient experienced error during diagnosis and treatment of cancer. The design included a nationwide patient survey on quality and safety in Danish cancer care. Responses regarding patient experienced error were separately analyzed, quantitative responses using descriptive statistics and qualitative responses using systematic text analysis. Study participants included 6,720 adult patients with a first time diagnosis of cancer registered between May 1st and August 31st 2010. The patients received a questionnaire concerning their experiences of care received by general practitioners, specialist practitioners and at the hospital. A response rate of 65% was achieved. 10 – 25% of patients experienced error during diagnosis or treatment. 61% reported that hospital errors had consequences. Unexpected surgical errors/complications (27%), delay due to doctors’ assessment errors (24%) and unavailable test results (21%) were the most frequent types of errors identified using closed questions. 819 qualitative responses supplemented this information and revealed errors related to cancer detection, planning & coordination, patient-provider communication, administrative processes and treatment & medication. Physical, psychological, social as well as organizational consequences of the errors were uncovered. Patient experiences of errors suggest that practices related to informed consent, diagnostic reasoning as well as handling of test results, referrals and the medical chart should be further improved. In addition, safety aspects of the patient-provider communication and involvement of patients as an extra safety barrier merit further study
The patient portal and abnormal test results: An exploratory study of patient experiences
Get PDFMany health care institutions are implementing patient portals that allow patients to track and maintain their personal health information, mostly in response to the Health Information Technology for Economic and Clinical Health Act requirements. Test results review is an area of high interest to patients and provides an opportunity to foster their involvement in preventing abnormal test results from being overlooked, a common patient safety concern. However, little is known about how patients engage with portals to review abnormal results and which strategies could facilitate that interaction in order to ensure safe follow-up on abnormalities. The objective of this qualitative study was to explore patients’ experiences related to abnormal test result notifications through patient portals. The authors conducted semi-structured telephone interviews with 13 participants, patients and primary caregivers, between February 2014 and October 2014. Using content analysis, the authors explored patient experiences accessing abnormal test results through their portals. Respondents strongly favored access to all types of abnormal test results, but they raised several concerns including need for more timely notification and not being able to interpret the exact relevance of the result. Respondents’ personal experiences with physicians, test result notification, and the portal heavily influenced respondents’ notification preferences. Patient experiences with portals could be improved by development of strategies to help patients understand and manage the information received. These findings suggest important considerations for health professionals and institutions aiming to better engage patients in follow-up of their test results
The effect of soothing sound machines and meditation using CD players on relaxation in acute care orthopedic patients
Get PDFThis research studied the relaxation effect in orthopedic surgical patients using guided meditation or soothing sounds (SS) machines. The study used a comparative study design to evaluate differences in the effect of SS or guided meditation on patients’ perceptions of relaxation. IRB approval was obtained prior to initiating the study. A convenience sample of orthopedic surgery patients consented to voluntarily rate their perceptions of relaxation on a 5-point Likert scale ranging from “none”, “mild”, “moderate”, “good” or “very good”. A demographic survey was used to describe the sample. The sample included 50 patients with ages ranging from 40 to 70 years. Seventy-eight percent (78%) of the sample was female and 22% were male. The participant selection of relaxation type was 82% soothing sounds machines, meditation 12%, and both (SS machines and meditation) 6%. The response rate was 100% for the guided meditation as compared to the 93% response rate for the SS machine. The greatest relaxation change was noted for the guided meditation (66.5% good to very good) as compared to the SS machines (63.5% good to very good). Both SS machines and guided meditation improved relaxation with greater than 82% rating moderate to very good change. More patients selected SS machines over guided meditation. The active process for guided meditation provided a higher relaxation rating than the passive process using soothing sounds machines
A vision for using online portals for surveillance of patient-centered communication in cancer care
Get PDFThe Veterans Health Administration (VHA) is charged with providing high-quality health care, not only in terms of technical competence but also with regard to patient-centered care experiences. Patient-centered coordination of care and communication are especially important in cancer care, as deficiencies in these areas have been implicated in many cases of delayed cancer diagnosis and treatment. Additionally, because cancer care facilities are concentrated within the VHA system, geographical and system-level barriers may present prominent obstacles to quality care. Systematic assessment of patient-centered communication (PCC) may help identify both individual veterans who are at risk of suboptimal care and opportunities for quality improvement initiatives at the service, facility, or system-wide level. In this manuscript, we describe our vision to implement an assessment of PCC through patient self-report to improve the quality of cancer care and other health services in the VHA. We outline a possible strategy to assess PCC that leverages the VHA’s existing initiative to promote use of an online personal health record for veterans (MyHealtheVet). Questionnaires administered periodically or following specific episodes of care can be targeted to assess PCC in cancer care. Assessment of PCC can also be tied to clinical and administrative data for more robust analysis of patient outcomes. Ultimately, the goal of any assessment of PCC is to gather valid, actionable data that can assist VHA clinicians and staff with providing the best possible care for veterans with cancer