Patient Experience Journal (PXJ, The Beryl Institute)
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Correlation Between Resident Physician and Patient Perceptions of Empathy in the Emergency Department
No full textBackground: Empathy is essential for emergency medicine physicians, impacting patient outcomes and experiences, especially in the fast-paced emergency department (ED). However, empathy often declines during medical training, negatively affecting care. Little is known about how emergency medicine trainees perceive their empathy compared to their patients. Objective: This study aimed to explore the correlation between patient perceptions of resident physician empathy and residents’ self-perceptions during ED visits. Methods: This was a prospective observational study was conducted at a Level 1 Trauma and Tertiary Care Center in the south-central U.S., using the Consultation and Relational Empathy (CARE) Measure. At patient disposition, ED patients rated their resident physician’s empathy, followed by residents rating their own empathy delivery. Ratings were categorized as high (\u3e81%) or low (≤80%) empathy providers. The primary outcome was the correlation between patient and resident empathy ratings; secondary outcomes examined the effects of age, sex, and race. Results: Residents rated themselves as high empathy providers 32.6% of the time, while patients rated their residents as high empathy providers 68.5% of the time. Only 6% of interactions involved residents rating themselves as high empathy providers when patients did not. Older patients rated residents as low empathy providers slightly more often than younger patients. Differences in race and gender did not significantly impact empathy ratings. Conclusion: Our findings reveal a significant gap between resident physicians’ self-assessments of empathy and patients’ assessments, with residents often rating themselves lower than their patients did, highlighting a disconnect in self-perception among emergency medicine trainees
Co-Designing a Patient-Facing Version of a Mental Healthcare Pathway for People Receiving Dialysis
No full textA Community Advisory Committee comprised of nine members with lived experience of kidney failure, identified the need for a patient-facing version of a mental healthcare pathway for people receiving dialysis in Alberta, Canada. Recognizing that healthcare tools to support person-centred care practices should be available in lay language, our team (comprised of Community Advisors and healthcare clinicians and researchers) co-designed a patient-facing pathway: “Your Journey: Coping with and Adjusting to Dialysis.” The Provincial Pathways Unit provided a template for the pathway, and the content was adapted through multiple online and in-person meetings with the Community Advisors. Adaptations were informed by Community Advisors’ insights, and guided by principles of health literacy and centredness. We wrote this paper together to showcase how we worked in partnership, collaborating as a team to co-design a patient-facing version of a mental healthcare pathway for people receiving dialysis. We highlight our co-design, the processes we followed, reflections from our team members, and lessons learned regarding the language used in patient-facing tools, the value of in-person versus online meetings, and the potential barriers to co-design. Our innovative collaboration provided a solution to create a pathway as a comprehensible and accessible tool to those most impacted: people receiving life-saving dialysis who are also experiencing mental health concerns
Changing Myths Into Truths: Dispelling Physician Misconceptions on Patient Experience
No full textPatient experience work can be viewed by some physicians as outside their scope of practice and therefore the responsibility of non-medical providers. Assumptions may also be made by providers about what patient experience work is and is not. These myths can make it difficult to pursue meaningful patient experience related work that is in fact rooted in evidence showing improved outcomes. Moreover, these myths can downplay the importance of patient experience improvement work discouraging physicians who may be interested from pursuing it. In order to combat common myths that can be propagated about patient experience, the authors will cite research to dispel commonly held beliefs and instead convert them into truths that demonstrate patient experience work truly is essential to healthcare organizations and should be pursued by clinicians as part of their non-clinical work
My Life, My Story and Life Recovery among Veterans with Substance Use Problems
Get PDFObjective: The United States Veterans Health Administration My Life, My Story (MLMS) program is a patient-centered care intervention where veterans are interviewed about their life story and may grant permission to include it in their electronic health record (EHR). Our purpose was to focus on a sample of MLMS narratives from veterans with self-disclosed substance use (SU) from our institution, and to evaluate the potential relationship between their content and a life change for the better, and to compare their content with the EHR. Methods: The narratives were reviewed on 4 domains (past challenge, substance use, experience of a turning point or insight, life improvement) by two reviewers using a pre-specified code book. 31 narratives were reviewed. Additional demographic and clinical data were abstracted from the EHR. Results: Veterans\u27 mean age was 68.7 (SD = 6.0) years when interviewed. All were male and had a tobacco (23%), SU (45%), anxiety (32%), mood (45%), or post-traumatic stress (32%) problem on EHR review. 48% received outpatient mental health treatment whereas 24% received outpatient SU treatment. With regards to MLMS content, 74.2% described a significant life stressor, 93% confirmed SU, 71% reported a turning point, and 80.7% had experienced life improvement. There were no statistically significant relationships between the EHR data and MLMS content areas. However, when a turning point was described, the odds of having a life improvement were increased 26-fold (OR = 26.2, 95% CI = 2.4, 288.9, c-statistic = 0.84). Conclusion: The MLMS narrative from the veterans\u27 perspective provides additional richness to their history unavailable in the EHR
Mastering the Art of Listening: The Human Experience Superpower
Get PDFAs human beings we do not live in isolation. Our existence is framed in the context of others. We are a part of families and teams, communities and countries; all which provide us with ideas and information, most delivered through the interactions we have with others. The very definition of experience itself conveys this as it opens with the words, “the sum of all interactions.”1 Every experience that we have is impacted by interactions with others. This give and take of connection is the breath of our humanity. Through it we transfer thoughts and beliefs, words and emotions. Moments of human connection are powered by communication, be it through words or actions. It is in these moments where we not only speak, but also more importantly listen to others. When we take a simple but committed step in strengthening the art of listening for ourselves and in our organizations, we honor all that we are committed to in healthcare. We show empathy, we take compassionate action, we express deep respect, we get clearer information, and we make better decisions. When we commit to listen, we care for our patients and care partners, we care for our colleagues, and we care for ourselves. Ultimately, we achieve the best in outcomes we aspire to every day. This editorial shares the fundamentals of listening and offers active steps each of us can take to make listening our own superpower as we work to transform the human experience in healthcare
The Impact of Learners on Patient Satisfaction in the Orthopedic Setting
Get PDFThis investigation evaluates the impact of learners and their post-graduate year (PGY) levels on patient satisfaction in the orthopedic outpatient clinic, an area with limited prior research. A retrospective cohort study was conducted using data from July 2020 to December 2022, involving 2,484 patients, with a 39% response rate. Satisfaction was measured via NRC Health surveys, focusing on the likelihood of recommending the provider or clinic based on the presence of learners, categorized as none, present in the clinic, or involved in patient care. Non-parametric statistical analysis revealed significant reductions in satisfaction when learners were involved in care, with top-box scores for recommending providers and clinics decreasing notably (p = 0.030 for providers, p = 0.018 for clinics). The decrease was 7.9% for provider recommendations and 7.2% for clinic recommendations when learners were involved, compared to their absence. Notably, PGY-4 learners were associated with the highest satisfaction levels, highlighting the varied impact of PGY levels on patient perceptions. In summary, the presence and involvement of learners in patient care significantly influence patient satisfaction in orthopedic clinics, with the impact varying by the learner\u27s PGY level. This suggests a complex interplay between learner engagement and patient satisfaction, emphasizing the need for targeted strategies to enhance educational experiences and patient outcomes in these settings
Opportunities and Challenges for E-health in Hip and Knee Arthroplasty - A Summary of Recent Literature Review
Get PDFIntroduction: The integration of health technologies and e-health into health education is becoming increasingly used. Objective: To identify the e-health challenges and opportunities related to hip and knee arthroplasty patient care. Methods: A narrative literature review was conducted. Results: Included 13 primary studies on teleconsultation and the use of digital applications to support patients undergoing knee or hip arthroplasty. Discussion: E-health resources are increasingly vital in supporting arthroplasty patients throughout their surgical journey, from preoperative preparation to recovery. Teleconsultations and patient-support apps enhance access to care, improve efficiency, reduce costs, and boost patient satisfaction. The preoperative phase is crucial for promoting lifestyle changes, such as weight loss, which can significantly improve surgical outcomes. Research indicates that mobile health interventions effectively support these changes and enhance physical function, quality of life, and muscle strength. During hospitalization and recovery, e-health tools provide educational materials, allow progress tracking, and facilitate communication with healthcare teams, improving pain management and overall quality of life post-surgery. However, challenges exist, particularly in user adoption among older adults and those with lower education levels. To maximize effectiveness, it\u27s essential to involve patients and caregivers in developing these tools, ensuring they are user-friendly and tailored to diverse needs. Conclusions: E-health has promising potential for optimizing arthroplasty care
Contrasting Patients\u27 and Healthcare Professionals\u27 Experience in Hematological Cancer Care Pathway: A Narrative Study
Get PDFHematological cancers represent 10% of cancers diagnosed in Canada. Treatments involve complex care pathways and various modalities as well as the management and monitoring of multiple side effects. There is limited understanding of these pathways from the perspectives of the people living with cancer (PLC) and the healthcare professional (HCP). The aim of this article is to contrast the experiences of PLCs and HCPs in the context of hematological cancer care pathway. Narrative study approach was chosen for this exploratory study. Twenty-one narratives were co-created with PLCs (n = 12) and HCPs (n = 9). A structural and comparative analysis of the narratives was performed. Results underline how PLCs\u27 and HCPs\u27 experiences were intertwined but not interdependent. PLCs seek to reconfigure their lives, while HCPs aim to individualize and enhance care for their patients. Furthermore, the shared experience between PLCs and HCPs proved beneficial for both groups. Ultimately, our findings underscore the need to access greater understanding into the dynamics of the relationship between PLCs and HCPs that could enhance quality of healthcare and services in the context of hematological cancer care
Using Patient Experience Data With IMPACT: A Framework for Healthcare Improvement
No full textBackground: Despite major investment in patient experience measurement, healthcare organizations often struggle to translate patient feedback into lasting improvements. Existing knowledge translation frameworks provide useful concepts, but often lack the practical detail or contextual relevance needed to improve patient experiences. Objective: To develop and present the IMPACT Framework, an evidence-informed approach designed to bridge the gap between patient experience measurement and meaningful improvement in healthcare. Methods: This framework was informed by a systematic review of patient experience measurement and analysis of barriers to feedback use. Findings from contemporary patient experience research were combined with key principles of knowledge translation, change management, innovation, and service design. Results: The IMPACT Framework consists of six iterative phases: Identify (review and analysis of patient experience data), Measure (co-design of solutions), Partner (collaborative solution development), Action (adaptive implementation), Check (evaluation), and Transform (scaling and sustainability). Each phase provides clear guidance while allowing flexibility for use across diverse healthcare contexts. Conclusion: IMPACT offers healthcare organizations a practical guide for embedding patient feedback into continuous quality improvement. By positioning patients, families, and staff as partners in improvement, the IMPACT framework reframes patient experience measurement from a compliance exercise into a driver of person-centred care
A Case Report on Meeting the Spiritual Need of Intubated Conscious Patient
No full textNurses are showing more interest in including spiritual health to prevent and treat illnesses. For patients who can speak may ask for their spiritual need to the health care provider. But for intubated patients it.s difficult to express such needs. Most of the time caregivers focus on the physical parameters only for intubated patients. Apart from physical symptoms these patients also experience a variety of bio-psycho-socio-spiritual sensations. Research has shown that spiritual therapies can reduce distress, assist in preparing the patient for end-of life care, and enhance overall wellbeing along with improving their quality of life. The purpose of this study is to provide ground work for implementing policy in critical care unit towards religious and spiritual interventions in nursing care to promote mental, physical, and spiritual health of conscious intubated patients. In a surgical ICU, a case study was carried out on a 67 years critically ill patient on a continuous mechanical ventilation with GCS 10T, having no cognitive impairment. Although she responded negatively to all physical care, she responded fairly well to spiritual care. In order to determine the patient’s basic spiritual needs, yes-or-no questions were asked. The patient was asked whether she had anything further to say. This project offered a platform for creating a person-centred communication board in future that would cover the religious and spiritual demands of intubated patients. The activities and communication that professionals had with intubated patient using the participatory design indicate necessity to cater religious and spiritual needs to promote overall wellbeing