Patient Experience Journal (PXJ, The Beryl Institute)
Not a member yet
638 research outputs found
Sort by
Focusing on positivity during the COVID-19 crisis: A New York health system strategy
Get PDFIn the midst of the COVID-19 pandemic, spreading positivity has become a core mission of Northwell Health, the largest integrated health system in New York. As a state and community health system, we are forever changed, but our need for compassion, humanism, and connection has never wavered. Creating innovative ways to bring humanity to the forefront, hope and optimism echo across the organization as initiatives, forums, and acts of gratitude have ensued.
Experience Framework
This article is associated with the Culture & Leadership lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this len
Solitude and fear during the great coronavirus war
Get PDFWhen you get ill, the first thing that comes to your mind is, “Will I make it? Will I survive? . COVID19 has a major impact on mental health. A sadness that inundates us like a river in flood and which we cannot hold back. But the thing that torments is the solitude. Those who struggle towards recovery do it alone, and those who do not make it die alone. An emblematic experience of a sense of loneliness, depression and death during illness is deeply described. We tell how the love of family and friends can help to recover from the abyss. Fighting this battle and winning it alone is painful. A lonely death is even more painful. We must stick together virtually and think about each other. The work done with enormous strength and tenacity by doctors and nurses is a great hope for a better time. It does raise the hope that a future generation will be able to truly take care of mankind. When all this ends, we must not go back to normal. We must be reborn, better.
Experience Framework
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens
Consumer experiences of Chronic Obstructive Pulmonary Disease in regional Australia: A mixed methods study and logic model to identify consumer-experience mechanisms to avoid hospital and enhance outcomes
Get PDFThe objective of this study to explore consumer experiences of their care for Chronic Obstructive Pulmonary Disease (COPD) in a regional Australian hospital and to ascertain consumer identified contexts and mechanisms that can enhance consumer-experience outcomes. A sequential, explanatory mixed methods design was employed including a retrospective audit of COPD admissions and re-admissions and semi-structured interviews with a sample of consumers (n=12). Themes were synthesised using a realist framework and the Expanded Chronic Care Model to develop a logic model. Audit data identified above national average hospital admission rates and length of stay for treatment of COPD. Interview data revealed three key themes namely contexts of care, mechanisms for providing care, and outcomes of care. A logic model was constructed to highlight the necessary contexts and consumer-identified mechanisms that can be enacted to achieve consumer-valued outcomes. The model outlined factors at individual, provider and system levels in a regional and rural setting including interaction and relationships with health care providers; consumer capability; workforce; care pathway; capacity to offer services and support; and continuity of care. This research identifies that positive and continuous relationships are one of the most important consumer-identified mechanisms for influencing COPD consumer experience of their care and capacity to self-manage to stay out of hospital. This research challenges regional and rural health services to harness relationships and connectedness to improve consumer experiences and the impact of care for COPD consumers. The logic model provides a template to assist health services to rise to this challenge.
Experience Framework
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens
Patient experience in outpatient clinics: Does appointment time impact satisfaction?
Get PDFThe objective of this study is to understand patient experience by appointment time by analyzing the Consumer Assessment of Hospital Provider and Systems (CAHPS) scores at a granular level across pre-determined time periods (AM and PM). This study utilized quantitative and qualitative methods. A deidentified secondary data set from the University of Alabama at Birmingham’s Press Ganey website was used to analyze the difference in CAHPS scores across AM and PM time periods. Unstructured survey responses were analyzed as a way to further enrich the quantitative findings. The data sample consisted of 821 responses from a dermatology clinic for the period of May 2017 to May 2018. Results suggested more positive patient experience for AM appointments when compared to PM appointments. The only positive experience for PM appointments was associated with the support staff and timeliness of care. This study indicated that time of day of the appointment is one of the contributing factors for patient satisfaction in the outpatient setting. While this study was conducted in a dermatology setting, it has applicability to the broader outpatient environment.
Experience Framework
This article is associated with the Infrastructure & Governance lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens
PANDA: A case-study examining a successful Audiology and Otology Patient and Public Involvement and Engagement research group
Get PDFThere has been increasing involvement of patients and members of the public in research; however, case studies describing patient research groups with hearing loss are non-existent. Such case studies will be valuable, enabling evidence-based dialogue and promoting best practice in the engagement of patients, the public and researchers. This paper aims to discuss this practice. The absence of such dialogue may hinder initial efforts by researchers to realise the potential of Patient and Public Involvement. The objective of this study was to set up and run a patient and public involvement and engagement group in audiology research, use the lessons learnt to provide a guide to others in a similar situation, and prompt the dialogue referred to above. A successful group with over 70 members has been set up, with an average attendance for meetings of between 15 and 20 participants. Feedback from the group indicates that members are happy with, and benefit from, their involvement and particularly appreciate the concern of those managing the group better to accommodate sensory impairments. Additionally, the group has improved research output for specific grant applications. We conclude that although this case study contains elements unique to the setting (a large NHS Trust in the Midlands), it also provides transferable observations and resources that can be adapted and utilised by researchers working with patients and the public with hearing loss.
Experience Framework
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens
Patient feedback: Listening and responding to patient voices
Get PDFThe study aim was to identify key strategies to improve organisational systems and care experiences, to confront the challenges of achieving effective patient feedback throughout a large healthcare organisation. A mixed methods exploratory approach was used. Purposive and snowball sampling, semi-structured interviews with key stakeholders, and document analysis of existing feedback processes was utilised. The setting was a large metropolitan Local Health District in Sydney, Australia. Data was examined using thematic and content analysis. Participants identified no single feedback process was able to adequately gather all feedback necessary to reflect the patient experience. Patient feedback processes that are most useful: are in alignment with patient centred care principles; and, promote the return of information in a timely manner. Two types of patient feedback and their value was identified: proposals for resources; and, suggestions for improvements in processes. The optimal approach to gathering patient feedback requires: a combination of approaches; questioning about patient centred domains; and structured/unstructured and open/closed formats. Guidance and coordination from a central unit is imperative if improvement is to be integrated and effective across a large organisation. The study reveals that the key to achieving an effective patient feedback system is to utilise a multifaceted approach. A combination of approaches provides a comprehensive, adaptive strategy to address patient experience, satisfaction and outcomes. This approach, implemented throughout the organisation, enables relevant and actionable patient feedback to be gathered and implemented in a timely manner.
Experience Framework
This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens
An extensive review of patient satisfaction with healthcare services in Bangladesh
Get PDFPatient satisfaction is a useful measure for providing quality indicators in healthcare services. Assessing patients’ satisfaction is important since it often helps, in absence of healthcare service quality indicators, to determine the quality of health-care delivery and health system responsiveness. Higher levels of patient satisfaction indicate higher levels of patient empowerment, commitment to care and compliance to recommended management–all of which results in better health outcomes. Concern over the quality of healthcare services in Bangladesh has resulted in a loss of faith in healthcare providers, low utilization of public health facilities, and increased outflows of patients from Bangladesh to hospitals abroad. The main barriers to accessing health services are inadequate services and poor quality of existing facilities, shortage of medical supplies, the busyness of doctors due to high patient load, long travel distance to facilities, and long waiting times once facilities were reached, very short consultation time, lack of empathy of the health professionals, their generally callous and casual attitude, aggressive pursuit of monetary gains, poor levels of competence and, occasionally, disregard for the suffering that patients endure without being able to voice their concerns—all of these service failures are frequently reported in the print media. Such failures can play a powerful role in shaping patients\u27 negative attitudes and dissatisfaction with healthcare service providers and healthcare itself. The Ministry of Health and Family Welfare plans and implements the public healthcare delivery through various healthcare infrastructure, from national to the community level.
Experience Framework
This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens
Maintaining a positive patient experience during COVID-19 in a rehabilitation and complex care setting
Get PDFWest Park Healthcare Centre located in Toronto, Ontario, Canada provides specialized rehabilitative and complex care after a life‐altering illness or injury such as lung disease, amputation, stroke and traumatic musculoskeletal injuries. This narrative showcases the strategies, processes and the lessons learned and subsequently utilized throughout the COVID-19 pandemic to engage patients and their family and peers.
Experience Framework
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens
Patient-centric culture and implications for patient engagement during the COVID-19 pandemic
Get PDFSome consider patient engagement as the “holy grail” of healthcare because of its potential to revolutionize how we view and address health system problems. Multiple efforts around the world have attempted to cultivate a patient-centric culture whereby health services are grounded by the needs and preferences of patients. Recently, health service organizations are engaging patients in a wide array of activities including research and quality improvement. There are many ethical imperatives and economic and social benefits to patient engagement such as higher patient self-esteem and trust, and a more cost-efficient system. However, these benefits have been realized in some contexts and not others. Using the 3I framework (ideas, interests, institutions), this analysis examines two ideas that support (ethical imperatives and economic and social benefits) and one that opposes (negative attitudes and perceptions of patient engagement) a patient-centric culture. The first idea identifies the ethical imperatives that bolster the patient engagement movement and shift power and accountability to patients because of their role as taxpayers, users, and consumers of health services. The second idea describes the economic and social benefits associated with patient engagement and discusses why these benefits have been observed in some contexts and not in others. The final idea examines the negative attitudes and perceptions that healthcare professionals may hold of patients and patient engagement. These negative attitudes originate from an implicit belief that patients are separate components of the healthcare system; that healthcare professionals (clinicians and managers/administrators) design, deliver, and improve health services and patients receive them. We discuss the relevance of these three ideas for PE in the context of the COVID-19 pandemic.
Experience Framework
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens
Patient participation strategies: The nursing bedside handover
Get PDFPatient participation is an important goal in today’s health care and considered necessary to achieve safe and quality patient care. The purpose of this paper is to discuss the historical and theoretical background surrounding the concept of patient participation in health care and specifically to examine patient participation strategies which have been reported to be of influence when employed during the nurse to nurse and patient to nurse activities encompassed in the bedside handover. The bedside handover is the nursing activity of transferring primary nursing responsibility of care from one nurse to another. Encouraging patients to participate during this process facilitates the sharing of information, knowledge, communication, care planning and patient self-care. Empirical studies on patient participation during the nursing bedside handover among inpatient adults were selected from the databases of CINAHL. Criteria for selection included empirical studies published in English and in peer reviewed journals from September 2007 to August 2017. Eight studies published between 2011-2017 are presented in this paper. Most studies (n = 6) used qualitative methods. Patients viewed the bedside handover as an opportunity to partner in care, to be informed, to ask questions and correct inaccuracies. Barriers included the use of medical jargon, lack of patient desire to participate, nurses dominating the conversation, and patients feeling ignored. The majority of studies were conducted at single-site settings. Further research is warranted to examine whether the nursing bedside handover leads to improved patient outcomes.
Experience Framework
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens