Patient Experience Journal (PXJ, The Beryl Institute)
Not a member yet
638 research outputs found
Sort by
Why Human Experience Matters
Get PDFAs we close the 11th volume of Patient Experience Journal and a pivotal year for experience efforts globally, it provides a moment of pause, of reflection, and an opportunity to return to purpose. As a publication accessed in over 220 countries and territories around the world, I am heartened by the fact that what is shared on these pages moves you. That what our amazing authors contribute here truly matters. This issue, with its 24 insightful articles, brings our total publication count to 570 articles. These pieces have informed us, pushed our thinking, and challenged our beliefs. This is the essence of our motto “Evidence. Innovation. Patient Forward.” It reflects our commitment to seek answers, push boundaries, and truly listen to and act on what matters to those in healthcare. I have long shared the idea that in healthcare we are “human beings caring for human beings.” I fundamentally stand by this idea, I am guided by it personally, and we have built our community on this premise and the values that comprise it. At the heart of this idea is a fundamental premise, human experience matters, and it may matter now more than ever. If we can push forward together as human beings caring for human beings, we will truly be unstoppable
Consumers\u27, Family Members\u27, and Health Practitioners\u27 Perspectives on Increasing Activity Engagement of Older Patients Admitted to Geriatric Hospital Units
Get PDFThe aim of this study was to explore the perspective of consumers, family members, and health practitioners on increasing patient activity engagement in a Geriatric Evaluation and Management (GEM) Unit. This study followed a qualitative phenomenology approach. Semi-structured interviews were conducted, audio-recorded and transcribed verbatim with consenting patients (n = 12), family members (n = 3), and health practitioners (n = 5) admitted to the GEM Unit of a tertiary metropolitan hospital in Melbourne, Victoria, Australia between August 2017 and March 2018. Data were analysed using spiral content analysis. From the 20 interviews, three themes emerged: 1. What can I do, 2. What I want to do, and 3. What can we do? Patients received limited opportunities to be active during hospitalisation. They were often faced with nothing to do and unsure what to do. Patients frequently reported higher activity levels at home. Activities that were enjoyable, beneficial, and of their own choice drove their desire to engage. Family members and health practitioners played an essential role in facilitating patients\u27 engagement and required knowledge and skills to do so. Other Australian hospitals have used environmental enrichment strategies to increase patients\u27 activity. Implementing such strategies, including tailored individual and communal activities to increase activity participation should align with patients\u27 preferences and needs
An Exploratory Qualitative Study of Perinatal Experiences in an Acute Setting during Early Phases of the COVID-19 Pandemic
Get PDFThe COVID-19 pandemic was highly disruptive for people delivering babies in-hospital and for obstetrical healthcare professionals. The purpose of this study was to explore the experiences of people with or without COVID-19 giving birth in a community-based hospital to provide patient insight to obstetrical care providers regarding the services/policies used during the pandemic. Nine interviews were conducted with participants within six months of giving birth in-hospital – four who tested positive for COVID-19 and five who tested negative. Seven themes were identified in the analysis: conflicting emotions; experiences of COVID-related protocols; altered experiences of pregnancy and birth; other aspects of in-hospital care; support from family and friends; interactions and communications with the healthcare team; and seeking information. Results were positively received by the perinatal clinical team and changes were identified to further improve experiences of care. A deeper understanding of patients\u27 lived experiences of hospital services available during public health emergencies can offer important, actionable information for healthcare providers
Investing in the Bottom Line: The Value Case for Improving Human Experience in Healthcare
Get PDFInvestment in human experience is imperative for healthcare organizations. It is a strategic focus that can lead to great benefits. Those that overlook experience, seeing it as “simply” about satisfaction or survey data, do so at great cost to their organization, team members, and most importantly those we serve – patients. A commitment to human experience – integrating the patient, workforce, and community experience – is essential for all healthcare organizations in realizing the goals they strive for and the impact they aspire to achieve. It leads to high-quality outcomes for those they care for. It creates a positive environment for those who show up to serve each day. It fosters trust from the communities they serve. It is a central driver for financial viability and operational sustainability. It is a driver of quality outcomes, safety, and workforce engagement. It fosters consumer loyalty leading to stronger payor relationships, increased physician referrals, and greater patient, family, and consumer choice. Ultimately, a commitment to experience is the path to realizing a viable and thriving future for healthcare organizations. The concept of value in healthcare as initially proposed focused on healthcare outcomes per dollar spent. The reality is healthcare is a complex system driven by not only what is spent or patient outcomes, but also by how healthcare organizations engage with patients as people, care for their workforce, and address the needs of the communities they serve. A value case is not one solely about clinical outcomes but about the comprehensive healthcare experience through which a much broader set of outcomes is achieved. This paper proposes a model for the value of investment in human experience as a practical bottom-line issue for healthcare leaders
Patient Experience and Virtual Reality: The Use of an MRI Exam Simulator
Get PDFMagnetic resonance (MR) imaging is a safe diagnostic method of high accuracy detection and characterization of various pathological conditions. However, due to the very closed aspect of the apparatus, the high sound amplitude emitted and the need to remain motionless for a significant time, some patients experience discomfort and high levels of anxiety, compromising time and image quality management that can impair the clinical outcome of the patient or even give up the performance of this procedure. Therefore, this study aimed to validate, with patients, the use of Virtual Reality (VR) as a humanized practice of exposure to magnetic resonance imaging, to reduce the discomfort often present in the procedure. For this purpose, we used a cross-sectional method of quantitative-qualitative approach, incorporating purposeful sampling and semi-structured interviews of evaluative nature with 303 patients from two health institutions located in the state of Alagoas, Brazil, in which patients immersed in VR before the examination. As a result, exposure to VR led 98.9% of patients to feel more prepared and confident to perform the examination. There was no significant correlation between age, previous contact with technology and gender with the effectiveness of the intervention. However, there was a significant correlation between the form of approach, the quality of information and the level of feeling of relaxation of the patient. Thus, these results highlight the positive impact of VR on the patient\u27s experience in performing the MRI examination and the variety of audiences that can enjoy the benefits that this technology provides
Foundational Patient Experience: Analyzing 10 Years of Patient Experience Research
Get PDFIn this study, we seek to provide a critical examination of the field of Patient Experience (PX) by using citation analysis to determine the foundational keystones of the PX knowledge base. This study will employ a systematic citation analysis to evaluate the articles published in the Patient Experience Journal (PXJ), focusing on citation frequency as evidence of impact on the field. To achieve this, we examine the entire corpus of article citations published in the PXJ from 2014–2023 (Volumes 1–10). By examining a corpus consisting of 515 independent articles (N=515) that include over 12,000 references (n=12,712) over the course of a decade, we aim to provide a scope of the foundational knowledge in PX. The result of this analysis finds the top 10 most cited articles across the first decade of PX scholarship, each having important implications for the future of patient experience
Implementing a patient engagement framework in the primary healthcare system in Qatar
Get PDFThe healthcare system in Qatar has acknowledged the need for patient-centered care (PCC) in its strategic intentions. The primary care system in Qatar consists of 31 health centers located throughout the country, managed by the Primary Health Care Corporation (PHCC). PHCC sought accreditation through Accreditation Canada, which in 2018 included a priority for PCC, including engaging patients in all aspects of the organization. A formal patient engagement (PE) framework was developed and fully implemented in the primary health care system. The framework involved patients in strategic and operational aspects of all organizational activities at national and health center levels, including participating in committees and activities such as quality improvement projects. Engaging patients in their own direct care was seen as part of the clinical process by our healthcare professional staff. Development of our patient engagement framework included recruiting a significant number of patients, outlining governance for implementation and oversight, documenting all the processes involved, and then implementing the PE framework. The outcomes of implementation of the PE framework include evidence of benefits for the organization, staff, and patient advisors. Although more patients responded to requests to provide feedback on their care, the patient experience data has not shown significant improvement in patients’ perceptions of their care experiences in our health centers as a result of engaging patient at service design level. Our experience demonstrates the intricacy of engaging patients in a healthcare system. Implementation of patient engagement in the clinical care process needs to be given equivalent weight in a patient engagement framework.
Experience Framework
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework (https://theberylinstitute.org/experience-framework/). Access other PXJ articles related to this lens. Access other resources related to this lens
Storytelling at board meetings: A case study of co-developing recommendations
Get PDFIn healthcare, stories shared by patients often provide details and insights into experiences of illness and care. Stories are a way to educate healthcare providers and others to improve care and systems to become more patient and family centred and to better meet patients’ needs and priorities. Telling stories may bring benefits to both storytellers and audience members but also presents risks of harm. A reflective storytelling practice aims to honor stories and storytellers by ensuring there is time to prepare, reflect, learn, ask questions, and engage in dialogue with the storyteller to explore what went well and where there are learning and improvement opportunities.
Healthcare Excellence Canada (HEC) is a pan-Canadian health organization focused on improving the quality and safety of care in Canada. HEC commits to engage patients, caregivers, and communities and aims to develop practices and structures to enable engagement activities. At the request of the HEC Board, the Patient Engagement and Partnerships team co-developed recommendations on the process for how best to meaningfully share stories at Board meetings, including stories from those leading, providing, and receiving care. This Case Study outlines the process HEC used to co-develop storytelling recommendations, focusing on a trauma-informed approach to create safe spaces for preparing, learning from and reflecting on stories, to clearly articulate their purpose, and to ensure the locus of control for storytelling rests with the storytellers. This Case Study shares these recommendations and invites other organizations to use these recommendations and/or adapt them within their own context.
Experience Framework
This article is associated with the Infrastructure & Governance lens of The Beryl Institute Experience Framework (https://www.theberylinstitute.org/ExperienceFramework). Access other PXJ articles related to this lens. Access other resources related to this lens
Interventions that improve patient experience evidenced by raising HCAHPS and CG-CAHPS Scores: A narrative literature review
Get PDFHospital administrators and researchers often use large, standardized surveys that examine patient satisfaction to evaluate whether interventions improve patient experience. To summarize the breadth of these interventions and how large, standardized surveys are used to evaluate them, a multidisciplinary research team conducted a review. They used PubMed and Google Scholar searches, reviews of reference lists and targeted searches to locate studies. They evaluated one hundred and twenty-four articles and fifty-eight articles met the inclusion criteria for the narrative review. Using the standard methodology for narrative reviews, the authors synthesize salient themes in the articles and highlight exemplar studies. The review is qualitative, limited, and subjective, and provides a novel analysis of a selection of important and recent research studies. Interventions are in four domains: communication, information and communication technologies (ICT’s), nursing, and the healthcare environment. The majority evaluate patient experiences using the Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) or the Clinician and Group Consumer Assessment of Healthcare Providers and Systems (CG-CAHPS), two widely used, standardized, validated surveys to measure patient experience. Results suggest that verbal, non-verbal, and empathetic communication studies are especially salient in the literature. Research about ICT’s includes promising interventions that need additional testing using large datasets. Finally, many studies evaluate nursing and the healthcare environment, but evaluations of interventions in these areas are often inconclusive because nursing and healthcare environments vary widely within and between hospital systems. The review reveals reliable innovations, inconclusive research, as well as many directions for future research.
Experience Framework
This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework. (https://www.theberylinstitute.org/ExperienceFramework). Access other PXJ articles related to this lens. Access other resources related to this lens
Whose party is it anyway? An invitation from a patient experience advocate
Get PDFIn this commentary, the associate editor of Patient Experience Journal (PXJ) discusses the need to center the human experience in health care by celebrating its essential human, the patient. We have a duty to honor and uphold the dignity of the importance of patient priorities, needs, and preferences, and those of their families. We honor, empower, and celebrate the patient experience at the Patient Experience Journal. We do this not only for the sake of patients, but for our sakes as well, so that we might all delight in patient-centered healthcare systems across the globe.
Experience Framework
This article is associated with the Culture & Leadership lens of The Beryl Institute Experience Framework (https://theberylinstitute.org/experience-framework/). Access other PXJ articles related to this lens. Access other resources related to this lens