437 research outputs found
Perceptions of ‘Precision’ and ‘Personalised’ Medicine in Singapore and Associated Ethical Issues
No full text10.1007/s41649-021-00165-3Asian Bioethics Revie
Interview with YA author Vicki Grant
No full textWe feature an interview with Nova Scotian YA author Vicki Grant. Vicki is a prolific author who has written 14 books and has written over 100 episodes of children‘s TV. Vicki discusses her thoughts on reading positively and the meaning behind positivity, her favorite bad-day books, and how we as a community can promote reading positively. She makes us realize the importance of realism in writing and how important it is to connect with young readers
sj-docx-1-bds-10.1177_20539517221108988 - Supplemental material for Sharing precision medicine data with private industry: Outcomes of a citizens’ jury in Singapore
No full textSupplemental material, sj-docx-1-bds-10.1177_20539517221108988 for Sharing precision medicine data with private industry: Outcomes of a citizens’ jury in Singapore by Angela Ballantyne, Tamra Lysaght, Hui Jin Toh, Serene Ong, Andrew Lau, G Owen Schaefer, Vicki Xafis, E Shyong Tai, Ainsley J Newson, Stacy Carter, Chris Degeling and Annette Braunack-Mayer in Big Data & Society</p
Ethical language and decision-making for prenatally diagnosed lethal malformations
No full textIn clinical practice, and in the medical literature, severe congenital malformations such as trisomy 18, anencephaly, and renal agenesis are frequently referred to as 'lethal' or as 'incompatible with life'. However, there is no agreement about a definition of lethal malformations, nor which conditions should be included in this category. Review of outcomes for malformations commonly designated 'lethal' reveals that prolonged survival is possible, even if rare. This article analyses the concept of lethal malformations and compares it to the problematic concept of 'futility'. We recommend avoiding the term 'lethal' and suggest that counseling should focus on salient prognostic features instead. For conditions with a high chance of early death or profound impairment in survivors despite treatment, perinatal and neonatal palliative care would be ethical. However, active obstetric and neonatal management, if desired, may also sometimes be appropriate.Dominic Wilkinson, Lachlan de Crespigny, Vicki Xafi
Interview with Vicki Lens, author, Poor Justice: How the Poor Fare in the Courts
No full textIt’s been said that for poor and low-income Americans, the law is all over. Join us for a conversation with Vicki Lens, who, in Poor Justice: How the Poor Fare in Court (Oxford University Press, 2015), shows us how vulnerable populations interact with the legal system. Prof. Lens will talk about fair hearings for welfare applicants, cases of child maltreatment and neglect, the ways in which the law protects and coerces people with mental illness, and the implications for homelessness on New York’s right to shelter
Conference on life and work of Vicki Baum
No full textCommemorating the 50th anniversary of Vicki Baum's death, this conference aims to rekindle the interest in the life and work of this author of 'Menschen im Hotel'. 26 - 27 Nov 2010, Institut für Wissenschaft und Kunst, Vienn
A randomised controlled trial to compare opt-in and opt-out parental consent for childhood vaccine safety surveillance using data linkage: study protocol
No full textExtent: 10p.Background: The Vaccine Assessment using Linked Data (VALiD) trial compared opt-in and opt-out parental consent for a population-based childhood vaccine safety surveillance program using data linkage. A subsequent telephone interview of all households enrolled in the trial elicited parental intent regarding the return or non-return of reply forms for opt-in and opt-out consent. This paper describes the rationale for the trial and provides an overview of the design and methods. Methods/Design: Single-centre, single-blind, randomised controlled trial (RCT) stratified by firstborn status. Mothers who gave birth at one tertiary South Australian hospital were randomised at six weeks post-partum to receive an opt-in or opt-out reply form, along with information explaining data linkage. The primary outcome at 10 weeks post-partum was parental participation in each arm, as indicated by the respective return or non-return of a reply form (or via telephone or email response). A subsequent telephone interview at 10 weeks post-partum elicited parental intent regarding the return or non-return of the reply form, and attitudes and knowledge about data linkage, vaccine safety, consent preferences and vaccination practices. Enrolment began in July 2009 and 1,129 households were recruited in a three-month period. Analysis has not yet been undertaken. The participation rate and selection bias for each method of consent will be compared when the data are analysed. Discussion: The VALiD RCT represents the first trial of opt-in versus opt-out consent for a data linkage study that assesses consent preferences and intent compared with actual opting in or opting out behaviour, and socioeconomic factors. The limitations to generalisability are discussed.Jesia G Berry, Philip Ryan, Annette J Braunack-Mayer, Katherine M Duszynski, Vicki Xafis, Michael S Gold, the Vaccine Assessment Using Linked Data (VALiD) Working Grou
Exploration of radiotherapy-related insufficiency fractures and risk factors of patients diagnosed with gynaecological cancer treated with radiotherapy: a service evaluation
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Vicki Potempa demonstrating at the pro-abortion rally in Sydney, New South Wales, May 2010 [picture] /
No full textTitle from acquisitions documentation.; Acquired in digital format; access copy available online.; Mode of access: Internet via World Wide Web.; Purchased from the photographer, 2010. "Vicki Potempa seen here at a pro-abortion rally in Sydney. Author and 2001 Outstanding Humanist Achiever, Vicki has been an advocate to Women's Reproductive Rights since 1966 when she underwent her own abortion"--Information supplied by photographer
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