130 research outputs found
sj-docx-1-msc-10.1177_09691413241230925 - Supplemental material for Reducing inequalities by supporting individuals to make informed decisions about accepting their breast screening invitations
No full textSupplemental material, sj-docx-1-msc-10.1177_09691413241230925 for Reducing inequalities by supporting individuals to make informed decisions about accepting their breast screening invitations by Sarah L Nicholson, Heidi Douglas, Stephen Halcrow and Patsy Whelehan in Journal of Medical Screening</p
Women's experiences of mammography : fresh insights and novel measures
No full textIntroduction:
Breast cancer is an important health problem with nearly 56,000 new invasive cases yearly in the UK. It is therefore the subject of a screening programme with mammography as the test.
Screening programme effectiveness depends partly on acceptability of the test but mammography is not always acceptable to patients.
This work aimed to improve upon current understandings of the impact of pain in mammography, and of the examination experience more broadly.
Objectives:
1. To determine the relationship between mammography pain and repeat participation in breast screening;
2. To explore the contemporary experience of mammography in depth, from both patient and practitioner perspectives;
3. To develop and validate measures of patient experience in mammography.
Methods:
1. A systematic review; 2. a qualitative interview study with Framework data management and thematic analysis; 3. an instrument development and measuring and modelling study incorporating the Rasch model.
Findings:
Painful mammography was the reason given by 11-46% of non-reattenders. Meta-analysis of a subset of studies showed a relative risk of non-reattendance after pain of 1.34 [95% CI 0.94-1.91].
Qualitative findings emphasised the importance of compassionate care and highlighted challenges practitioners face in providing it.
Measures of adverse positioning and compassionate care in mammography were developed and validated, although further refinements are needed. Additional measures included general service quality and pain predisposition.
In preliminary statistical analyses, mammography pain was associated with score on the pain predisposition measure. Compassionate care score was associated with general service quality score and showed some variation by mammographer.
Conclusions/recommendations:
Improved information and support interventions are required for women attending mammography for the first time and/or with high scores on the pain predisposition measure. An educational intervention to optimise compassionate care in mammography should be developed and tested, using a refined version of the compassionate care measure. The adverse positioning measure should be expanded and further validated."This work was supported by:
• The National Awareness and Early Detection Initiative (NAEDI), reference
C29002/A12256. NAEDI was a consortium under the auspices of the National
Cancer Research Institute (NCRI). Partners were Cancer Research UK,
Department of Health (England), Economic and Social Research Council, Health
& Social Care R&D Division, Public Health Agency (Northern Ireland), National
Institute for Social Care and Health Research (Wales) and the Scottish
Government.
• The College of Radiographers Industry Partnership Scheme (CoRIPS), grant
number 095
• The University of St Andrews School of Medicine Research Investment Fund
• Charitable donations from fundraising by Mrs Fiona Edwards." -- Fundin
Pain in mammography
No full textWhat is pain? Since 1979, physical pain has been defined by the International Association for the Study of Pain (IASP) as “an unpleasant sensory and emotional experience associated with actual or potential tissue damage, or described in terms of such damage” [1]. So, even in the context of specifically physical pain, it is widely accepted that there are affective (emotional) dimensions alongside the sensory perceptions.</p
Counting the Patsy Edwards Benefit Show proceeds
No full textThis 1951 photograph shows three bank executives counting the proceeds donated from the Patsy Edwards Benefit Show. Patsy Edwards was the ballad champion in 1949 and 1951 in the Mountain Youth Jamboree. Her father was accidentally killed while Ms. Edwards was performing for the Dance Masters of America in Washington, D.C. with other Mountain Youth Jamboree contestants. The Jamboree champions gave a benenfit program to assist her and her family. Founder and director of the Mountain Youth Jamboree, Hubert H. Hayes (1901-1964) auditioned and directed youth to perform in folk dance, music, and folk and ballad singing. The jamboree was held in the Asheville City Auditorium (now known as Thomas Wolfe Auditorium) from 1948 to 1973, and Hayes’ wife, Leona Trantham Hayes (1913-1989) continued to direct the program after his death in 1964. Hubert Hayes was an author, playwright, and alumni of Duke University
The effect of mammography pain on repeat participation in breast cancer screening: A systematic review
No full textUptake is crucial to reducing breast cancer mortality through screening. This review synthesised all available evidence on mammography pain as a deterrent to subsequent breast screening. Ten databases were searched. Studies containing empirical data relating mammography pain to breast screening re-attendance were included (n = 20). In the most robust studies asking women why they had not re-attended, 25%-46% cited pain, equivalent to approximately 47,000-87,000 women per year in England. The most robust evidence for an association between pain experienced at a previous mammogram and subsequent rates of re-attendance suggests that women who previously experienced pain are more likely than those who did not to fail to re-attend: RR 1.34 (95% CI: 0.94-1.91). The complexity of the pain phenomenon and of screening behaviours must be recognised. However, there is sufficient evidence to conclude that painful mammography contributes to non-re-attendance. Given the importance of cumulative participation, effective pain-reducing interventions in mammography are needed
Informed choice and consent among women attending for breast screening in the UK:data from a qualitative study
Get PDFIntroduction: While the concept of overdiagnosis can be difficult to understand, it has been shown that women wish to be informed about it. The latest breast screening information leaflet offers considerable detail about potential benefits and harms of screening, including overdiagnosis. However, it is unknown how much use women attending for screening make of the leaflet. We report qualitative findings on informed choice and consent within the UK breast screening programme.Methods: Participants were clients and mammographers from breast screening units in Scotland and London. Semi-structured, in-depth, individual interviews were conducted and thematic analysis performed. Results: Twenty-two clients were interviewed, aged 50−72: seven first-attenders and 15 subsequent, from a range of deprivation categories. Eighteen mammographer-participants included assistant, registered, and advanced practitioners, with a wide range of ages and lengths of experience. Most clients understood that screening aims to detect breast cancer early to improve the chances of survival. Several were aware of the possibility of false positive results and the risk of mammography inducing a cancer. Others could not name any risks of screening. Women had mostly either skimmed the information leaflet or not read it at all. Several mammographers recounted experiences where women had appeared to attend under pressure from others and where severe challenges existed in ascertaining consent. Conclusion: These qualitative findings that some women attend for breast screening with little knowledge of the balance of risks and benefits, and in some cases may encounter coercion, require further investigation. New methods of communication may be indicated.<br/
Patsy Edwards singing with Jimmy Haynie on guitar
No full textThis undated photograph shows Patsy Edwards of Woodfin Jr. High School singing with Jimmy Haynie on guitar. Ms. Edwards was the ballad champion in 1949 and 1951 in the Mountain Youth Jamboree. Founder and director of the Mountain Youth Jamboree, Hubert H. Hayes (1901-1964) auditioned and directed youth to perform in folk dance, music, and folk and ballad singing. The jamboree was held in the Asheville City Auditorium (now known as Thomas Wolfe Auditorium) from 1948 to 1973, and Hayes’ wife, Leona Trantham Hayes (1913-1989) continued to direct the program after his death in 1964. Hubert Hayes was an author, playwright, and alumni of Duke University
Women's experiences of mammography:a qualitative exploration
No full textMortality reductions from screening for breast cancer are restricted if women do not attend regularly[1]. Pain during mammography has been shown to inhibit regular participation in breast screening[2]. Considering the lack of effective interventions to reduce pain in mammography[3], a better understanding of the screening experience is needed. We undertook a qualitative investigation to develop this understanding, so that both the experience of mammography and screening re-attendance rates may ultimately be improve
Client and practitioner perspectives on the screening mammography experience
Get PDFMammography is often painful and unpleasant, but effective interventions to improve the experience remain scarce. As a first step towards more effective interventions, we aimed to achieve a thorough, contemporary understanding of thoughts, feelings and behaviours which affect and arise from mammography experiences. Research and professional experience suggest that the interaction between client and practitioner may be paramount in determining the quality of a client’s experience. Therefore this study aimed to capture the perspectives of clients and mammography staff from UK breast screening programmes. Thematic analysis of semi-structured qualitative in-depth interviews with 22 clients and 18 staff revealed that clients had positive attitudes to breast screening and mostly low knowledge about potential harms. Staff data indicated that some women attend for breast screening under pressure from others. Pain and coping with it were prominent themes, with wide variations in pain experiences. Clients recognised differences in mammographers’ abilities to put them at ease. Staff difficulties included empowering clients within the confines of a taxing technique, and maintaining compassionate care when under strain. Future intervention development should focus on the information and support needs of women prior to the appointment and on effectively training and supporting mammographers to deal with challenging encounters
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