62 research outputs found
sj-docx-1-jre-10.1177_15562646211053538 - Supplemental material for The Challenges of Big Data for Research Ethics Committees: A Qualitative Swiss Study
No full textSupplemental material, sj-docx-1-jre-10.1177_15562646211053538 for The Challenges of Big Data for Research Ethics Committees: A Qualitative Swiss Study by Agata Ferretti, Marcello Ienca, Minerva Rivas Velarde, Samia Hurst and Effy Vayena in Journal of Empirical Research on Human Research Ethics</p
Indigenous Perspectives of Disability
No full textThis article contributes to the discourse on disability from an indigenous perspective, an area which has not been investigated in any detail. It explores the perceptions of disability and lived experiences of 18 indigenous individuals with impairments from Australia, Mexico and New Zealand. The findings from this research suggest that participants from these countries share some common standpoints, particularly in relation to their disassociation from Western disability discourses and their common experiences of social oppression. This paper calls for further reflection about on-going colonisation and an in-depth analysis of the lack of attention given to this issue within the main models of disability
Addressing Double Layers of Discrimination as Barriers to Health Care: Indigenous Peoples with Disabilities
No full textMultiple or aggravated forms of discrimination have not been properly dealt with in health systems. This article reports on the findings of three case studies conducted in Australia, Mexico, and New Zealand that look at the experiences of Indigenous persons with disabilities accessing health care. The findings show that health systems in these three countries have not sufficiently addressed barriers to health care arising from aggravated forms of discrimination, such as the intersection between disability and indigeneity. Findings reveal also how both interpersonal and systematic discrimination emerged from protocols and procedures that often had no discriminatory intent but had a disproportionately negative impact on populations such as Indigenous persons with disabilities. The article also offers recommendations on how to improve awareness and cultural competency to tackle discriminatory practices in order to improve health access and effective adherence of Indigenous peoples in health care settings
The Convention on the Rights of Persons with Disabilities and its implications for the health and wellbeing of indigenous peoples with disabilities
No full textThis thesis explores how the expressed health needs of indigenous peoples with disabilities resonate with the mandate of Article 25 ‘Health’ of the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The perceptions of indigenous peoples with disabilities are investigated, regarding their access to, and expectations of, health care. Their views are compared to those of health workers, senior bureaucrats and United Nations delegates. A qualitative approach was taken to the research presented in this thesis, framing the research methodology on indigenous enquiry. An exploratory case study approach was taken to compare three jurisdictions: Australia, Mexico and New Zealand. It presents the views of 50 participants including 18 indigenous persons with disabilities, 19 health workers, 10 decision makers and 6 United Nations Delegates. The findings suggest that the health needs of indigenous peoples with disabilities are largely underserved and misunderstood by health departments. Poverty, discrimination and disenfranchisement emerged as being the possible major determinants of the ill health experienced by indigenous peoples with disabilities. This thesis concludes that is necessary to build capacity and rights literacy across indigenous peoples with disabilities, particularly with respect to the CRPD; alongside with a legitimate redistribution of resources and decision-making in response to the expressed health needs of indigenous peoples with disabilities
The Convention on the Rights of Persons with Disabilities and its implications for the health and wellbeing of indigenous peoples with disabilities: A comparison across Australia, Mexico and New Zealand
No full textThis paper explores how the expressed health needs of Indigenous peoples with disabilities resonate with the mandate of Article 25 ‘Health' of the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The perceptions of indigenous peoples with disabilities are investigated, regarding their access to, and expectations of, health care. Their views are compared to those of health workers, senior bureaucrats and United Nations delegates. An exploratory case study approach was taken to compare three jurisdictions: Australia, Mexico and New Zealand. The data collection techniques used involved semi-structured interviews, focus groups and field notes. The findings suggest that the health needs of indigenous peoples with disabilities are largely underserved and misunderstood by health departments. Specialised and preventive health care for those with disabilities was found to be particularly problematic. Poverty, discrimination and disenfranchisement emerged as being the possible major determinants of the ill health experienced by indigenous peoples with disabilities. The findings and conclusions outlined in this paper advocate the need to build capacity and rights literacy for indigenous peoples with disabilities,particularly with respect to the CRPD, in order to enhance its impact on the health of indigenous people. A legitimate redistribution of resources and decision-making in response to the expressed health needs of indigenous peoples with disabilities is needed if the vision of the CPRD is to be realised in relation to Article 25
Addressing Double Layers of Discrimination as Barriers to Health Care: Indigenous Peoples with Disabilities
No full textAbstract
Multiple or aggravated forms of discrimination have not been properly dealt with in health systems. This article reports on the findings of three case studies conducted in Australia, Mexico, and New Zealand that look at the experiences of Indigenous persons with disabilities accessing health care. The findings show that health systems in these three countries have not sufficiently addressed barriers to health care arising from aggravated forms of discrimination, such as the intersection between disability and indigeneity. Findings reveal also how both interpersonal and systematic discrimination emerged from protocols and procedures that often had no discriminatory intent but had a disproportionately negative impact on populations such as Indigenous persons with disabilities. The article also offers recommendations on how to improve awareness and cultural competency to tackle discriminatory practices in order to improve health access and effective adherence of Indigenous peoples in health care settings.</jats:p
Innovative education pathways for refuges to strengthen health system
No full textThe purpose of this paper is to explore how technology mediated interventions can enable refugee youth to contribute to health care delivery, from a health systems approach. Using the WHO’s health system building blocks this chapter will present the findings of the implementation of a blended programme for capacity building on Dadaab refugee camp in Kenya. It will use four of the six building blocks of the WHO’s health system architecture to examine the interaction of human resources, technology, governance and service. The findings include a qualitative account of the views of refugee youth and health services’ managers. The conclusion will reflect on how people-centred health systems need to understand the social and macro-structural constraints faced by refugees, as well as the human agency of people in this context, as these dynamics are shaping the profile of important aspects of the health workforce and consequently health service delivery in the region
Indigenous Persons with Disabilities: Access to Training and Employment
No full textHis paper is intended to contribute to the call originating from the World Conference on Indigenous Peoples (United Nations General Assembly, 2014) outcome document by providing a first overview of the available data regarding access to employment for indigenous women and men with disabilities The paper concentrates on the following objectives: - examining international experiences in the vocational training and employment of indigenous persons with disabilities, - highlighting examples of good practice and successful outcomes, as well as examples of initiatives that have not worked well; - discussing ways in which skills training and preparation for work contribute to the successful employment of indigenous persons with disabilities, looking at training and active labour market programmes targeting indigenous peoples, and whether these are disability-inclusive; - describing and commenting on the policy frameworks that seem most conducive to promoting training and employment opportunities for this group; and, - examining issues relating to land property rights and how these impact on livelihood
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