416 research outputs found
Assessing the Impact of Real-Life Cognitive Functioning in the Home: Development and Psychometric Study of the Multiple Errands Test–Home
No full textAbstract
Date Presented 3/30/2017
This initial psychometric study provides preliminary support for the use of the Multiple Errands Test–Home to identify the impact of executive dysfunction in the home environment for adults with mild and moderate stroke.
Primary Author and Speaker: Suzanne Burns
Additional Authors and Speakers: Marsha Neville</jats:p
GIS in Schools
No full textMarsha Alibrandi (with A. Thompson and R. Hagevik) is a contributing author, Remaking History with Interdisciplinary GIS .https://digitalcommons.fairfield.edu/education-books/1038/thumbnail.jp
Nelson Rockefeller, racial politics, and the undoing of moderate Republicanism
No full text“Nelson Rockefeller, Racial Politics, and the Undoing of Moderate Republicanism” examines shifts in the political terrain of the 1960s as related to social issues such as civil rights, crime, and welfare. The political career of Nelson Rockefeller, four-term Governor of New York (1958-1973), three-time candidate for the Republican presidential nomination, and iconic twentieth century moderate Republican, serves as a lens for understanding many moderate and liberal politicians’ struggle to navigate racial politics before and after the passage of the Civil and Voting Rights Acts of 1964 and 1965. Rockefeller’s transition from racially liberal advocate for the end of Jim Crow to early adopter of punitive drug laws that disproportionately affected racial minorities provides insight into the difficulty faced by liberals, both Republican and Democratic, when race became central to the political debates of the 1960s. This work reveals that liberal support for racial parity fractured and further entrenched inequality when the nation’s focus shifted from equality under the law to the more complex and intractable issues of equality in economic opportunity, housing, schooling, and criminal justice. “Nelson Rockefeller, Racial Politics, and the Undoing of Moderate Republicanism” examines shifts in popular opinion alongside the actions of politicians and political activists to provide a new perspective on the passage of legislation and implementation of social policies. Charting Rockefeller’s political prospects through the reactions of his constituents also creates opportunities to understand the eclipse of the moderate Republican tradition without focusing on the rise of conservative Republican icons of the 1960s. This study relies upon varied sources such as the public and private papers of Nelson Rockefeller, constituent letters, documents produced by the Republican National Committee, popular periodicals, polling data, public hearings, oral histories, and visual artifacts to create a work that takes into account people from all castes and classes regardless of party affiliation who felt the effects of Rockefeller’s political activism.Ph. D.Includes bibliographical referencesby Marsha Eileen Barret
1995 Sub-Librarians Meeting: Let a Woman in Your Life: the Women in Conan Doyle\u27s Life and Fiction
No full textAt the 23rd (Irregular) meeting, the Sub-Librarians greeted members of multiple Chicago area scion societies at the Harold Washington Library Center. The meeting began with a champagne and dessert reception in the lower lobby and then moved into the video theater for the program. Toasts were given by Katherine Rankin, Deborah Schlesinger and others.
Marsha Pollak, ASH, welcomed everyone and introduced Ely. M. Liebow, professor of English at Northeastern Illinois University and author of Dr. Joe Bell: Model for Sherlock Holmes. Liebow spoke on the topic Let a Woman in Your Life: The Women in Arthur Conan Doyle\u27s Life and Fiction
Barriers to hydroxyurea use in sickle cell disease: perspectives of providers, families, and adults
No full textPURPOSE: Sickle cell disease (SCD) is an inherited blood disorder that affects the hemoglobin protein of red blood cells and has a significant impact on morbidity, mortality, and quality of life. Hydroxyurea has been FDA approved since 1998 as a disease-modifying therapy for SCD. However, hydroxyurea has not been optimally utilized for those with SCD. The purpose of this study was to evaluate reasons for hydroxyurea use, from the perspectives of providers, adults with SCD, and parents/caregivers of children with SCD, as well as perceived barriers to its use. We examined indications and reasons for being “on hydroxyurea,” defined by patients as currently taking hydroxyurea, and reported on pain frequency, perceptions of barriers, hydroxyurea adherence, and health care access for patients with SCD who were either on and not on hydroxyurea.
METHODS: We conducted a cross sectional analysis of data collected within the Pacific Sickle Cell Regional Collaborative (PSCRC), a consortium of nine western U.S. states. Individuals were eligible for this study if they 1) had a confirmed diagnosis of SCD, 2) were followed at one of the PSCRC sites, and 3) were eligible for hydroxyurea therapy. Parents/caregivers of children with SCD less than 18 years and adults with SCD 18 years and older completed a brief survey about hydroxyurea use, indications, side effects, pain frequency, number of hospital and emergency department (ED) admissions per year, and individual and family perceptions of barriers to hydroxyurea use. Participants completed a follow-up survey annually, but we reported only on baseline data. Data collection occurred between February 2016 and May 2018.
RESULTS: Individuals with SCD (n = 413) included 1) children (n=178; 6.7 ± 3.4 years), 2) adolescents (n=66; 15.0 ± 1.4 years), 3) young adults (n=57; 21.4 ± 2.6 years), and 4) adults (n=112; 39.2 ± 10.6 years). The majority were predominantly female (51.6%), African American (93.2%), and had HgbSS (74.1%) genotype. The majority of children (65.2%), adolescents (62.1%), and young adults (54.4%) were on hydroxyurea; fewer adults (39.3%) were on hydroxyurea. The majority with HgbSS (65.5%) were adherent to hydroxyurea. There was no significant difference in hospitalizations for pain, ED visits, and pain severity in the previous 12 months between individuals who were and were not on hydroxyurea, and between individuals who were and were not adherent to hydroxyurea. For those with a current prescription for hydroxyurea, the majority (66.5%) were receiving hydroxyurea for recurrent pain episodes or acute chest syndrome (19.9%). Hydroxyurea was discontinued because of patient/family preference (34.5%), chronic transfusions (31.1%), and side effects (24.1%). Patients prescribed hydroxyurea for empiric use (n=21) had fewer hospitalizations for pain, ED visits, and severe pain interfering with daily activities. The major barriers to hydroxyurea use, from the perspective of individuals with SCD or their caregivers, were 1) forgetting to take the medicine (19.4%), 2) worried about side effects (16.4%), and 3) lack of knowledge about hydroxyurea (13.6%). Fewer young adults (49.1%) and adults (50.0%) had primary care providers than children (78.1%) and adolescents (65.2%).
CONCLUSIONS: Barriers to hydroxyurea use persist with emerging solutions to alleviate these barriers. For this sample, while hydroxyurea prescription rates by sickle cell specialists were similar to what has been seen in some other studies, neither hydroxyurea use nor adherence were associated with decreased frequency of hospitalizations for pain, ED visits, and severe acute pain episodes in the previous 12 months. Future studies need to evaluate hydroxyurea prescription patterns, duration on hydroxyurea, and adherence to hydroxyurea. Healthcare providers are recommended to prescribe hydroxyurea for eligible individuals who may benefit from it, such as those HgbSS or HgbS-β0 thalassemia genotype, and prescribe for empiric use to minimize complications. Provider and patient education about hydroxyurea could reduce common barriers experienced by individuals with SCD. It is important to customize educational resources to specific concerns for different age groups. Individuals 18 years and older with SCD have been documented with more ED visits and hospitalizations due to pain, most likely because they did not have a primary care provider and an adult hematologist with expertise in SCD. Future studies need to evaluate whether primary care providers who receive SCD education may promote hydroxyurea use and adherence. Dedicating time and resources for shared decision making between providers and patients/families can address concerns about hydroxyurea and increase patient/family confidence when deciding about hydroxyurea. As more disease-modifying therapies become available for individuals with SCD, strategies for shared decision making facilitate standardization and optimize the use of hydroxyurea and emerging therapies
Health Care Disparities Among Adolescents and Adults With Sickle Cell Disease: A Community-Based Needs Assessment to Inform Intervention Strategies
No full textObjective: Adolescents and adults with sickle cell disease (SCD) face pervasive disparities in health resources and outcomes. We explored barriers to and facilitators of care to identify opportunities to support implementation of evidence-based interventions aimed at improving care quality for patients with SCD. Methods: We engaged a representative sample of adolescents and adults with SCD (n = 58), health care providers (n = 51), and community stakeholders (health care administrators and community-based organization leads (n = 5) in Northern California in a community-based needs assessment. We conducted group interviews separately with participant groups to obtain in-depth perspectives. Adolescents and adults with SCD completed validated measures of pain interference, quality of care, self-efficacy, and barriers to care. Providers and community stakeholders completed surveys about barriers to SCD care. Results: We triangulated qualitative and quantitative data and found that participants with SCD (mean age, 31 ± 8.6 years), providers, and community stakeholders emphasized the social and emotional burden of SCD as barriers. Concrete barriers agreed upon included insurance and lack of resources for addressing pain impact. Adolescents and adults with SCD identified provider issues (lack of knowledge, implicit bias), transportation, and limited social support as barriers. Negative encounters with the health care system contributed to 84% of adolescents and adults with SCD reporting they chose to manage severe pain at home. Providers focused on structural barriers: lack of access to care guidelines, comfort level with and knowledge of SCD management, and poor care coordination. Conclusion: Strategies for improving access to compassionate, evidence-based quality care, as well as strategies for minimizing the burden of having SCD, are warranted for this medically complex population
Teaching green: The high school years
No full textMarsha Alibrandi is a contributing author, Thinking Spatially: GIS in the high school classroom .
Book description: This resource is ideal for anyone working with young people in grades 9-12, whether in schools or in non-formal educational settings. Richly illustrated, it offers 50 teaching strategies that promote learning about natural systems and foster critical thinking about environmental issues, both local and global. It contains new approaches to learning, strategies for living sustainably, and numerous activities that promote interdisciplinary learning. In addition, the book provides suggestions for how best to green individual subject areas, develop integrated learning programs or replicate exemplary programs created by innovative schools and communities.https://digitalcommons.fairfield.edu/education-books/1035/thumbnail.jp
All the Lovely Broken People
No full textIt would be difficult to imagine a reader who cannot relate to Barber´s poetry on a personal and emotional level. Reading her poems becomes a private conversation with an acute sensibility characterized by a profound understanding of human relationships and the ending thereof.
- The Journal of Canadian Poetry
Marsha Barber´s poetry embodies clear-eyed observation, uncommonly thoughtful reflection, and abundant empathy, in a voice that is strong, crisp and memorable. It gets to the heart of each subject it takes on, whether childhood and the pains of growth, intimate portraiture of family members and famous creators, sorrow at the passing of loved ones, or events in the wider world. This is an involving, moving and wise book, by an author who becomes a trusted confidante, a good friend.
- Allan Briesmaster </p
2001 Sub-Librarians Meeting: Tea and Mystery
No full textMarsha Pollak welcomed the Sub-Librarians and members of local scions, including the Scowrers and Molly Maguires, the Tide-Waiters, the Knights of the Gnomon, and Disjecta Membra, to the 29th (Irregular) annual meeting. Once again the group met in the Savoy Room (now a Crowne Plaza Hotel) and had a delicious afternoon tea with tea sandwiches, scones and pastries.
The traditional toasts were made to Lomax by Marc Kaufman, to Sherlock Holmes by Joe Coppola, to Baron Gruner by Bridget Stearns, to Kitty Winter by Alberta Hankenson, and to Hill Barton.
Dianne Day was our featured speaker. Day is the author of the Fremont Jones mystery stories. The first book in this series, The Strange Files of Fremont Jones, was set in 1905 San Francisco where Fremont has a career as a type-writer and buys a copy of Collier\u27s Weekly with the latest Sir Arthur Conan Doyle Sherlock Holmes mystery.
The meeting closed with the reading of 221B
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