328,389 research outputs found
Ophthalmic complications of spina bifida and hydrocephalus
No full textThis thesis represents an attempt to further our knowledge of the ophthalmic complications of spina bifida and hydrocephalus by means of literature review and a long term clinical study, and to determine whether regular ophthalmic supervision can assist in the general management of affected children. The ophthalmic complications of spina bifida have often been reported in the literature and thought to merit regular supervision of affected children, yet few centres currently offer this service. In this study 322 children attending one regional centre were examined repeatedly over a six year period by one ophthalmologist. Ophthalmic complications were found to be very common. They frequently provided evidence of raised intracranial pressure due to shunt dysfunction even when other objective evidence was lacking. Every spina bifida and hydrocephalus clinic should have an ophthalmalogist in its medical team. Preservation of visual function and early diagnosis of raised intracranial pressure in these children should result from this arrangement
Lifestyle in adults aged 35 years who were born with open spina bifida: prospective cohort study.
No full textBACKGROUND AND METHODS: From 1963 to 1971, 117 babies with open spina bifida were treated non-selectively from birth. In 2002 we reviewed all the survivors by postal questionnaire and telephone call. The aims were to find out how many were living independently in the community or were in open employment or drove a car. In addition to these achievements we recorded health, medication and admissions to hospital and asked how much daily help they needed.
RESULTS: Ascertainment was 100%. There had been 63 deaths, mainly of the most severely affected. The mean age of the 54 survivors was 35 years. The outcome in terms of disability ranged from apparent normality to total dependency. It reflected both the neurological deficit, which had been recorded in infancy in terms of sensory level, and events in the CSF shunt history. Overall about 2 in 5 of the survivors lived independently in the community, 2 in 5 drove a car, 1 in 5 was in competitive employment and 1 in 5 could walk 50 metres.
CONCLUSION: Although those who survived to age 35 years tended to be less disabled, 2 in 5 continued to need daily care
Transition into adult healthcare services in Scotland –findings from a study concerning service users at the Scottish Spina Bifida Association
No full textBackground and Aims Literature on interventions that enable young people with Spina Bifida and/or Hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members. The study reported here was set to quantify and articulate the experiences of service users who are or due to be going through the transition process in Scotland today. Methods and ResultsFocus group sessions, in the North of Scotland and in the ‘Central Belt’, captured rich qualitative data. A survey, sent to eligible participants on the Spina Bifida National database, offered complimentary data source. Despite the fact that the number of returned questionnaires was low (n=20) data analysis identified a number of core recurring themes. These include issues concerning Communications, Respect, Choice and Control. Findings suggest that there is a significant chasm between the political rhetoric and the reality faced by young people with Spina Bifida moving to adult healthcare services.ConclusionA possible way to facilitate successful transition of young people is using personal healthcare information as the locus for needed change. More research is needed to ascertain whether a ‘Person Centred Record’, which is set to empower young people on their transition pathway, is an appropriate transition tool. <br/
Investigation of compression behavior of PE/EVA foam injection molded parts
No full textThe main objective of the presented work is to evaluate the compression behavior of a polymeric foam blend by using a robust framework for the testing sequence of foaming injection molded parts, with the aim of establishing a standard testing cycle for the evaluation of new matrix material. The research purpose is to assess parameters influencing compression behavior and give useful suggestions for the implementation of a finite element analysis. The polymeric blend consisted of a mixture of low density polyethylenes (LDPEs), a high- density polyethylene (HDPE), an ethylenevinyl acetate (EVA) and an azodicarbonamide (ADC). The thermal, rheological and compression properties of the blend are fully described, as well as the injection molding process for two specimen types
Abnormal skull findings in neural tube defects
No full textThe human neural tube develops and closes during the third and fourth week after conception and is normally completed by 28 days post-conception. Malformations, knows as neural tube defects, occure, when the normal closure process fails. Several clinical types of neural tube defects are recognized, anencefaly and spina bifida being the most common. Such malformations are generally associated with cranial abnormlities
Nuove tecnologie, attivismo telematico e società civile: un difficile rapporto dagli esiti talvolta incivili
No full textL'articolo è suddiviso nel seguente modo: i paragrafi 1 e 2 sono di Antonio La Spina. I restanti 3, 4, 5 e 6 di Anna Fici. Vi si affronta il tema delle modificazioni culturali imposte alla società civile dalla nuova realtà telematica, globalizzata e globalizzante. Si prendono in considerazione i valori che hanno dato senso alla diffusione della rete; valori portati avanti da tutta un'ampia costellazione di movimenti che nel loro insieme costituiscono l'attivismo telematico e che hanno profondamente contribuito all'affermarsi di un nuovo concetto e di nuove pratiche di partecipazione politica
Continence advice by telehealth for young people
No full textChildren and young people operate in an advanced technological world where new, exciting opportunities exist for remote interactions. To engage with these service users, we set up a nurse-led telehealth facility that enabled young people with spina bifida to access specialist continence service from home. This article describes efforts to embed this innovation into practice and offer insight to some of the challenges we faced in the process. It offers practical guidance on setting up similar services.</p
3D ultrasound in fetal spina bifida
No full text3D ultrasound can be used to study the fetal spine, but skeletal mode can be inconclusive for the diagnosis of fetal spina bifida. We illustrate a diagnostic approach using 2D and 3D ultrasound and indicate possible pitfalls
Spina e l’Etruria padana
No full textIl saggio affronta le dinamiche storico-economico-sociali di Spina nelm quadro del contesto dell'etruscita padan
Spina bifida and you
No full textYoung ASBAH SeriesSIGLEAvailable from British Library Document Supply Centre- DSC:85/36387(Spina) / BLDSC - British Library Document Supply CentreGBUnited Kingdo
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