125 research outputs found
Reflections on Knowing, Not Knowing and Being in Palliative Care Nursing
No full textResponses to questions from dying people and their families are as individual as each nurse, patient, family member or situation. This is well recognised and an unspoken truth in palliative care practice
This paper explores the subjective nature of knowledge in palliative care generated through capturing moments of practice and subsequent reflections. This demonstrates how the author uses her model of care to open a space that enables the person and their family to find meaning from their experience and articulate what they need at the time.
The author identifies her interest in the paradoxical reality of knowing and not knowing and describes how that paradox contributes to her role in supporting individual’s needs within their realities
Reflections on Knowing, Not Knowing and Being in Palliative Care Nursing
No full textResponses to questions from dying people and their families are as individual
as each nurse, patient, family member or situation. This is well recognised and an
unspoken truth in palliative care practice
This paper explores the subjective nature of knowledge in palliative care
generated through capturing moments of practice and subsequent reflections. This
demonstrates how the author uses her model of care to open a space that enables the
person and their family to find meaning from their experience and articulate what they
need at the time.
The author identifies her interest in the paradoxical reality of knowing and
not knowing and describes how that paradox contributes to her role in supporting
individual’s needs within their realities
Chosen Moments: a Reflective Journey Illustrating Terminally Ill Patients Choosing the Moment to Die
No full textIn this project the author reveals how she is observing and thinking as she cares for people who are dying. She records her reflections and insights and most profoundly reveals that there is life right up to the moment of death, having observed terminally ill patients choosing the precise moment to die. She describes her observations of these moments by using poetry and stories, and explores the implications for her practice as a result.
The author presents her reflections using an individualistic, reflective and exploratory perspective which is informed by the work of nursing scholars; Taylor (2000), Benner (1984) and Johnstone (1999). This paper is framed using the metaphors of a journey and a window to indicate the reflective process that the author used to journal her observations in practice over time. This offers a professional and personal record of the author's insights
Dignity and Palliative Care: a Search to Discover the True Meaning of the Concept of ‘Dying with Dignity’
No full textThis paper presents an exploration of a foundational goal of palliative care nursing which is to help patients die with dignity. The paper presents this practice exploration as a journey to gain understanding of the concept of dignity; it does not avoid the difficulties encountered in practice situations because dying with dignity is unique and curiously also invisible and different for everyone.
Much of human life is conducted through stories and much of nursing involves telling and listening to stories. Many of our social institutions are compromised almost entirely of opportunities for telling and retelling stories. Nurses are constantly listening to patients telling them what is going on in their lives and because of this the stories related here are written bold and raw. The three stories explore and reveal in-depth details of nursing practice that evolved and changed after reflection. The paper also reveals and explores the untold and often painful stories that challenge nurses’ capacity to offer dignified care.
To deepen the exploration towards discovering ways to articulate the complexity of dignity, the author reflected on the nature of the practice changes documented in the stories and then used a range of diverse literature and her love of the paintings and philosophy of a New Zealander, Ralph Hotere, to support her ideas that dignity is indeed a complex phenomenon
What is sensory integration and how does one incorporate it into an elementary autism spectrum program?
No full textThis capstone researches the topic of sensory integration and how it can be incorporated into an elementary autism spectrum disorder program. The research was completed in a Level IV ASD program with students who have challenging behaviors over the course of one month. The author gives information from current research and practices and uses them to help create sensory integration curriculum, programs, and strategies to use with elementary aged students. The author also discusses the connection created between ASD and sensory integration dysfunction (SID)
Collaborative Practice: a Study in Bridging the Gap to Transform the Delivery of Specialist Palliative Nursing Care in Residential Aged Care Facilities
No full textThis paper documents a practice development initiative with the aim of formulating a rationale for the professional practice development of a
relatively recently conceived nursing initiative; that of a Palliative Care Liaison Nurse (PCLN) role. The project involved conducting an inquiry through a search of the literature with the aim of discovering ways to articulate, then develop, the role to meet the needs of elderly people living in Residential Aged Care Facilities (RACFs), their family and the whanau (whanau is a maori term
specific to describing maori family's). The paper initially explores the concept of liaison roles globally, to consider how this role might be located as an interagency position between palliative care and aged care within the context of
Aotearoa/New Zealand. The paper then reveals the perceived skills and personal attributes required by a person in the PCLN role that the author, drawing from personal and professional experience of having been appointed to this position, considers are necessary to effectively manage the diverse dimensions of this role. Bridging the gap is a key role discussed which centres on the capacity to organise and present an effective education program while supporting, encouraging and role modeling for staff providing the day to day nursing care. This role involves practice wisdom and advocating for change and
tolerance within everyday practice. An example of this dimension is discussed in depth, because the researcher considers that through staff working together, they can effectively bridge the knowledge-practice gap which exists between
specialist palliative and gerontological nursing care. Reflecting on my experience in establishing this role has helped me to evaluate and present a
case for promoting and establishing the PCLN role. The desired goal of caring for the dying elderly in RACFs being integrated, cost-effective, and creatively sustained at an acceptable level for the patient, their family or whanau and for staff
Abstract 1634: A comprehensive guide for managing large-scale collaborative genomics research projects
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