1,721,029 research outputs found
Relevance of research networks in internal medicine
No full textComing from a short international review reasons for networking of scientific research in Germany are given. Success and challenges of medical competence networks are listed, and it is argued how important it is to bridge networks in health care and medical research networks. Some examples from internal medicine are given. The prominent central role of patients is emphasized. Finally it is stated that Germany so far has not established the prerequisites to implement sustainable collaborative infrastructures. Specifically financial, legal, and political support is missing. In addition, it becomes clear that - in contrast to the USA - Germany lacks sufficient medical-informatics specialists as well as health managers trained to manage IT or networked research. The planned introduction of a telematics infrastructure for health in Germany is perceived as a big chance for improvement
Health information regarding dementia - quality development in the Internet and in health care
No full textThis article presents results from the Vertical Network within the Dementia Competence Network. Having analyzed dementia-related health information on the Internet, quality requirements have been compiled and a web based dementia platform has been built up. On the one hand, there have been quality measures for the networks website and subsequently it has been certified with a seal of quality, On the other hand, a web portal with quality assured a id quality assuring information applications has been established to support the bidirectional knowledge transfer between research and health care. The web portal is linked to the project's website and will be refined in a patient-oriented way
Health information regarding dementia - quality development in the Internet and in health care
No full textThis article presents results from the Vertical Network within the Dementia Competence Network. Having analyzed dementia-related health information on the Internet, quality requirements have been compiled and a web based dementia platform has been built up. On the one hand, there have been quality measures for the networks website and subsequently it has been certified with a seal of quality, On the other hand, a web portal with quality assured a id quality assuring information applications has been established to support the bidirectional knowledge transfer between research and health care. The web portal is linked to the project's website and will be refined in a patient-oriented way
Das Projekt Gö*: Integriertes Informationsmanagement von Universität, Medizin und Bibliothek
No full textKey components and IT assistance of participant management in clinical research: a scoping review
No full textOpen-Access-Publikationsfonds 202
Options for Diabetes Management in Sub-Saharan Africa with an Electronic Medical Record System
No full textBackground: An increase of diabetes prevalence of up to 80% is predicted in sub-Saharan Africa (SSA) by 2025 exceeding the worldwide 55%. Mortality rates of diabetes and HIV/AIDS are similar. Diabetes shares several common factors with HIV/AIDS and multidrug-resistant tuberculosis (MDR-TB). The latter two health problems have been efficiently managed by an open source electronic medical record system (EMRS) in Latin America. Therefore a similar solution for diabetes in SSA could be extremely helpful. Objectives: The aim was to design and validate a conceptual model for an EMRS to improve diabetes management in SSA making use of the HIV and TB experience. Methods: A review of the literature addressed diabetes care and management in SSA as well as existing examples of information and communication technology (ICT) use in SSA. Based on a need assessment conducted in SSA a conceptual model based on the traditionally structured healthcare system in SSA was mapped into a three-layer structure. Application modules were derived and a demonstrator programmed based on an open source EMRS. Then the approach was validated by SSA experts. Results: A conceptual model could be specified and validated which enhances a problem-oriented approach to diabetes management processes. The prototyp EMRS demonstrates options for a patient portal and simulation tools for education of health professional and patients in SSA. Conclusion: It is possible to find IT solutions for diabetes care in SSA which follow the same efficiency concepts as HIV or TB modules in Latin America. The local efficiency and sustainability of the solution will, however, depend on training and changes in work behavior
Changing requirements and resulting needs for IT-infrastructure for longitudinal research in the neurosciences
No full textThe observation of growing "difficulties" in IT-infrastructures in neuroscience research during the last years led to a search for reasons and an analysis on how this phenomenon is reflected in the scientific literature. With a retrospective analysis of nine examples of multicenter research projects in the neurosciences and a literature review the observation was systematically analyzed. Results show that the rise in complexity mainly stems from two reasons: (1) more and more need for information on quality and context of research data (metadata) and (2) long-term requirements to handle the consent and identity/pseudonyms of study participants and biomaterials in relation to legal requirements. The combination of these two aspects together with very long study times and data evaluation periods are components of the subjectively perceived "difficulties". A direct consequence of this result is that big multicenter trials are becoming part of integrated research data environments and are not standing alone for themselves anymore. This drives up the resource needs regarding the IT-infrastructure in neuroscience research. In contrast to these findings, literature on this development is scarce and the problem probably underestimated. (C) 2014 Elsevier Ireland Ltd and the Japan Neuroscience Society. All rights reserved
Suitability of Customer Relationship Management Systems for the Management of Study Participants in Biomedical Research
No full textBackground: Longitudinal biomedical research projects study patients or participants over a course of time. No IT solution is known that can manage study participants, enhance quality of data, support re-contacting of participants, plan study visits, and keep track of informed consent procedures and recruitments that may be subject to change over time.. In business settings management of personal is one of the major aspects of customer relationship management systems (CRMS). Objectives: To evaluate whether CRMS are suitable IT solutions for study participant management in biomedical research. Methods: Three boards of experts in the field of biomedical research were consulted to get an insight into recent IT developments regarding study participant management systems (SPMS). Subsequently, a requirements analysis was performed with stake-holders of a major biomedical research project. The successive suitability evaluation was based on the comparison of the identified requirements with the features of six CRMS. Results: Independently of each other, the interviewed expert boards confirmed that there is no generic IT solution for the management of participants. Sixty-four requirements were identified and prioritized in a requirements analysis. The best CRMS was able to fulfill forty-two of these requirements. The non-fulfilled requirements demand an adaption of the CRMS, consuming time and resources, reducing the update compatibility, the system's suitability, and the security of the CRMS. Conclusions: A specific solution for the SPMS is favored instead of a generic and commercially-oriented CRMS. Therefore, the development of a small and specific SPMS solution was commenced and is currently on the way to completion
Personalisierte Medizin und individuelle Gesundheitsversorgung
No full textThe individualization of medicine and healthcare appears to be following a general societal trend. The terms "personalized medicine" and "personal health" are used to describe this process. Here it must be emphasized that personalized medicine is not limited to pharmacogenomics, but that the spectrum of personalized medicine is much broader. Applications range from individualized diagnostics, patient-specific pharmacological therapy, therapy with individual prostheses and implants to therapy approaches using autologous cells, and from patient model-based therapy in the operating room, electronic patient records through to the individual care of patients in their home environment with the use of technical systems and services. Although in some areas practical solutions have already been found, most applications will not be fully developed for many years to come. Medical and information technology are essential to personalized medicine and personal health, each driving the other forward
Personalisierte Medizin und individuelle Gesundheitsversorgung
No full textThe individualization of medicine and healthcare appears to be following a general societal trend. The terms "personalized medicine" and "personal health" are used to describe this process. Here it must be emphasized that personalized medicine is not limited to pharmacogenomics, but that the spectrum of personalized medicine is much broader. Applications range from individualized diagnostics, patient-specific pharmacological therapy, therapy with individual prostheses and implants to therapy approaches using autologous cells, and from patient model-based therapy in the operating room, electronic patient records through to the individual care of patients in their home environment with the use of technical systems and services. Although in some areas practical solutions have already been found, most applications will not be fully developed for many years to come. Medical and information technology are essential to personalized medicine and personal health, each driving the other forward
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