247 research outputs found
MUTATING CONCEPTS, EVOLVING DISCIPLINES: GENETICS, MEDICINE, AND SOCIETY
No full textAcknowledgments -- Ch. 1. Introduction / Lisa S. Parker and Rachel A. Ankeny -- Pt. 1. Historical reflections on core concepts -- Ch. 2. The classical gene: its nature and its legacy / Garland E. Allen -- Ch. 3. Dissolving dominance / Douglas Allchin -- Ch. 4. Flies, genes, and brains: Oskar Vogt, Nicolai Timofeeff- Ressovsky, and the origin of the concepts of penetrance and expressivity / Manfred D. Laubichler and Sahotra Sarkar -- Ch. 5. From reproductive responsibility to reproductive autonomy / Diane Paul -- Pt. 2. Perspectives from the philosophy of science -- Ch. 6. Understanding genetic causation and its implications for ethical issues concerning medical genetics / Fred Gifford -- Ch. 7. Reduction reconceptualized: cystic fibrosis as a paradigm case for molecular medicine / Rachel A. Ankeny -- Ch. 8. Scylla and Charybdis: adaptationism, reductionism, and the fallacy of equating race with disease / Joseph L. Graves, Jr. -- Ch. 9. Behavior as affliction: common frameworks of behavior genetics and its rivals / Helen E. Longino -- Pt. 3. Explorations of ethical, social, and legal consequences -- Ch. 10. The morality of prenatal testing and selective abortion: clarifying the expressivist objection / Licia Carlson -- Ch. 11. Meliorism at the millennium: positive molecular eugenics and the promise of progress without excess / Anita Silvers -- Ch. 12. Personal identity and the moral appraisal of prenatal therapy / David Wasserman -- Ch. 13. Conceptual and moral problems of genetic and non-genetic preventive interventions / Paul K. J. Han -- Ch. 14. Unraveling the codes: the dialectic between knowledge of the moral person and knowledge of the genetic person in criminal law / John H. Robinson and Roberta M. Berry -- Notes on contributors -- Inde
THE ETHICS OF INHERITABLE GENETIC MODIFICATION: A DIVIDING LINE?
No full textList of contributors -- Foreword: shopping at the genetic supermarket / Peter Singer -- List of abbreviations -- Acknowledgments -- Ch. 1. Is inheritable genetic modification the new dividing line? / John E.J. Rasko, Gabrielle M. O'Sullivan, and Rachel A. Ankeny -- Ch. 2. The science of inheritable genetic modification / John E.J. Rasko and Douglas J. Jolly -- Ch. 3. Nuclear cloning, embryonic stem cells, and gene transfer / Rudolf Jaenisch -- Ch. 4. Controlling bodies and creating monsters: popular perceptions of genetic modifications / Christoph Rehmann-Sutter -- Ch. 5. Inheritable genetic modification as moral responsibility in a creative universe / Denis Kenny -- Ch. 6. Ethics and welfare issues in animal genetic modification / Gabrielle M. O'Sullivan -- Ch. 7. Radical rupture: exploring biologic sequelae of volitional inheritable genetic modification / Françoise Baylis and Jason Scott Robert -- Ch. 8. "Alter-ing" the human species? Misplaced essentialism in science policy / Eric T. Juengst -- Ch. 9. Traditional and feminist bioethical perspectives on gene transfer: is inheritable genetic modification really the problem? / Rosemarie Tong -- Ch. 10. Inheritable genetic modification and disability: normality and identity / Jackie Leach Scully -- Ch. 11. Regulating inheritable genetic modification, or policing the fertile scientific imagination? A feminist legal response / Isabel Karpin and Roxanne Mykitiuk -- Ch. 12. Inheritable genetic modification: clinical applications and genetic counseling considerations / Joan A. Scott -- Ch. 13. Can bioethics speak to politics about the prospect of inheritable genetic modification? If so, what might it say? / Roberta M. Berry -- Glossary of scientific terms / John E.J. Rasko, Gabrielle M. O'Sullivan, and Rachel A. Ankeny -- Inde
Three approaches to chronic fatigue syndrome in the United Kingdom, Australia, and Canada: Lessons for democratic policy
No full textDecisions about diagnostic categories through clinical practice guidelines (CPGs) represent a central type of informal policy-making which affect the scope of publicly-regulated health services and directions for future research. We examine the development of three diverse sets of CPGs for chronic fatigue syndrome (CFS) in the United Kingdom, Canada, and Australia in order to examine diverse approaches to the development of such guidelines by medical professionals and other ‘experts’ in concert with inputs from the public, particularly those affected by the disease condition. We argue that the CPGs formulated for CFS in the United Kingdom, Australia, and Canada reflect three contrasting modes of policy development, and that the differential levels of acceptance of these guidelines by a range of relevant parties provide guidance as to which mode of policy development is likely to be most effective and acceptable particularly in the domain of controversial or contested domains within medicine.Rachel A. Ankeny and Fiona J. Mackenzi
Focus groups on consumers' responses to the use of New Breeding Techniques (NBTs) in food production
No full textRachel A. Ankeny and Rebekah Harm
Valuing data in postgenomic biology: How data donation and curation practices challenge the scientific publication system
No full textRachel A. Ankeny and Sabina Leonell
'Big picture' manifesto: Democratic policy making in contested domains
No full textThis essay articulates the overall approach utilized in this book for examining contentious policy questions associated with controversial and emerging issues in bioethics, which we term ‘Big Picture Bioethics.’ We explore conventional and more novel methodological tools that bioethics can use to evaluate and critique policy processes in these domains. We argue that more traditional bioethics has been limited in its capacity to provide answers to these sorts of questions, even though bioethicists are often consulted about such matters. We contend that there must be more adequate consideration of the range of structural, institutional, political, and cultural factors that shape both how a particular ethical challenge will be understood in a particular jurisdiction and the policy frameworks available for addressing the perceived need for policy. This chapter outlines a novel framework within which we can evaluate public policy making processes on the basis of their informed, democratic legitimacy, with particular attention to the considerations that must be in play when attempting to develop public participation and engagement that meet the requirements of deliberative democracy. It draws on both empirical information about opinions and values of a variety of publics, and the problematization of that empirical evidence as informed by debates in political theory. This approach is preferable because it allows us to avoid assumptions about the need for consensus, which are endemic to most of what is said about policymaking processes within liberal democracies that seek to attend to diversity. In addition, the approach advocated is non-substantive in the sense that it does not prescribe a particular moral framework, beyond a commitment to democratic legitimacy, and hence allows recognition of a range of moral views.Susan Dodds and Rachel A. Anken
Mixing metaphors in umbilical cord blood transplantation
No full textGabrielle N Samuel, Rachel A Ankeny, Ian H Kerridg
Bioethics authorship in context: How trends in biomedicine challenge bioethics
No full textResnik and Master (2011) propose a set of authorship guidelines for what they describe as "conceptual" papers in bioethics. These guidelines specifically address who should count as an author within multiply-authored conceptual research publications, given that various guidelines exist regarding empirical research in bioethics. Their arguments attend to an important and controversial issue, yet they do not take account of the broader historical and social contexts surrounding the growth of multiply-authored research publications. In this paper,we outline some of the characteristics of that context, particularly the rise of "big science" and its effects on patterns of practice (including authorship criteria) in the biomedical sciences and in turn bioethics.We then point to ways in which taking account of this context leads to challenges to some of Resnik and Master's conclusions, and sketch alternative models that could overcome those difficulties. © Taylor & Francis Group, LLC.Rachel A. Ankeny, Sabina Leonell
Increasing diversity at the cost of decreasing equity? Issues raised by the establishment of Australia's first religiously affiliated medical school
No full textThe document attached has been archived with permission from the editor of the Medical Journal of Australia. An external link to the publisher’s copy is included.Ian H Kerridge, Rachel A X Ankeny, Christopher F C Jordens and Wendy L Lipwort
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