222 research outputs found
Capturing the psychologic-personal perspective in spinal cord injury
No full textObjective: The overall objective of this study was to illustrate a systematic approach for capturing the psychologic-personal perspective in International Classification of Functioning, Disability and Health-based comprehensive research on spinal cord injury (SCI) in terms of what and how to measure. The specific aims were to identify (1) relevant areas of research for capturing the psychologic-personal factors in a study that is planned and conceptualized according to the comprehensive context of the International Classification of Functioning, Disability and Health, using SCI as a case in point; (2) a set of domains relevant for SCI research from a psychologic-personal perspective; and (3) suitable measurement instruments that can be considered for the assessment of those identified domains based on a set of predefined guiding principles.Design: The psychologic-personal factor structure was developed based on an item pool of 1246 entries from secondary analyses of available data from SCI studies. The domain set for psychologic-personal factors was identified through reviewing the scientific literature in PubMed and PsycInfo. The set of measurement instruments was collected using available measurement reviews, searches in the literature, instrument databases, and further sources and was selected using guiding principles.Results: Forty specific psychologic-personal factors, subdivided into seven areas of research, were identified: (1) sociodemographic personal characteristics, (2) the position in the immediate social and physical context, (3) personal history and biography, (4) feelings, (5) thoughts and beliefs, (6) motives, and (7) patterns of experience and behavior. The psychologic-personal factors domain set contains both cross-cutting outcome domains, namely quality-of-life, life satisfaction, subjective well-being, and sociodemographic personal characteristics, life events, positive and negative affect, perceived stress, locus of control, self-efficacy, purpose in life, coping, lifestyle, and personality. For each of the identified domains, a pool of measurement instruments was listed, and the application of predefined guiding principles for measurement instrument selection was exemplified for self-efficacy. It resulted in the selection of the General Self-Efficacy Scale by Schwarzer and Jerusalem (Measures in Health Psychology: A User's Portfolio. Causal and Control Beliefs. pp. 35-37; 1995).Conclusions: The results of the current article contributed to creating a transparent protocol for the Swiss Spinal Cord Injury Cohort study, coordinated by the Swiss Paraplegic Research in Nottwil, Switzerland. This article also stresses the relevance of the comprehensive approach to SCI and the consideration of the psychologic-personal perspective in this approach. The study, therefore, hopes to encourage scientists to use the International Classification of Functioning, Disability and Health and the psychologic-personal perspective as a frame of reference for their research. Furthermore, the research reported in this article can inform the World Health Organization's future development of the personal factors classification in the International Classification of Functioning, Disability and Health
RBC transfusion leads to an improvement of physical fatigue in women with acute postpartum anemia: the WOMB study (NCT00335023)
No full textAbstract 64Babette W. Prick, A.J. Gerard Jansen, Eric A.P. Steegers, Wim C.J. Hop, Marie-Louise Essink-Bot, Carin A. Uyl-de Groot, Dimitri N.M. Papatsonis, Bettina M.C. Akerboom, Godfried C.H. Metz, Henk A. Bremer, Aren J. van Loon, Rob H. Stigter, Joris A.M. van der Post, Marcel van Alphen, Martina Porath, Robbert J.P. Rijnders, Marc E.A. Spaanderman, Daniela H. Schippers, Kitty W.M. Bloemenkamp, Kim E. Boers, Hubertina C.J. Scheepers, Frans J.M.E. Roumen, Anneke Kwee, Nico W.E. Schuitemaker, Ben Willem J. Mol, Dick J. van Rhenen, Johannes J. Duveko
Verband tussen pijntype en arbeidsparticipatie bij personen met een dwarslaesie:resultaten van een crosssectionele studie
No full textHet oplopen van een dwarslaesie heeft een grote invloed op alle levensgebieden, inclusief werk. De arbeidsparticipatie onder mensen met een dwarslaesie is laag (gemiddeld 30%-35%). Dit is zorgwekkend omdat arbeidsparticipatie samenhangt met een grotere levenstevredenheid, hoger activiteitenniveau, betere algehele gezondheid en een hogere levensverwachting in deze groep
Illness perception of individuals with spinal cord injury (SCI) during inpatient rehabilitation:a longitudinal study
Get PDFStudy design: Multicentre longitudinal study.Objectives: To assess overall illness perception and specific illness representations at admission and discharge of inpatient spinal cord injury (SCI) rehabilitation, and to detect associations between demographic and injury-related variables, and illness perception.Setting: Seven Dutch SCI-specialised rehabilitation centres.Methods: Participants aged >18 years with a recent SCI were screened for cognitive and emotional illness representations at admission and discharge with the Brief Illness Perception Questionnaire (B-IPQ). Differences between B-IPQ item scores at admission and discharge were analysed with the Wilcoxon signed-rank test. Differences between B-IPQ total scores were analysed with the paired-samples t-test. Associations between B-IPQ total scores and other variables were tested with bivariable and multivariable regression analyses.Results: B-IPQ results were available for 270 participants at admission (71% male, 59% paraplegia, 83% incomplete) and 119 at discharge (68% male, 50% paraplegia, 78% incomplete). The extent to which people experienced their SCI as a threat was highest for: ‘consequences’, ‘symptom burden’ and ‘concern’ both at admission and discharge. Participants generally experienced less threat at discharge. A more threatening illness perception was significantly associated with older age, complete SCI and a history of cognitive problems at admission. Age and completeness of injury, together, explained 12% of the variance of overall illness perception at admission.Conclusions: For most individuals, illness perception positively changed during SCI rehabilitation. Measuring illness perception in inpatient rehabilitation could support the identification of specific treatment goals in order to improve adjustment after SCI.</p
Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
Get PDFOBJECTIVE: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. DESIGN: Youth versions of both instruments were used for (1) content comparison and (2) analyses of relations between both instruments, based on cross-sectional data. SETTING: Clinic. PARTICIPANTS: Participants were adolescents with cerebral palsy, aged 12-18 years; Gross Motor Function Classification System I-V; N=45. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Assessment of Life Habits (Life-H) with USER-Participation. RESULTS: Both instruments measure independence in participation, called accomplishment (Life-H) and restrictions (USER-Participation), and satisfaction with participation. Life-H provides a profile of 6 domain scores and the USER-Participation a total score per dimension. Compared with the USER-Participation, the Life-H contains more specific items, more items not-applicable to many participants and more ceiling effects. Total scores on the accomplishment/restrictions and satisfaction scales between both instruments showed strong correlation coefficients (0.87 and 0.67, respectively). Correlations between domain scores were stronger within the accomplishment/restrictions scales (range 0.37-0.88) compared with the satisfaction scales (range 0.22-0.68). CONCLUSIONS: Compared with the USER-Participation, the Life-H takes more effort to complete but provides a more comprehensive assessment of participation. Participation accomplishment/restrictions scores were more similar between the instruments compared with satisfaction scores. Researchers and clinicians should carefully compare participation instruments in selecting one that matches their purpose
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