1,721,078 research outputs found
Loss and grief within intellectual disability
No full textOne of the most significant trends seen in recent years has been the increasing longevity of people with intellectual disability (Doody et al., 2013). Advances in medical and neonatal care along with deinstitutionalisation have increased life expectancy for most individuals with intellectual disability. In today’s society individuals with intellectual disability live with family members, in special assisted living facilities, community group-homes or on their own. Just like anyone else people with intellectual disability have created and developed attachments to various persons be it family members, fellow residents, staff members, co-workers, members of their communities, and other friends. With such attachments comes the experience of loss, where staff members leave, other residents relocate or die and the death of a parent, caregiver or family member may occur. Thereby loss and grief are a natural part life however; individuals with intellectual disability may experience significant secondary losses such as the loss of a parent or caregiver may necessitate a change in residence leading to a cascade of losses that may include friends, neighbors and employment. In addition some higher functioning individuals may experience a sense of grief and loss over their disability where they experience a persistent sense of loss over the fact that they are perceived as different from others
Moving from a long-stay institution to a community-based residential programme for persons with intellectual disability: The views of families.
No full textMoving from a long-stay institution to a community-based residential programme for persons with intellectual disability: The views of families
Families’ views on their relatives with intellectual disability moving from a long-stay psychiatric institution to a community-based intellectual disability service: an Irish context
No full textThe pattern of residential services for people with intellectual disability in Ireland has seen many positive developments in recent years, with more places made available in residential homes within both community- and campus-based accommodation. This paper reports on the findings of a study which explored families’ views regarding the movement of people with intellectual disability from a long-stay psychiatric institution to campus-based accommodation within a local intellectual disability service. A Husserlian phenomenology was chosen, ethical approval was granted, eleven participants were interviewed and data transcribed. Through Colaizzi’s (1978) procedural framework for data analysis two key themes were identified. The positive transition resulting from the move and the enlightened thinking that has developed as a consequence of the move. Overall, the study indicates the importance of; care and care delivery from the family’s perspective, the interaction of staff with families and families knowing the staff
An evaluative audit of the introduction of a new nursing document within a specialist palliative care inpatient unit in Ireland
No full textAim and objectives: To audit the introduction of a new nursing document within a specialist palliative care inpatient unit in Ireland.
Background: Nursing documentation contributes to effective patient care and communication between healthcare professionals and patients through providing a
clear picture of; a patient’s status, nurse’s actions and care outcomes. However, documentation is often seen as a low priority and often lacks explicit information on
patients’; preferences, needs and quality of life.
Design: An evaluative audit.
Results: Higher rates of documentation were evident in the unit using the new structured nursing documentation and significant differences were evident. Greater
evidence of assessment, intervention and evaluation were evident in the new document and enables nursing care to be evident and identifiable.
Conclusion: This project evaluated a new palliative nursing documentation system and identified that utilizing a structured document promotes accurate recording
of clinical information and limits inconsistent documentation.
Relevance to clinical practice: An effective system for documentation improves the identification of quality care provided and facilitates individualized care.PUBLISHEDpeer-reviewe
Preparing for and conducting focus groups in nursing research: part 2
No full textFocus group interviews are widely used in health research to explore phenomena and
are accepted as a legitimate qualitative methodology. They are used to draw out
interaction data from discussions among participants; researchers running these
groups need to be skilled in interviewing and in managing groups, group dynamics
and group discussions. This article follows Doody et al’s (2013) article on the theory
of focus group research; it addresses the preparation for focus groups relating to the
research environment, interview process, duration, participation of group members
and the role of the moderator. The article aims to assist researchers to prepare and
plan for focus groups and to develop an understanding of them, so information from
the groups can be used for academic studies or as part of a research proposal
The role and development of consultancy in nursing practice
No full textThe term consultancy is used in many contexts. It has been applied to advanced nursing
practice roles such as clinical nurse specialist, advanced nurse practitioner, nurse
practitioner and other occupations. This causes confusion in the healthcare setting as the
word is often used interchangeably between roles and has traditionally been used in a
medical context. In addition, the development of nurse consultant posts has further
compounded the uncertainty around consultancy. However, regardless of the role holder,
consultancy in nursing is normally used in the context of a person in possession of
expertise. This article describes consultancy in nursing; identifying its development,
approaches, application and possibilities for the future
Transcultural care and individuals with an intellectual disability
Full text linkHealthcare delivery today reflects a history of change, which has responded to lifestyle changes, cultural diversity, population needs and expectations. In today’s health-care environment it is crucial for health-care professionals to be mindful of cultural factors that affect health. These factors include the intricate interdependent biological, intellectual, psychological, social and spiritual needs of the individuals they work with. However, challenges exists for those who provide healthcare to people with intellectual disability. This article presents the transcultural care challenges for people with intellectual disability, through highlighting the biomedical/sociocultural perspectives of healthcare, communication and inequality experienced by those with intellectual disability. As a population group, people with intellectual disability can often be considered part of a larger culture rather than a culture within itself, and this article endeavours to emphasize that intellectual disability is in itself a coterminous culture. By highlighting intellectual disability as a cultural community within a larger community, requiring a transcultural response to care on several levels health-care professionals can provide culturally compatible care to those with intellectual disability within a transcultural framework to augment a person-centred approach to care
Nursing research ethics, guidance and application in practice
No full textEthics is fundamental to good research practice and the protection of society. From a historical point of view research ethics has had a chequered past and without due cognisance there is always the potential for research to do harm. Research ethics is fundamental to research practice, nurse education and the development of evidence. In conducting research, it is important to plan for and anticipate any potential or actual risks. To engage in research, researchers need to develop an understanding and knowledge of research ethics and carefully plan how to address ethics within their research. This article aims to enhance students’ and novice researchers’ research ethics understanding and its application to nursing research
Preparing and conducting interviews to collect data
No full textAim To describe three styles of interviews and discuss issues regarding planning and conducting interviews.
Background Interviews are probably the approach most used to collect data in studies. They are particularly useful in uncovering the story behind a participant\u27s experiences. Researchers can follow a line of questions to gain information about a topic, or further explore responses or findings. But the researcher needs to plan and decide the format of the interview before collecting data.
Review methods The authors included papers on structured, unstructured and semi-structured interviews published in a peer-reviewed journal and in English.
Discussion Interviews are one of the most common methods of data collection in qualitative research. However they require the researcher to have a sound understanding of their use and appropriateness. The ability to conduct interviews is one that develops over time and to aid the researcher in developing their interview skills they should consult with other researchers, seeking comments and advice and, critically, to appraise audio recordings.
Conclusion This article aims to support students who are undertaking research modules as part of their academic studies, writing a research proposal or novice researchers who are about to use interviews as a means of data collection.
Implications for research/practice To conduct a successful interview, researchers need to develop their interview technique, choose the right method and carefully plan for all aspects of the process.ACCEPTEDpeer-reviewe
Using a learning log to support students understanding and engagement within a research module
No full textEvidenced-based practice research is a common phrase in discussions regarding patient care. As a profession
nursing/midwifery has a responsibility to educate their students with a primary focus on research based
practice. Within education assessment is a significant feature which influences, what and how students
decide to learn and generally learning is dependent on the quality of assessment. One method that has
become popular to support learning and assessment is the use of a learning log. This article presents the use
of a learning log as a learning and assessment process for undergraduate nursing and midwifery students
and presents a student and module leader reflective comments. The use of a learning log was driven by the
educators desire to be innovative when delivering a research module to students who often hold the view
that research is a difficult and undesirable subject to study
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