2 research outputs found
An exploration of the ethical implications of the digitisation and dissemination of Mātauranga Māori (with special reference to the Pei te Hurinui Jones Collection)
At the core of this thesis is the ethical implications involved in the digitising of Mātauranga Māori. It investigated how Kaupapa Māori theory can inform this process and how issues relating to access were considered. It is intended that this information should provide whānau, hapū, iwi and institutions with a solid foundation for the development of their own digital collections. The research reported here tracks the processes and procedures undertaken by a Research Team on a Ngā Pae o te Māramatanga research funded project that is being conducted to research and develop ethical processes for the digitisation of the manuscripts, works and collected taonga of one of Māoridom’s prominent scholars, the late Dr. Pei te Hurinui Jones.
The thesis begins with an outline of the scope of the research and the approaches and methods used (Chapter 1). This is followed by selected literature reviews on museums, libraries and archives and the influence of writing in the Aotearoa /New Zealand context (see Chapter 2), digitisation, digital libraries and Mātauranga Māori (see Chapter 3), and ethics, ethics in practice and Kaupapa Māori theory (see Chapter 4). Chapter 5 describes the Pei te Hurinui Jones’ collections, the processes that were undertaken during the initial negotiation stages, the development of tikanga in the archiving, cataloguing, physical layout and conservation of the collection and the drafting and development of the Deed of Gift under the principle of takoha. Chapter 6 discusses the research ethics approval process, the methodology applied, and the development and analysis of the thematic categories that emerged from the focus group discussion. A conceptual model of the digitisation process is then presented. Chapter 7 provides an overview of the research and a summary of the findings, together with an indication of its limitations, research contribution, and suggestions for future research
The implementation of tuberculosis preventive therapy in HIV care clinics in Africa, Asia and Latin America: a multiregional site survey
Introduction Towards the ‘End TB Strategy’ targets, the WHO recommends the provision of tuberculosis (TB) preventive therapy (TPT) for high-risk groups including people living with HIV (PLWH). 3 years after the release of the updated 2020 WHO guidelines, we investigated the implementation of TPT services at HIV clinics in low-income and middle-income countries (LMICs), focusing on TB screening, populations eligible for TPT and available TPT regimens.Methods In 2023, we surveyed HIV care clinics in the International Epidemiology Databases to Evaluate AIDS consortium in Africa, the Asia-Pacific and Latin America and the Caribbean. We used descriptive statistics to summarise TPT implementation according to WHO guidelines and multivariable logistic regression models to estimate associations with clinic characteristics.Results Of 172 HIV clinics included, 142 (83%) were in Africa, 22 (13%) in the Asia-Pacific and 8 (5%) in Latin America; 108 (63%) were located in urban areas. After ruling out active TB, TPT was reportedly offered to PLWH (122 clinics, 71%), household contacts of individuals with active TB (120 clinics, 70%) and other high-risk populations. TPT for PLWH was more frequently available in clinics in lower-income and low-middle-income countries, in high TB burden countries, and in district hospitals compared with other facility types. Clinics reported use of isoniazid-based (160 clinics, 93%) and shorter rifamycin-based (129 clinics, 75%) TPT regimens. Reported barriers to TPT initiation included patient refusal at 71 (41%) and drug shortages at 67 (39%) clinics.Conclusions TPT was available at most HIV care clinics in LMICs but further efforts are needed to reinforce WHO recommendations and ensure that TPT is consistently accessible to people at higher risk of developing active TB, especially PLWH
