71 research outputs found
sj-pdf-2-pmj-10.1177_02692163221147076 – Supplemental material for Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients
No full textSupplemental material, sj-pdf-2-pmj-10.1177_02692163221147076 for Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients by Tushti Bhardwaj, Rachel L Chambers, Harry Watson, aaaaaaaaa Srividya, Irene J Higginson and Mevhibe B Hocaoglu in Palliative Medicine</p
sj-pdf-1-pmj-10.1177_02692163221147076 – Supplemental material for Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients
No full textSupplemental material, sj-pdf-1-pmj-10.1177_02692163221147076 for Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients by Tushti Bhardwaj, Rachel L Chambers, Harry Watson, aaaaaaaaa Srividya, Irene J Higginson and Mevhibe B Hocaoglu in Palliative Medicine</p
sj-pdf-3-pmj-10.1177_02692163221147076 – Supplemental material for Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients
No full textSupplemental material, sj-pdf-3-pmj-10.1177_02692163221147076 for Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients by Tushti Bhardwaj, Rachel L Chambers, Harry Watson, aaaaaaaaa Srividya, Irene J Higginson and Mevhibe B Hocaoglu in Palliative Medicine</p
858237_supp_mat – Supplemental material for Establishing key criteria to define and compare models of specialist palliative care: A mixed-methods study using qualitative interviews and Delphi survey
No full textSupplemental material, 858237_supp_mat for Establishing key criteria to define and compare models of specialist palliative care: A mixed-methods study using qualitative interviews and Delphi survey by Alice M Firth, Suzanne M O’Brien, Ping Guo, Jane Seymour, Heather Richardson, Christopher Bridges, Mevhibe B Hocaoglu, Gunn Grande, Mendwas Dzingina, Irene J Higginson and Fliss EM Murtagh in Palliative Medicine</p
sj-pdf-1-pmj-10.1177_02692163211063397 – Supplemental material for Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
No full textSupplemental material, sj-pdf-1-pmj-10.1177_02692163211063397 for Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data by Joanne Bayly, Andy Bradshaw, Lucy Fettes, Muhammed Omarjee, Helena Talbot-Rice, Catherine Walshe, Katherine E Sleeman, Sabrina Bajwah, Lesley Dunleavy, Mevhibe Hocaoglu, Adejoke Oluyase, Ian Garner, Rachel L Cripps, Nancy Preston, Lorna K Fraser, Fliss EM Murtagh, Irene J Higginson and Matthew Maddocks in Palliative Medicine</p
sj-pdf-1-jrs-10.1177_01410768221077366 - Supplemental material for Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study
No full textSupplemental material, sj-pdf-1-jrs-10.1177_01410768221077366 for Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study by Andy Bradshaw, Lesley Dunleavy, Ian Garner, Nancy Preston, Sabrina Bajwah, Rachel Cripps, Lorna K Fraser, Matthew Maddocks, Mevhibe Hocaoglu, Fliss EM Murtagh, Adejoke O Oluyase, Katherine E Sleeman, Irene J Higginson and Catherine Walshe in Journal of the Royal Society of Medicine</p
sj-pdf-3-pmj-10.1177_02692163211063397 – Supplemental material for Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
No full textSupplemental material, sj-pdf-3-pmj-10.1177_02692163211063397 for Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data by Joanne Bayly, Andy Bradshaw, Lucy Fettes, Muhammed Omarjee, Helena Talbot-Rice, Catherine Walshe, Katherine E Sleeman, Sabrina Bajwah, Lesley Dunleavy, Mevhibe Hocaoglu, Adejoke Oluyase, Ian Garner, Rachel L Cripps, Nancy Preston, Lorna K Fraser, Fliss EM Murtagh, Irene J Higginson and Matthew Maddocks in Palliative Medicine</p
sj-pdf-2-pmj-10.1177_02692163211063397 – Supplemental material for Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
No full textSupplemental material, sj-pdf-2-pmj-10.1177_02692163211063397 for Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data by Joanne Bayly, Andy Bradshaw, Lucy Fettes, Muhammed Omarjee, Helena Talbot-Rice, Catherine Walshe, Katherine E Sleeman, Sabrina Bajwah, Lesley Dunleavy, Mevhibe Hocaoglu, Adejoke Oluyase, Ian Garner, Rachel L Cripps, Nancy Preston, Lorna K Fraser, Fliss EM Murtagh, Irene J Higginson and Matthew Maddocks in Palliative Medicine</p
Cross-cultural validation of the integrated palliative outcome scale for neurological patients (IPOS-Neuro S8) in multiple sclerosis patients
No full textAbstract Objectives Standardized measures to evaluate neurological patients in palliative care are missing. The Integrated Palliative Outcome Scale, a self-report tailored for neurological patients (IPOS Neuro-S8) helps identify symptom burden but lacks validation in German. This study aimed to validate the IPOS Neuro-S8 in severely affected multiple sclerosis (MS) patients. Methods This validation study is a secondary analysis of data from a clinical phase II intervention study with severely affected MS patients. The original study enrolled German-speaking patients aged 18 with severe MS who receive an escalating immunotherapeutic agent and/or exhibit a high level of disability were recruited from the administrative district Cologne (#DRKS00021783). In this validation study, we evaluated construct, discriminant, and convergent validity, internal consistency, test–retest reliability, and sensitivity to change of the IPOS Neuro-S8, using the “Hamburger Lebensqualitätsmessinstrument” (HALEMS), and the Hospice and Palliative Care Evaluation supplemented by neurological symptoms (HOPE+) as comparison measures. Results Data from 80 MS patients (mean age 56, SD = 11) were analyzed. Exploratory and confirmatory factor analyses revealed a 3-factor structure ( r = 0.34–0.63), reflecting distinct clinical patterns, i.e., breath-mouth connection, pain-sleep cycle , and nausea-vomiting link . Significant convergent validity to hypothesized total score of the HOPE+ ( r s (78) = 0.71, p < 0.001) and good discriminant validity using the HALEMS total score ( r s (78) = 0.48, p < 0.001) were observed. Correlation with physical symptoms of the HALEMS was stronger than with nonphysical aspects. Internal consistency (Cronbach’s α = 0.67) and test–retest reliability (intraclass coefficient = 0.75) were acceptable. Significance of results IPOS Neuro-S8 displays promising psychometric properties for assessing palliative care symptoms in severe MS, a model for other severe neurological diseases due to MS's broad central nervous involvement, allowing findings to be transferable to other neurological diseases. A criterion for minimal clinically important difference was established to evaluate the sensitivity to change. Additional validation across different neurological conditions and disease severities is warranted to enhance generalizability and clinical utility
- …
