491 research outputs found
Dataset for: "Falling leaves return to their roots": families’ experiences of decision-making when transferring patients home to die from an intensive care unit in China
No full textDataset supports the PhD thesis "Falling leaves return to their roots": families’ experiences of decision-making when transferring patients home to die from an intensive care unit in China
Data (interview transcripts written in Chinese) are available on request to bona fide researchers with ethics clearance. Please complete the request form found at http://library.soton.ac.uk/datarequest (link below)</span
“Falling leaves return to their roots”: families’ experiences of decision-making when transferring patients home to die from an intensive care unit in China
No full textBackground: Transferring patients home to die from critical care remains an unusual event in Western healthcare systems, but is more usual in China. Despite this very little is known about the transfer decision-making and families’ experiences of transfer in China.Aims: This study sought to understand families’ experiences of decision-making when transferring home patients to die from intensive care units in China, focusing on the decision-making processes, the decision-makers, their information and support needs, barriers to, and facilitators of transfer, and meaning making of their experiences.Methods: A constructivist qualitative study methodology was adopted. Interviews were undertaken with thirteen family members sharing their experiences of transferring ten patients’ home to die from one intensive care unit in mainland China. Data analysis followed the thematic process outlined by Braun and Clarke and generated four themes (“Stay here or go home?”: two steps to decide transfer; “His sons discussed and others were not involved”: the decision-makers in the process of deciding to transfer; “Falling leaves return to their roots”: the meaning making of transfer; and “It’s a gap in the care”: the unmet information and support needs) and one overarching theme (“Nowhere else to go”: a single path towards a home death through a web if power).Findings: Transfer decision-making by family members progressed through two steps: accepting the inevitable death and transferring home to die. The decision-making process was driven by Chinese cultural values and norms about a home death which obligates family members to achieve this outcome despite the lack of transit and home care services. Transferring home to die in China was a family-led decision-making process with limited choices and little support pre, during, and post transfer, and was informed by a web of interrelated and conflicted power. ards a home death through a web of power).Conclusion: Family members have limited choices regarding place of death for relatives due to the unique societal culture and healthcare system in China. Powerful cultural drivers and expectations of a home death were identified as factors that obstruct service development which would provide meaningful end of life care choices for family members in China. A lack of choice of transfer decisions reflects inadequate end of life service provision in China. Findings of this study suggest the need to develop end of life care provision in China, including transfer services. This would improve both support for family members and the death and dying experience for people in China
Transferring home to die from critical care units: a scoping review of international practices
No full textPurpose: to identify and characterise the international practices of transferring a dying patient home to die from critical care units.Materials and methods: a systematic scoping review following the Joanne Briggs Institute methodology was applied searching fifteen data sources to identify papers published in English and Chinese from 1970 to 2019.Results: of the 28 papers meeting eligibility criteria 19 were published in the West and seven in China. The number of patients being transferred home to die was larger in China (74/184–96/159) than in the West (1–7). Clinical characteristics of patients transferred included: consciousness, with or without intubation and ventilation, and clinical stability. Reported key barriers to transfer included: Lack of evidence guiding transfer practice, the CCU environment and culture, Practical and logistical factors and Family members expectations and reactions. Key facilitators of transfer were reported as: Engagement with the multidisciplinary team and Personal patient and family wishes.Conclusions: transferring patients home to die from critical care is a complex practice varying significantly across countries. Further research to address current knowledge gaps is important to inform policy and practice
Uncovering the decision-making work of transferring dying patients home from critical care units: an integrative review
No full textThe decision-making process of transferring patients home to die from an intensive care unit in mainland China: A qualitative study of family members’ experiences
No full textObjectives: To map the decision-making process of family members involved in transferring a critically ill patient home to die from an intensive care unit in mainland China and to explore the experiences of those family members. Design: A constructivist qualitative study. Setting: One hospitals intensive care unit in Southeast China. Methods: Thirteen adult family members (of ten patients) who participated in decision-making related to transferring a relative home to die from the intensive care unit were purposively selected. Data were collected via interviews and analysed applying thematic analysis. Findings: A two-stage decision-making process was identified. Family decision-making was mediated by factors including: accepting the impending death and hope that the patient would not die; time pressures in which decisions had to be made, and the challenges of meeting cultural expectations of a home death. Transfer home was a family-centred decision constrained by a gender-based hierarchy restricting the involvement of different family members. Conclusion: The stages and key factors in the decision-making process of family members when involved in transferring a patient home to die from an intensive care unit in China are rooted and informed by cultural expectations and limits in the current healthcare system regarding end-of-life care options. Understanding the climate in which family members must make decisions will facilitate supportive interventions to be implemented by healthcare professionals. Further empirical research is needed to explore family members’ needs when the patient has been transferred and dies at home in mainland China. Implications for Clinical Practice: Healthcare professionals need to understand the challenges family members face when deciding to transfer a relative home to die from an intensive care unit. For example time pressures can limit the choices of family members so that to provide them with timely, ongoing, realistic updates for a greater involvement of family members in generating end of life care plans could be beneficial.
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sj-docx-1-hpq-10.1177_13591053241246620 – Supplemental material for Changes of college students’ psychological stress during the COVID-19 pandemic in China: A two-wave repeated survey
No full textSupplemental material, sj-docx-1-hpq-10.1177_13591053241246620 for Changes of college students’ psychological stress during the COVID-19 pandemic in China: A two-wave repeated survey by Xinxin Ye, Junmeng Zhang, Huanju Liu, Xutong Zheng, Wan Ye, Wenhai Fu, Yanxia Zhong, Qiansha Wang, Yanni Lin and Cong Huang in Journal of Health Psychology</p
sj-pdf-1-imr-10.1177_03000605221089779 - Supplemental material for Development and validation of a prediction model of deep venous thrombosis for patients with acute poisoning following hemoperfusion: a retrospective analysis
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sj-do-6-hpq-10.1177_13591053241246620 – Supplemental material for Changes of college students’ psychological stress during the COVID-19 pandemic in China: A two-wave repeated survey
No full textSupplemental material, sj-do-6-hpq-10.1177_13591053241246620 for Changes of college students’ psychological stress during the COVID-19 pandemic in China: A two-wave repeated survey by Xinxin Ye, Junmeng Zhang, Huanju Liu, Xutong Zheng, Wan Ye, Wenhai Fu, Yanxia Zhong, Qiansha Wang, Yanni Lin and Cong Huang in Journal of Health Psychology</p
sj-log-5-hpq-10.1177_13591053241246620 – Supplemental material for Changes of college students’ psychological stress during the COVID-19 pandemic in China: A two-wave repeated survey
No full textSupplemental material, sj-log-5-hpq-10.1177_13591053241246620 for Changes of college students’ psychological stress during the COVID-19 pandemic in China: A two-wave repeated survey by Xinxin Ye, Junmeng Zhang, Huanju Liu, Xutong Zheng, Wan Ye, Wenhai Fu, Yanxia Zhong, Qiansha Wang, Yanni Lin and Cong Huang in Journal of Health Psychology</p
sj-pdf-3-hpq-10.1177_13591053241246620 – Supplemental material for Changes of college students’ psychological stress during the COVID-19 pandemic in China: A two-wave repeated survey
No full textSupplemental material, sj-pdf-3-hpq-10.1177_13591053241246620 for Changes of college students’ psychological stress during the COVID-19 pandemic in China: A two-wave repeated survey by Xinxin Ye, Junmeng Zhang, Huanju Liu, Xutong Zheng, Wan Ye, Wenhai Fu, Yanxia Zhong, Qiansha Wang, Yanni Lin and Cong Huang in Journal of Health Psychology</p
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