415 research outputs found
sj-jpg-1-trd-10.1177_1049732320931430 – Supplemental material for IMPCAT study: measuring the impact of caregiving on families and healthcare professionals of children and adults living with mucopolysaccharidoses in Ireland
No full textSupplemental material, sj-jpg-1-trd-10.1177_1049732320931430 for IMPCAT study: measuring the impact of caregiving on families and healthcare professionals of children and adults living with mucopolysaccharidoses in Ireland by Suja Somanadhan, Hannah Bristow, Ellen Crushell, Gregory Pastores, Emma Nicholson, Thilo Kroll, Philip J. Larkin and Aoife Brinkley in Therapeutic Advances in Rare Disease</p
sj-pdf-2-trd-10.1177_1049732320931430 – Supplemental material for IMPCAT study: measuring the impact of caregiving on families and healthcare professionals of children and adults living with mucopolysaccharidoses in Ireland
No full textSupplemental material, sj-pdf-2-trd-10.1177_1049732320931430 for IMPCAT study: measuring the impact of caregiving on families and healthcare professionals of children and adults living with mucopolysaccharidoses in Ireland by Suja Somanadhan, Hannah Bristow, Ellen Crushell, Gregory Pastores, Emma Nicholson, Thilo Kroll, Philip J. Larkin and Aoife Brinkley in Therapeutic Advances in Rare Disease</p
sj-pdf-3-trd-10.1177_1049732320931430 – Supplemental material for IMPCAT study: measuring the impact of caregiving on families and healthcare professionals of children and adults living with mucopolysaccharidoses in Ireland
No full textSupplemental material, sj-pdf-3-trd-10.1177_1049732320931430 for IMPCAT study: measuring the impact of caregiving on families and healthcare professionals of children and adults living with mucopolysaccharidoses in Ireland by Suja Somanadhan, Hannah Bristow, Ellen Crushell, Gregory Pastores, Emma Nicholson, Thilo Kroll, Philip J. Larkin and Aoife Brinkley in Therapeutic Advances in Rare Disease</p
sj-docx-1-pch-10.1177_21501351231151666 - Supplemental material for Benefit From a Humanitarian Pediatric Congenital Heart Surgery Program Over a 10-Year Period
No full textSupplemental material, sj-docx-1-pch-10.1177_21501351231151666 for Benefit From a Humanitarian
Pediatric Congenital Heart Surgery
Program Over a 10-Year Period by Hannah E. Fürniss, Mirjam Leutwyler, Christoph Zürn, Johannes Kroll, Fabian A. Kari, René Höhn, Thilo K.P. Fleck, Rouven Kubicki, Katja Reineker, Friedhelm Beyersdorf and Brigitte Stiller in World Journal for Pediatric and Congenital Heart Surgery</p
No-React (R) Injectable BioPulmonic (TM) valves re-evaluated: discouraging follow-up results
No full textOBJECTIVES: The No-React (R) Injectable BioPulmonic (TM) valve (BioIntegral) was introduced for minimally invasive off-pump replacement of the pulmonary valve almost 10 years ago. We present our mid-to long-term follow-up results. METHODS: We conducted a retrospective analysis of all 7 patients treated at our institution at the median age of 9 (range 1-24) years. The children underwent cardiac catheterization when worsening strain on the right heart was suspected after examining their medical history and/or observing significant changes on echocardiography. RESULTS: After a median follow-up period lasting 5.2 (range 0.7-6.7) years, all patients presented the indication for recatheterization, particularly because the maximum instantaneous velocity measured by Doppler had revealed systolic gradients of a median 63 (dP 18-74) mmHg across the right ventricular outflow. Catheterization confirmed severe stenosis in 2, and moderate stenosis together with moderate insufficiency in 4 patients. We observed two principal failure mechanisms: technical problems resulting from poor alignment to the right ventricular outflow tract and structural problems leading to neointimal proliferation even in cases with appropriate prosthesis positioning. At median of 5.7 (0.7-7) years after implantation, 6 of the 7 patients underwent valve rereplacement. Redo surgery was necessary in 3, and percutaneous valve-in-valve implantation in the remaining 3 patients. Histological analysis of two explanted valves confirmed significant neointima proliferation and thickened valve cusps leading to stenosis of the graft. CONCLUSIONS: These mid-term results after implantation of the No-React (R) Injectable BioPulmonic (TM) valve are disappointing. Graft failure was mainly due to neointimal formation and valve malposition
Designing mixed methods studies in health-related research with people with disabilities
No full textPeople with disabilities have traditionally faced exclusion from health-related research in multiple ways. They have been excluded as participants in the research agenda setting process as well as contributors to the evidence-base of treatment and intervention research. The judicious use of mixed method designs afford opportunities for more inclusive research. However, the use of both qualitative and quantitative research methods with people with disabilities necessitates careful planning. This article aims to provide insights into the exclusionary practices faced by people with disabilities, the potential of mixed methods studies to address some of these sources of exclusion, and the specific planning considerations when conducting research with various disability populations
Experiences of 12 patients in the first 2 years following spinal cord injury:setting meaningful rehabilitation goals
No full textA reply to 'The "demented other" or simply "a person"?:Extending the philosophical discourse of Naue and Kroll through the situated self' by John Keady, Steven Sabat, Ann Johnson, and Caroline Swarbrick
No full textThe relation of body mass index, demographic and health-related variables to length of stay for patients at an acute rehabilitation hospital after total hip arthroplasty
No full textObesity is a growing public health concern world-wide. At the same time, knee and hip replacements are becoming an increasingly regular treatment for osteoarthritis. There are conflicting reports in the literature as to what extent body mass affects the length of stay (LOS) of patients undergoing total hip replacements. This chart review aims at examining the relationship between body mass index (BMI), demographic and health-related variables, and LOS. The retrospective chart review of one acute inpatient rehabilitation facility involved n = 119 patients. There was no significant association between LOS and body mass index (BMI), confirming earlier results. Insurance payer type (Medicare vs private) was statistically significant related to LOS. Moreover, there was a trend for the potential influence of race/ethnic patient background on LOS with Caucasians having shorter hospital stays. © 2010 Greenberg and Kroll, publisher and licensee Dove Medical Press Ltd. This is an Open Access article which permits unrestricted noncommercial use, provided the original work is properly cited.</p
An Interview with Hu Ching Fang
No full textHu Ching Fang 胡晴舫, also known as Lolita Hu, is a writer of novels, essays and short stories, who was born in 1969 in Taipei. Currently, she is the director of Kwang Hwa Information and Culture Center in Hong Kong, whose term usually lasts three years. Our conversation took place in late November 2017 in Taipei; the final version of the text was proofread and approved by the author via mail in February 2018.One of Hu’s short stories was recently published as a German translation: “Die Welt 世界”; in Thilo Diefenbach (ed./transl.): Kriegsrecht. Neue Literatur aus Taiwan. München: iudicium 2017, pp. 426–434.On the 16th September 2017, the South China Morning Post published an extensive interview with her, which is still available online. It covers both her personal life and her work as a writer, therefore I excluded these topics from my questionnaire. Additionally, numerous interviews with her can be found online in Chinese
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