464 research outputs found
Perceived diagnostic uncertainty in pediatric chronic pain
No full textIn this review, we argue that perceived diagnostic uncertainty in idiopathic pediatric chronic pain patients and their parents is critically important for understanding pain cognitions, behavioral responses to pain, treatment choices, and outcomes during this developmental period. We include evidence from children (under 12 years) and adolescents (12-18 years). This period sets the stage for future experience of pain: two thirds of children and adolescents with chronic pain will become adults with chronic pain [30]. The prevalence of pediatric chronic pain is rising, and has been described as a growing epidemic [11]. Better understanding of this core issue through well-designed research with pediatric populations is therefore crucial
‘Drawing a line in the sand’: Physician diagnostic uncertainty in paediatric chronic pain
No full textBackground: Diagnostic uncertainty is the subjective perception of an inability to provide an accurate explanation of the patient’s health problem or that a label is missing or incorrect. While recently explored in youth with chronic pain and families, this is the first study to investigate diagnostic uncertainty from the perspectives of physicians. Methods: Individual, semi-structured interviews were conducted with sixteen pediatricians who assess and/or treat youth who experience complex chronic pain. Interviews explored pediatricians’ perceptions, beliefs, and confidence regarding the assessment and management of chronic pain in youth and how they manage uncertainty regarding the diagnosis. Interviews were analysed using inductive reflexive thematic analysis. Results: Analyses generated one prominent theme: ‘drawing a line in the sand’. Within this theme, physicians discussed uncertainty as inherent to their role treating youth with chronic pain. The metaphor of ‘drawing a line in the sand’ was used to describe a process of identifying a point at which physicians no longer sought a new diagnosis for the child’s pain or continued diagnostic investigations. This line was influenced by numerous factors, which are highlighted through four subthemes: physician training, experience, and mentorship; individual patient and family factors; perceived reassurance of diagnostic investigations; and the broader social context and implications. Conclusions: How physicians manage diagnostic uncertainty must be understood, as it is likely to critically impact how a diagnosis of chronic pain is communicated, the diagnostic investigations undertaken, the wait time to receiving a diagnosis, and ultimately youths’ pain experiences. <br/
‘A whirlwind of everything’: the lived experience of adolescents with co-occurring chronic pain and mental health symptoms
No full textBackground: Co-occurring chronic pain and mental health issues are prevalent in adolescents, costly to society and can lead to increased risk of complications throughout the lifespan. While research has largely examined paediatric chronic pain and mental health in isolation, little is known about the unique challenges faced by adolescents who experience these co-occurring symptoms. This idiographic study examined the lived experience of adolescents with co-occurring chronic pain and mental health symptoms to identify salient issues for this population. Methods: Semi-structured telephone interviews were conducted with seven adolescents (11–19 years) self-reporting diagnoses of both pain and mental health issues for a duration of 3 months or longer. Participants were recruited from UK-based schools, pain clinics and charities. Interview transcripts were analysed using interpretative phenomenological analysis. Results: Analyses generated two themes ‘a whirlwind of everything’ and ‘putting up fronts’, which describe how the experience of co-occurring chronic pain and mental health symptoms typically disrupted adolescents' ability to regulate their physical, psychological and social wellbeing and identity. Adolescents described their symptom experience as like an internal storm over which they had no control. Such experiences required adolescents to embrace a variety of symptom management strategies, with adolescents reporting deliberate efforts to minimize their symptoms to external individuals. Conclusion: Co-occurring pain and mental health symptoms may be experienced in similar ways to individually experienced pain or mental health symptoms, but together, the experience may be both more difficult to manage and more socially isolating. Significance: Adolescents with co-occurring chronic pain and mental health symptoms describe the experience as if there was a storm inside of them disrupting their sense of physical, emotional and social wellbeing. This inner chaos interferes with their self-identity and relationships with others. Challenges articulating their experiences, and negative encounters associated with their symptoms, further impact feelings of isolation and difficulties accessing support.</p
Supplemental Material - Photos Sculpt the Stories of Youth: Using Photovoice to Holistically Capture the Lived Experiences and Pain of Youth Who Underwent Spinal Fusion Surgery
No full textSupplemental Material for Photos Sculpt the Stories of Youth: Using Photovoice to Holistically Capture the Lived Experiences and Pain of Youth Who Underwent Spinal Fusion Surgery by Samantha Noyek, Gillian Newman, Abbie Jordan, Kathryn A. Birnie, and Melanie Noel in Qualitative Health Research</p
Supplemental Material - Photos Sculpt the Stories of Youth: Using Photovoice to Holistically Capture the Lived Experiences and Pain of Youth Who Underwent Spinal Fusion Surgery
No full textSupplemental Material for Photos Sculpt the Stories of Youth: Using Photovoice to Holistically Capture the Lived Experiences and Pain of Youth Who Underwent Spinal Fusion Surgery by Samantha Noyek, Gillian Newman, Abbie Jordan, Kathryn A. Birnie, and Melanie Noel in Qualitative Health Research</p
Supplemental Material - Photos Sculpt the Stories of Youth: Using Photovoice to Holistically Capture the Lived Experiences and Pain of Youth Who Underwent Spinal Fusion Surgery
No full textSupplemental Material for Photos Sculpt the Stories of Youth: Using Photovoice to Holistically Capture the Lived Experiences and Pain of Youth Who Underwent Spinal Fusion Surgery by Samantha Noyek, Gillian Newman, Abbie Jordan, Kathryn A. Birnie, and Melanie Noel in Qualitative Health Research</p
sj-docx-2-hpq-10.1177_13591053241237341 – Supplemental material for The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study
No full textSupplemental material, sj-docx-2-hpq-10.1177_13591053241237341 for The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study by Ryan D Parsons, Joanna L McParland, Sarah L Halligan, Liesbet Goubert and Abbie Jordan in Journal of Health Psychology</p
sj-docx-4-hpq-10.1177_13591053241237341 – Supplemental material for The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study
No full textSupplemental material, sj-docx-4-hpq-10.1177_13591053241237341 for The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study by Ryan D Parsons, Joanna L McParland, Sarah L Halligan, Liesbet Goubert and Abbie Jordan in Journal of Health Psychology</p
sj-docx-1-hpq-10.1177_13591053241237341 – Supplemental material for The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study
No full textSupplemental material, sj-docx-1-hpq-10.1177_13591053241237341 for The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study by Ryan D Parsons, Joanna L McParland, Sarah L Halligan, Liesbet Goubert and Abbie Jordan in Journal of Health Psychology</p
sj-docx-3-hpq-10.1177_13591053241237341 – Supplemental material for The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study
No full textSupplemental material, sj-docx-3-hpq-10.1177_13591053241237341 for The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study by Ryan D Parsons, Joanna L McParland, Sarah L Halligan, Liesbet Goubert and Abbie Jordan in Journal of Health Psychology</p
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