161 research outputs found
Caresearch: finding and evaluating Australia's missing palliative care literature
No full text© 2005 Tieman et al; licensee BioMed Central Ltd.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
Filters and hubs: shortening the distance to palliative care evidence
No full textAuthor version made available in accordance with the publisher's policyPalliative care is an integral part of the care provided by GPs and other primary health care providers, and as Australia’s population ages and the palliative care needs of patients with end stage organ failure are recognised, this area of care is likely to increase. Using a Knowledge Translation framework, two strategies have been used to develop resources to support those providing palliative care in the community. PubMed Searches on a range of common palliative care topics and incorporating a palliative care filter provide an easy and validated mechanism to retrieve relevant literature. A “GP Hub” offers knowledge, skills and practical advice for GPs who provide palliative care in the community. Both resources are freely available within the CareSearch website ensuring immediate access to palliative care information and evidence when it is needed
Ensuring Quality in Online Palliative Care Resources
No full textThis article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC-BY) license (http://creativecommons.org/licenses/by/4.0/).Evidence and information is an integral part of the processes enabling clinical and service delivery within health. It is used by health professionals in clinical practice and in developing their professional knowledge, by policy makers in decision making, and is sought by health consumers to help them manage their health needs and assess their options. Increasingly, this evidence and information is being disseminated and sought through online channels. The internet is fundamentally changing how health information is being distributed and accessed. Clinicians, patients, community members, and decision makers have an unprecedented capacity to find online information about palliative care and end-of-life care. However, it is clear that not all individuals have the skills to be able to find and assess the quality of the resources they need. There are also many issues in creating online resources that are current, relevant and authoritative for use by health professionals and by health consumers. This paper explores the processes and structures used in creating a major national palliative care knowledge resource, the CareSearch website, to meet the needs of health professionals and of patients and their families and carers
Designing Clinically Valuable Telehealth Resources: Processes to Develop a Community-Based Palliative Care Prototype
No full text©Jennifer Joy Tieman, Deidre Diane Morgan, Kate Swetenham, Timothy Hong Man To, David Christopher Currow. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 04.09.2014. This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on http://www.researchprotocols.org, as well as this copyright and license information must be included.Background: Changing population demography and patterns of disease are increasing demands on the health system. Telehealth is seen as providing a mechanism to support community-based care, thus reducing pressure on hospital services and supporting consumer preferences for care in the home.
Objective: This study examined the processes involved in developing a prototype telehealth intervention to support palliative care patients involved with a palliative care service living in the community.
Methods: The challenges and considerations in developing the palliative care telehealth prototype were reviewed against the Center for eHealth Research (CeHRes) framework, a telehealth development model. The project activities to develop the prototype were specifically mapped against the model’s first four phases: multidisciplinary project management, contextual inquiry, value specification, and design. This project has been developed as part of the Telehealth in the Home: Aged and Palliative Care in South Australia initiative.
Results: Significant issues were identified and subsequently addressed during concept and prototype development. The CeHRes approach highlighted the implicit diversity in views and opinions among participants and stakeholders and enabled issues to be considered, resolved, and incorporated during design through continuous engagement.
Conclusions: The CeHRes model provided a mechanism that facilitated “better” solutions in the development of the palliative care prototype by addressing the inherent but potentially unrecognized differences in values and beliefs of participants. This collaboration enabled greater interaction and exchange among participants resulting in a more useful and clinically valuable telehealth prototype
Knowledge, knowledge management and knowledge networks
No full textPublished version made available with the publisher's permission
Systematic review of the types of methods and approaches used to assess the effectiveness of healthcare information websites
No full textAuthor version made available in accordance with the publisher's policyThe objective of this systematic review was to identify types of approaches and methods used to evaluate the effectiveness of healthcare information websites. Simple usage data may not be sufficient to assess if the desired healthcare outcomes were achieved or to determine the relative effectiveness of different web resources on the same health topic. To establish the state of the knowledge base on assessment methods used to determine the effectiveness of healthcare websites, a structured search of the literature was conducted in Ovid Medline resulting in 1,611 articles retrieved, of which 240 met the inclusion criteria for this review. Results of this review found that diverse evaluation methods were used to measure the effectiveness of healthcare websites. These evaluation methods were used during development, prior to release, and after release. Economic assessment was rare and most evaluations looked at content issues such as readability scores. A number of studies did try to assess the usefulness of websites but few studies looked at behaviour change or knowledge transfer following engagement with the designated health website. To assess the effectiveness of the knowledge transfer of healthcare information through the online environment, multiple methods may need to be used to evaluate healthcare websites and may need to be undertaken at all stages of the website development process
Discovering the dementia evidence base: Tools to support knowledge to action in dementia care (innovative practice)
No full textAuthor version made available in accordance with the publisher's policyDementia requires expert care and decision making, based on sound evidence. Reliable
evidence is difficult for busy dementia care professionals to find quickly. This study
developed an experimentally tested search filter as an innovative tool to retrieve literature on
dementia. It has a known retrieval performance and can be provided as an open access web
link directly to current literature. The Dementia Search Filter was developed using validated
methodology. An Expert Advisory Group of dementia care practitioners and researchers
ratified a representative set of relevant studies and undertook post hoc relevance
assessment, to ensure the usefulness of the search filter. The Dementia Search Filter is
published on two websites and combined with expert searches to link to evidence on
dementia, at end of life in aged care settings and more generally. Evidence accessed by the
Dementia Search Filter will help overcome barriers to finding current relevant research in the
field, for practitioners, researchers and decision makers
Find Me the Evidence: Connecting the Practitioner With the Evidence on Bereavement Care
No full textThis is an Accepted Manuscript of an article published by Taylor & Francis in DEATH STUDIES on January 15 2015, available online: http://wwww.tandfonline.com/10.1080/07481187.2014.992498
Author version under embargo for 12 months from publication, in accordance with the publisher's policy.This study reports on the development and application of a Bereavement Search Filter with a known level of retrieval performance to support access to the underlying knowledge base for bereavement care
Writing the Docs Honestly
No full textPresentation at the Council of State Archivists / National Association of Government Archives & Records Administrators / Society of American Archivists 2018 Annual Meeting, Washington, D.C. Featured in a panel discussion titled, Opening the Black Box:
Transparency and Complexity in Digital Preservation, with co-panelists, Erin Baucom, Jessica Tieman, Elizabeth England, and Kyna Herzinger.In this presentation, I reflect on the centrality of documentation to digital preservation work and – drawing on work by Jennifer Douglas, Sara Ahmed, and the Write the Docs community – propose four guidelines for writing more "honest" documentation
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