170 research outputs found
Achieving the Gold Standard of end-of-life care for people with dementia living in care homes
No full textNoCare homes play a major role in supporting people with dementia at the end of their lives. Seeking to understand the views of staff on the care they provide, Nicola Wheeler and Jan R Oyebode held focus groups with a range of staff in nine care homes in the West Midlands. Here they discuss their findings and implications for practice
The personal experience of partners of individuals with motor neuron disease
No full textMost research on partners’ experiences of living with a person with MND is questionnaire-based with no qualitative study focusing on the period between diagnosis and end-of-life care. This study aimed to provide an in-depth qualitative exploration of the experience of living with, and caring for, a partner with MND.Semi-structured interviews were conducted with eight individuals, and transcripts analysed from an interpretative phenomenological perspective. Two main themes were derived. ‘Impact on life’ included having concern for partner's safety, having social restrictions, being continually tired, struggling with anger and frustration, loss of intimacy and uncertainty around the future; while ‘Adjusting to the situation’ included trying to be strong, retaining a sense of normality, appreciation of specialist services, adopting a problem-solving approach, living day to day and ability to remain positive. In conclusion, experiences of stress and loss are illustrated in this sample of partners of those with MND, and it is suggested both these aspects should be integrated into understanding of carers’ experiences. Carers appear to inhibit their grief in order to appear strong. Greater understanding of the consequences of this would help in providing appropriate emotional support
The Busy Caregiver's Guide to Advanced Alzheimer's Disease Edited by Jennifer R. Stelter with Rachael Wonderlin John Hopkins Press. 2020. US$19.95 (pb). 192 pp. ISBN 9781421441085
No full textQualitative Research Methods in Mental Health and Psychotherapy: A Guide for Students and Practitioners Edited by David Harper & Andrew R. Thompson. Wiley-Blackwell. 2011. £29.99 (pb). 272 pp. ISBN: 978-0470663707
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Supportive Care for the Person with Dementia. Edited by Julian Hughes, Mari Lloyd-Williams & Greg Sachs. Oxford University Press. 2009. £59.95 (hb). 330pp. ISBN: 9780199554133
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