1,721,061 research outputs found
Everyday death: An exploration of qualified diplomat nurses' experiences of caring for dying people in hospital
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The manifestations, management and meanings of weight loss and eating difficulties in people with advanced cancer: some preliminary findings
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Media review edited by Graham R. Williamson. The Complete Guide to Relieving Cancer Pain and Suffering
No full textExamining patients' accounts of their pathway to the diagnosis of lung cancer: searching for new approaches to early detection
No full textHelping patients with advanced cancer live with concerns about eating: A challenge for palliative care professionals
No full textThis paper reports findings of an exploratory study of the eating habits of people with advanced cancer living in the south of England in 2003. The purpose of the study was to develop an understanding of why eating can be experienced as troubling and examine the potential for helping people live with the changes in eating habits that often accompany advanced cancer. Semistructured interviews were conducted with 30 patients, 23 lay caregivers, and 14 specialist nurses. The data were analyzed thematically. It was found that patients experienced eating-related concerns when the reality of eating differed from the expectations of eating. Patient response to concern ranged from acceptance to self-action. A subgroup of participants believed that they could have been helped by support for taking self-action. Eating-related concerns present nurses and other health care professionals with the challenge of supporting differing patient preferences for living with the symptom, which can include the expectation of support for self-action
Good death? An exploration of newly qualified nurses’ understanding of good death
No full textThe dominant professional understanding of good death is death where symptoms are controlled, the inevitability of death has been accepted and preparations have been made leading to peace for all involved. It seems surprising, in a pluralistic society, that there might be such a clear common understanding of good death. This study looks at the understandings of good death voiced by 28 staff nurses who were interviewed about their experiences of caring for dying people in hospital. The findings suggest that a nurse’s understanding of good death had elements that were shared with her colleagues, but also that there was a personal understandings of a good death. The concept of good death is perhaps a reduction that leads to an incorrect assumption of a shared understanding of the acceptable way to care for a dying person. The concept of ‘personally ideal death’ is proposed as a refinement of good death that recognises that the beliefs and values of each individual influences what they understand to be acceptable death
Macmillan Research Unit Showcase: Helping people to live with cancer through treatment and beyond
No full textAims and objectives:
To provide an overview of ongoing research activity in the Macmillan Research Unit at the School of Nursing and Midwifery, University of Southampton.Brief outline of the showcase:
The purpose of this showcase is to overview the ongoing activity in the Macmillan Research Unit [MRU]. The MRU sits within the Cancer Palliative and End of Life Care Research Group. The overall aim of the Unit is to develop a programme of research into issues of concern to people affected by cancer from the point of diagnosis, through treatment and beyond. We will present examples of ongoing work.
The Macmillan Listening Study: Listening to the views of people affected by cancer about cancer researchDavid Wright is leading this innovative study. By participating in this study cancer patients and carers have an opportunity to voice their own views about cancer research. The two aims of the study are:
• To explore the views people affected by cancer have about cancer research
• To identify the research priorities of people affected by cancer
Using focus groups, some 200 patients across the UK are participating in a study that is co-led by people affected by cancer and designed to elicit the priorities for research that people affected by cancer believe to be important. Patients from marginalised groups are being targeted to participate in a second phase of focus groups and include: patients from minority ethnic groups, older people, teenagers, people with advanced disease, and patients with cancer sites often excluded from studies.
Macmillan study of weight loss and eating difficulties in people with advanced cancer Jane Hopkinson is developing this important work. A systematic literature review (Phase I) and an exploratory study (Phase II) have revealed that weight loss and eating difficulties are experienced as troublesome by the majority of people with advanced cancer. However, little is known about how people can best be helped to live with these symptoms. Indeed, it is widely assumed that nothing can be done, as to date pharmacological and nutritional interventions have been found to be of limited value in arresting or reversing the symptoms. Yet the Phase II exploratory work found reasons for distress in consequence of weight loss and eating difficulties that may be amenable to intervention. The next stage of this work is to assess the value of a new approach, to include the support of self-action, in response to the very difficult problems of weight loss and eating difficulties in people with advanced cancer.
Supporting self management amongst adults with cancer
Using systematic review techniques a small body of work has been identified relating to supporting self management amongst cancer patients. None of the studies reviewed have directly addressed supporting self-management and related studies are of poor quality. There is a clear need for work to be developed in this area. Claire Foster is developing a multi-method study to explore the potential for developing strategies to support people living with the symptoms and other health changes experienced following a diagnosis of cancer. This study will explore the ‘self-action’ taken in response to symptoms and health changes that follow from the point of a cancer diagnosis. The purpose of this exploration would be to develop an understanding of what might help people affected by cancer to sustain or enhance their personal management of the challenges faced when living with cancer
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