1,721,221 research outputs found
Review: Developing a patient-led cancer care website, 'CanCare': What do end users want?
No full textColoREctal Wellbeing (CREW) database
No full textCREW is a longitudinal cohort study to explore recovery of health and wellbeing following primary treatment of colorectal cancer (ColoREctal Wellbeing cohort study). The purpose was to follow a thousand people who had colorectal cancer to map out the path of recovery over time, to look at how long it takes to feel healthy and well again after cancer.
Access to the dataset is restricted. See http://www.horizons-hub.org.uk/access_data.html for terms and conditions. Contact the study on 023 8059 6885 or [email protected]</span
An exploration of the internet as a self-management resource
No full textIn this paper, we explore the role of the internet as a resource for self-managing problems experienced by people affected by cancer. To do this, we draw on our observations of a UK online discussion forum used by people affected by cancer. We explored online contributions to the online discussion forum to identify examples of how people used the internet to seek and share information and support in the context of cancer to support their self-management of problems. Our findings show that of those registering on an online discussion forum only a minority (18%) contributed posts. Few people contributed to the online discussion forum more than five times although a minority of contributors participated numerous times. Examples of emotional and informational support exchanged in the online discussions are described. Benefits of contributing to the online discussions were noted. In conclusion, the online discussion forum can provide a useful resource for people to seek and share experiences, information and support with others in similar situations
Outcomes of a nurse-delivered psychosocial intervention for weight- and eating-related distress in family carers of patients with advanced cancer
No full textBACKGROUND: International expert consensus is that psychosocial intervention is likely to help advanced cancer patients and their family carers affected by weight loss and poor appetite.PURPOSE: To investigate the potential for a psychosocial intervention, the Macmillan Approach to Weight and Eating (MAWE), to mitigate weight- and eating-related distress in carers of patients with advanced cancer.METHOD: A controlled before and after study was conducted with carers of advanced cancer patients living in the community in the South of England in 2006-7. It used mixed methods to compare carers exposed to MAWE (n=12) with a control group (n=14).RESULTS: Weight- and eating-related distress improved in carers exposed to MAWE. Qualitative analysis found that MAWE may help carers by providing information, reassurance, and support for self-management.CONCLUSION: This preliminary study of MAWE suggests that it provides benefits as a supportive intervention. Further testing is warranted using a more robust experimental design
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