1,721,059 research outputs found
Extended session: supporting those living with and beyond cancer including survivorship care
No full textAddressing the needs of cancer survivors: issues and challenges
No full textThis paper reviews the consequences of improving cancer survival rates for health services and for future research. The good news that people are living longer following a cancer diagnosis brings with it consequences. There are growing numbers of people who live for many years following primary cancer treatment, yet little information exists as to the health and well-being of individuals with cancer over the long term. Data from the few studies of the well-being of cancer survivors suggest that while, in general, individuals report that they are in good health, a substantial minority experience long-term physical, social and economic consequences, and make extensive use of health services as a result. There are few services targeted at supporting long-term cancer survivors or minimizing the potential physical or emotional consequences to enable individuals to return to productive lives following treatment. A research agenda to address these issues is proposed
Does UK nursing research have an impact on care delivery?
No full textProfessor Dame Jessica Corner, Chair of the Council of Deans of Health, and Professor Alan Glasper of the University of Southampton discuss the impact potential of the Research Excellence Framework results, and how world-leading nursing research is transforming care deliver
Working together: crossing discipline boundaries to evaluate complex interventions
No full textNurses, it is argued, should participate in interdisciplinary research, yet there is little written about working in an interdisciplinary environment in research. This paper sets out some reflections on the experience of a nurse and a health economist working together on a series of studies. A number of difficulties are identified as themes running through the experience of interdisciplinary research: evaluating complex interventions, disruption of normal academic and scientific life, competition between disciplines and teams, finding a common language and learning to work together, finding the common ground and mutual self-interest, and learning to respect other perspectives and disciplines. Rosenfield's (1992) taxonomy of cross-disciplinary research is presented as a model to explain the development of our own approach. A commitment to the goal of transdisciplinarity in research is suggested
Surveying the experience of living with metastatic breast cancer: comparing face-to-face and online recruitment
No full textWith its growing use, the Internet offers researchers a novel approach in reaching those they seek to study locally, nationally or globally. The purpose of this paper is to describe our experience of using the Internet as one means of recruiting to a research study exploring the experience of women with metastatic breast cancer and to compare the methodological issues of using face-to-face and online approaches to survey recruitment. The survey incorporated the Functional Assessment of Cancer Therapy-Breast (FACT-B) quality of life measure, a patient experience with care measure and open ended text questions about respondents’ physical, emotional and practical needs. Recruitment was done face-to-face in two cancer centres and on the Breast Cancer Care (it is the UK’s leading provider of information, practical assistance and emotional support for anyone affected by breast cancer) Website, recruiting 110 people in the cancer centres and 125 from the Website. The age range was 25–84. Website respondents were significantly younger than cancer centre respondents (<0.000). They also had significantly lower social well-being on the FACT-B scale and were less satisfied with information and advice (<0.000) and their personal experience of care (<0.010). Finally, we consider the role of the Internet in research and the methodological and ethical challenges this presents both now and in the future
Exploration and analysis of free-text comments from the 2013 Wales Cancer Patient Experience Survey (WCPES)
Full text linkLearning-based text mining in analysis of free-text responses to the (2013) Wales Cancer Patient Experience Survey (WCPES) – Findings and future applications
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