109 research outputs found

    The Drawer & a Pile of Bricks, by David Berridge

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    In the new house the sounds had no space, no sureness of near or far, nothing to attribute them to, apart from My Racist Aunts. That’s us, they said. All of us. Your deal. Hairdressers on a Central London street freeze, find themselves transported to a desolate seaside town. Ideas and projects are written for the drawer, a realm of the unpublished and unattainable, then inconveniently realised. A monument to the Third Revolution takes shape in a small bar, alongside an open packet of crisps, a way of sitting on a stool, and a resemblance to Sherlock Holmes. What fortunes can be told from the names given to alleyways and steep flights of steps? Who can be glimpsed from behind a fishing boat, or in the lengthening shadows of the tall town houses bordering the park? Is this romance? There is a house to be cleared, and a pile of bricks appears to be immovable. Is an old friend awake for the election? Hatch a plan for escaping disaster, robotic movements on the cliff top, as Aunts of noxious intentions trumpet, amok in the city centre, again. ‘Can you make a life out of a pile of bricks, or make a pile of bricks out of a life? Does Regis equal a question? Does Britain equal birdsong? Is there a good enough way to respond to this book that builds such a slight, solid thing from its own sly language?’ –> Joanna Walsh David Berridge lives in Hastings. He is the author of several books of poetry and prose, including The Fluxus President, and self build with no energy bills or dog, a long poem on three scrolls. He works as a bookseller in London

    Time to reinvent the science of dementia: the need for care and social integration

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    Objectives: The increasing number of older adults with dementia is a large and growing public health problem. Alzheimer's disease, the prevailing form of dementia, is projected to quadruple worldwide. To date, the care and social integration of individuals with dementia is complicated by limited collaborations between biomedicine and other disciplines. The objective of this paper is therefore to reflect on the orientation of biomedicine with regard to the science of dementia, and to articulate a path for moving forward. Methods: The authors drew upon, and expanded, the insights of an interdisciplinary, international workshop entitled Bioethics and the Science of Aging: The Case of Dementia' held in October 2012 at the University of California in Berkeley.Results: The care of individuals with dementia compels solid interdisciplinary collaborations. There are several issues affecting the care of individuals with dementia: (1) an evolving definition of dementia; (2) the ambiguous benefits of the diagnosis of dementia; (3) ethical conflicts concerning consent processes and clinical trials; and (4) a limited understanding of the perspective of the person with dementia.Conclusion: We argue that it is time for a renewed dialogue between biomedicine and other disciplines -- particularly public health, the social sciences, the medical humanities and bioethics. This interdisciplinary dialogue would facilitate a process of self-reflection within biomedicine. This dialogue will also provide the foundation for equitable public health interventions and will further prioritize the values and preferences of individuals with dementia, as well as their care and social integration

    Supplemental Material - Older Adults’ Unmet Needs at the End of Life: A Cross-Country Comparison of the United States and England

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    Supplemental Material for Older Adults’ Unmet Needs at the End of Life: A Cross-Country Comparison of the United States and England by Hazal Erçin Swearinger, Jessica L. Lapham, Melissa L. Martinson, and Clara Berridge in Journal of Aging and Health.</p

    Supplemental Material - Implementation and impact of a Dementia Friends pilot

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    Supplemental Material for Implementation and impact of a Dementia Friends pilot by Alisa Tirado-Strayer, Miruna Petrescu-Prahova, Basia Belza, Clara Berridge, Yuanjin Zhou and David M La Fazia in Dementia</p

    Developing and validating a behavioral framework for dementia care partners' fall risk management

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    Thesis (Ph.D.)--University of Washington, 2021Older adults living with dementia (OLWD) experience nearly two to ten times higher fall risk than older adults without dementia. Despite this, evidence is limited concerning effective fall management strategies for them. Care partners (broadly defined as relatives, partners, and friends) play a critical role in managing the fall risk for community-dwelling OLWD. However, it is unclear what behaviors dementia care partners adopt are relevant to fall risk management (FRM) and how these behaviors are associated with fall-related outcomes for OLWD. This dissertation utilizes an exploratory sequential mixed method study design to develop and validate a behavioral framework for dementia care partners' FRM. This first paper proposes a behavioral framework for dementia care partners’ FRM using a grounded theory approach and semi-structured, in-depth interviews with 14 care partners of community-dwelling OLWD. This paper makes a distinctive contribution by identifying eight domains of dementia care partners’ FRM behaviors (1. functional mobility assistance, 2. assessing and addressing health conditions, 3. health promotions support, 4. safety supervision, 5. physical environment modification, 6. receiving, seeking, and coordinating care, 7. learning, and 8. self-adjustment) across four stages of FRM (1. providing support before dementia diagnosis, 2. preventing falls, 3. preparing to respond to falls, and 4. responding to falls). The second paper validates this behavioral framework by using two linked national surveys, the National Health and Aging Trends Study (NHATS) 2015 and the National Study of Caregiving (NSOC) 2015, to examine the prevalence and dimensionality of care partners’ FRM and to compare the differences between primary and secondary care partners. The exploratory factor analysis (EFA) approach under the item response theory paradigm is utilized to examine the dimensionality of FRM behaviors. EFA results illustrate the complexity of two domains of FRM behaviors that emerge from the first paper: receiving, seeking, and coordinating care, and assessing and addressing health conditions. These discrepancies illustrate the need to explore different mechanisms, facilitators, and barriers for care partners navigating multiple care systems and service providers and addressing different types of health conditions for managing OLWD’s fall risk. Furthermore, this study identifies similarities and differences between primary and secondary care partners that may inform the development of different strategies to engage care partners based on their caring roles. Informed by this validated framework, the third paper focuses on assessing fall risk reduction for community-dwelling OLWD associated with receipt of FRM support from their care partners utilizing longitudinal data NHATS 2015-2016 and the linked care partner data NSOC 2015. Study findings from this paper highlight the importance of care partners’ medication management, wound care, learning behaviors, accessing formal social care, and physical environment modifications in potentially reducing the risk of falling for community-dwelling OLWD. The study also found that certain FRM behaviors, including functional mobility assistance, health promotion support, and medication management might be associated with a higher risk of falling for OLWD. Overall, the findings from this dissertation yield contribution to both practice and health and social behavior science inquiries. The dissertation addresses the need for a behavioral framework to understand care partners’ FRM and assess the contributions and limitations of care partners’ efforts. Future interventions can be developed by applying this framework to engage dementia care partners

    Event experiences: design, management and impact

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    The papers submitted for this PhD by publication represent research centered on event experiences and their design, management and impact. They are the result of research projects that have produced seven published peer-reviewed papers and one book. The body of work has made an original, significant and sustained contribution towards the development of an emerging field of study in events. The work has made a major contribution towards furthering understanding of the human experience that results from the management of events, their design and their impact. At the heart of this submission is a consideration for how events are experienced and what factors and components contribute to the depth of that experience. The majority of papers analyses and reflects upon the construction of experience settings (their design) and essentially seeks knowledge to identify the variables that shape any experience of events (Ryan, 2012). In doing so the research undertaken has embraced a less restrictive set of methodologies usually afforded by statistical exercises in favour of a more embodied, immersive and participative approach. This has included not only observation and autoethnography, but also reflection on that which has been observed. In turn this reflection and analysis has drawn upon a range of theories and models to advance understanding of the social occasions that we call events where human interactions with the designed programme and environment illicit a range of responses that may culminate in a memorable and unique moment in time. The research therefore touches upon the emotional response to event experiences, the study and interpretation of the meaning of events, and notably their signification to an intended audience. In the course of this research I have evaluated and reflected upon the study and practice of event management across a range of event types and genres. Seeking to initially clarify the role of design in creating event experience led me to questioning the paradigmatic model for event management and resulted in the development of an alternative consideration for event planning and management - Event Experience Design Framework (EEDF). Unlike existing models this places design as the central and pivotal driving force that inhabits all areas of the event management process and upon which all events should then be based. The contribution of this body of work can therefore be summarised as follows: 1. Development of a paradigmatic concept that places design as the central and essential practice that underpins the planned event experience. 2. Theoretical positioning of how designing event experiences impacts on stakeholders 3. Recognition and application of theoretical models and tools relevant to event design and creativity, and further use of conceptual models to analyse experiential outcomes 4. Identification and awareness of the broader socio-cultural impact of planned events This submission provides evidentiary material that I have made a positive and meaningful contribution to raising the profile of events through research, teaching and learning by an acknowledged excellence in events management education and as a recognised (and first) National Teaching Fellow in Events. Furthermore, the submission provides a reflection on this research and development that has enabled me to make such a pivotal contribution to the field. It concludes with an outline of plans for the future

    Aspects of Translation Theory, and Comparison to translation English-Albanian from the author G. R. Berridge, Diplomacy Theory and Practice and Albanian version G. R. Berridge Teoria dhe Praktika

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    The main aim of this topic is to provide a full-fledged analysis of the terminology used in the diplomatic field and to achieve this an in-depth analysis of two chapters from two books is elaborated, one is in Albanian Language and the other in English Language. The author of the book is the renowned scholar of diplomacy G. R. Berridge, Diplomacy Theory and Practice and the version in Albanian “Diplomacia, Teoria dhe Praktika”. To achieve a comparison of translation between the Albanian and English version it was necessary to carefully scrutinize and carry out a detailed analysis of translation aspects such as the Importance of Equivalence, Methods of Analysis, Grammatical Structure, Synchronic Approach and Diachronic Approach to the text and to draw the difference between the Political and Administrative Style. In addition to this it was of significant importance to make an ample lexical analysis of the key words and expressions. The misinterpretations of certain words in the diplomatic terminology may aggravate and take the shape of a conflict. So, contribution in this aspect of translation appears to be essential and in relevance to contemporary problematic

    Envisioning a Gerontology-Enriched theory of Care

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    Medicaid Becomes the First Third-Party Payer to Cover Passive Remote Monitoring for Home Care: Policy Analysis

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    Background: Recent years have seen an influx of location-tracking, activity-monitoring sensors, and Web-cameras to remotely monitor the safety of older adults in their homes and to reduce reliance on in-person assistance. The state of research on these monitoring technologies leaves open crucial financial, social, and ethical cost-benefit questions, which have prevented widespread use. Medicaid is now the first large third-party payer in the United States to pay for these technologies, and their use is likely to increase as states transition to managed long-term services and supports (MLTSS). Objectives: This is the first study to examine how state Medicaid programs are treating passive remote monitoring technologies. This study identifies (1) which states allow location tracking, sensor systems, and cameras; (2) what policies are in place to track their use; (3) what implementation processes and program monitoring mechanisms are in place; and (4) what related insights Medicaid program stakeholders would like to learn from researchers. Methods: Interviews were conducted with 43 state, federal, and managed care organization (MCO) Medicaid program stakeholders about how these technologies are used in state waivers serving community-dwelling older adults in 15 states, and what policies are in place to regulate them. The interviews were analyzed by the research team using the framework analysis method for applied policy research. Results: Two-thirds of the states cover location tracking and activity-monitoring sensors and one-third cover cameras, but only 3 states have specific service categories that allow them to track when they are paying for any of these technologies, impeding regulation and understanding of their use at the state and federal level. Consideration of ethical and social risks is limited, and states struggle to understand which circumstances warrant use. They are further challenged by extreme resource restrictions and transitions to MLTSS by MCOs inexperienced in serving this growing “high-need, high-cost” population. Conclusions: Decisions about Medicaid reimbursement of technologies that have the potential to dramatically alter the way older adults receive supportive services are being made without research on their use, social and ethical implications, or outcomes. At a minimum, new service categories are needed to enable oversight. Participants prioritized 3 research aims to inform practice: (1) determine cost-effectiveness; (2) identify what type of information beneficiaries want to be generated and whom they want it to be shared with; and (3) understand how to support ethical decision making for beneficiaries with cognitive impairment. These findings provide direction for future research and reveal that greater interaction between policy makers and researchers in this field is needed

    Active subjects of passive monitoring: responses to a passive monitoring system in low-income independent living

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    Passive monitoring technology is beginning to be reimbursed by third-party payers in the United States of America. Given the low voluntary uptake of these technologies on the market, it is important to understand the concerns and perspectives of users, former users and non-users. In this paper, the range of ways older adults relate to passive monitoring in low-income independent-living residences is presented. This includes experiences of adoption, non-adoption, discontinuation and creative ‘misuse’. The analysis of interviews reveals three key insights. First, assumptions built into the technology about how older adults live present a problem for many users who experience unwanted disruptions and threats to their behavioural autonomy. Second, resident response is varied and challenges the dominant image of residents as passive subjects of a passive monitoring system. Third, the priorities of older adults (e.g. safety, autonomy, privacy, control, contact) are more diverse and multi-faceted than those of the housing organisation staff and family members (e.g. safety, efficiency) who drive the passive monitoring intervention. The tension between needs, desires and the daily lives of older adults and the technological solutions offered to them is made visible by their active responses, including resistance to them. This exposes the active and meaningful qualities of older adults’ decisions and practices
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